Kerry Longmore

[Northern Ireland Kidney Research Fund @NIKRFcharity]

Join us at our AGM next week – all welcome!

Hear updates from leading experts:
👨‍⚕️ Stephen O’Neill on NIKRF research
👩‍⚕️ Dr Aisling Courtney on transplantation in NI

📅 Wed 17 Sept, 7pm
📍 Seminar Room, Level 11, Belfast City Hospital

Light refreshments served – see you there!

[Kerry Longmore @LongmoreKerry]

Caring for a child with a #RareDisease comes with #financial, #social, and #emotional challenges. Researchers at #UCD want to understand your experience to create positive change. Please complete this short survey to have your voice heard: https://t.co/jDXB728W2H #RareDiseaseNI

[Kerry Longmore @LongmoreKerry]

Caring for a child with a #RareDisease comes with #financial, #social, and #emotional challenges. Researchers at #UCD want to understand your experience to create positive change. Please complete this short survey to have your voice heard: https://t.co/jDXB728W2H #RareDiseaseNI

[Kerry Longmore @LongmoreKerry]

You are all invited to a Family Fun Day in honour of Belle-Rose, in aid of the kidney research team. #RARDTAC #kidneyresearch #RAiN #RenalResearchni #LightingTheWay #RareDiseaseNI #RareDisease

[Northern Ireland Kidney Research Fund @NIKRFcharity]

That's us ready to go.... @balmoralshow Kidney Disease ...We Got This! Stand 49 Eikon Pavilion #LightingTheWay #kidneyresearch #kidneydisease

[Kerry Longmore @LongmoreKerry]

@PatientClient https://t.co/XbtOlk9fMH?

[Patient and Client Council (PCC) @PatientClient]

❕40,000 people in NI live with a chronic neurological condition

📣 Take the opportunity to share your views on analysis, findings and proposed recommendations in the final report of the Regional Review of Neurology Services

🗣️Registration also open for public engagement events

[Nicola Ann Ward @NicolaAnnWard]

We did it! Team @CPH_QUB completed the Belfast Marathon in support of @NIKRFcharity – raising £500 and counting! Huge thanks to our amazing team, @QUBelfast charity committee, all at CPH (staff & students), and Susan from NIKRF for your incredible support!

[Kerry Longmore @LongmoreKerry]

@NicolaAnnWard @CPH_QUB @NIKRFcharity @QUBelfast @dlogan411 @EHCassinelli Fabulous team @CPH_QUB this is amazing!!

[Kerry Longmore @LongmoreKerry]

Caring for a child with a #RareDisease comes with #financial, #social, and #emotional challenges. Researchers at #UCD want to understand your experience to create positive change. Please complete this short survey to have your voice heard: https://t.co/jDXB728W2H #RareDiseaseNI

[Kerry Longmore @LongmoreKerry]

Caring for a child with a #RareDisease comes with #financial, #social, and #emotional challenges. Researchers at #UCD want to understand your experience to create positive change. Please complete this short survey to have your voice heard: https://t.co/jDXB728W2H #RareDiseaseNI

[Cystinosis Ireland @CystinosisIrl]

On the 7th of May, we mark #CystinosisAwarenessDay with some of our wider, global cystinosis community 💛

How can you help? Share this post to help us raise awareness 📢

#CystinosisAware 🌏

[Kerry Longmore @LongmoreKerry]

Calling those that care for someone with a rare condition. You are warmly invited to attend Caring with Rare: The Soft Launch of the Rare Disease Carer Support Tool
4th April, 9.30-1.30 pm,
Riddel Hall, Stranmillis.
https://t.co/Cfnhh6Ts5T

[Kerry Longmore @LongmoreKerry]

Calling those that care for someone with a rare condition. You are warmly invited to attend Caring with Rare: The Soft Launch of the Rare Disease Carer Support Tool
4th April, 9.30-1.30 pm,
Riddel Hall, Stranmillis.
https://t.co/Cfnhh6Ts5T

[Kerry Longmore @LongmoreKerry]

Calling those that care for someone with a rare condition. You are warmly invited to attend
Caring with Rare: The Soft Launch of the Rare Disease Carer Support Tool.
https://t.co/Cfnhh6Ts5T
@qubengagemhls_d @a_j_mcknight @Christinezoo @NI_RDP @CarersNI @22q11Ireland

[The Daisy Garland @thedaisygarland]

Please help @thedaisygarland this Purple Day (worldwide #epilepsy awareness day, March 26th) by joining us in raising epilepsy awareness and much-needed funds for our vital work 💜 Thank you x
https://t.co/ryYHsqyNfs

[Kerry Longmore @LongmoreKerry]

The LifeArc Centre for Acceleration of Rare Disease Trials, would like for you to join their Lived Experience Advisory Panel to help deliver a new approach for Rare Disease trials:
https://t.co/F1D3h57anz
https://t.co/LtVxQ4bIhF
#raredisease #patient #patientinvolvement

[Kerry Longmore @LongmoreKerry]

The LifeArc Centre for Acceleration of Rare Disease Trials, would like you to join their Lived Experience Advisory Panel to help deliver a new approach for Rare Disease trials:
https://t.co/F1D3h57anz
https://t.co/LtVxQ4bIhF
#raredisease #patient #patientinvolvement

[Kerry Longmore @LongmoreKerry]

The LifeArc Centre for Acceleration of Rare Disease Trials, would like you to join their Lived Experience Advisory Panel to help deliver a new approach for Rare Disease trials:
https://t.co/F1D3h57anz
https://t.co/LtVxQ4bIhF
#raredisease #patient #patientinvolvement

[Kerry Longmore @LongmoreKerry]

The LifeArc Centre for Acceleration of Rare Disease Trials, would like for you to join their Lived Experience Advisory Panel to help deliver a new approach for Rare Disease trials:
https://t.co/F1D3h57anz
https://t.co/LtVxQ4bIhF
#raredisease #patient #patientinvolvement