Saturday’s with Sandy! I am so lucky to get these days….full of laughs, love, and lots of ribbon tying! I love you @sandymorris333 and @KylanMorris1 Memoir to follow! 😂😂♥️♥️♥️#cureals#als#NurOwn works!
My kids say my voice is louder after #NurOwn
I figure if my voice is a little stronger then I have more air & this therapy must once again be trying in my ALS-ravaged body. I would settle for stabilizing but it appears this mighty stem therapy goes right to work regardless.
1/2
Without him, the #ALS world is lonelier place.
Bryan Wayne made an omelet filled with hope, joy, love, one we miss, so very much.
Bryan waited for the cure. A cure that would never, ever come.
#alsawarenessmonth#whatsyouromelet#DanceWhileYouCan ✌️🌼
“This ALS Mama Bear is fighting to live!”
~@sandrawmarlowe
Sandra worked hard to find the right clinic for her, and added her insights to the ALS Clinic Advisor to make sure others have an easier time than she did.
Thank you, Sandra ❤️
The month of the Mama Bear continues as we feature @klink52. She reminds us of the critical role ALS clinics play in ALSLand.
She is a strong voice and a fearless advocate for the ALS community. With mama bears like her we will move mountains!
Thank you, Mitze!
The R1 Crew would like to send a special Happy Birthday to one of our fearless leaders, @KylanMorris1
Thank you for all you do for our crew, and for the ALS community!
Special thanks to @BridgetRebecca3 for continuing the fight after unspeakable heartbreak.
It just proves what I’ve always known, mama bears are cut from a different cloth.
Thank you, Rebecca, for honoring your boys in the most incredible way ❤️
Since this is the month of the mama bear, we wanted to ask some of the moms in the ALS community what the ALS Clinic Advisor means to them.
@BridgetRebecca4 has lost two sons to ALS, and has vowed to keep fighting for hope. She is a fierce #ALSMamabear.
Thank you, Rebecca ❤️
Attentive, Proactive, Caring…three important traits that have earned the Healey Center 15 excellent ratings on the ALS Clinic Survey.
Thank you, to all of the amazing people at the Sean M. Healy & AMG Center for ALS, for continuing to lead the way.
This incredible resource is over 400 responses strong! Your insight can help the ALS Clinic Advisor become a powerful tool in the ALS toolkit.
To learn more, or add your insights please visit https://t.co/ii1JbPiLG5
Learn a little about the R1 Crew and the ALS Clinic survey that will change the game.
Then visit https://t.co/ii1JbPiLG5 to take the survey and read reviews left by real people impacted by ALS.
#endALS
May is for celebrating all of the incredible mama’s of the ALS community…the ones who care for us, love us, and protect us fiercely.
Our hope is that the ALS Clinic Advisor can be a powerful tool for all mama’s to use to ensure that their loved ones get the care they deserve.