LuMind IDSC

We accelerate #research to improve health & independence for all with #Downsyndrome and empower families with education, connections & support. #DSresearch

[LuMind IDSC @LuMindIDSC]

“I think the DSC2U report helps any family with a child with Down syndrome when late at night they think, ‘how do I make sure my child is healthy?’” –Jason

Pay just $37 for DSC2U when you register for myDSC at the same time. Learn more: https://t.co/3jqzMFd17F

[LuMind IDSC @LuMindIDSC]

Don't miss it! Tomorrow, in our next myDSC webinar, we’ll discuss ways to support the mental health of people with Down syndrome and their families during the holiday season. Register here: https://t.co/scH8fyHDuj

[LuMind IDSC @LuMindIDSC]

Many people report difficulty sleeping as the seasons and weather change. Is your loved one with Down syndrome having trouble with this? Check out our list of eight tips for better bedtime routines that might help: https://t.co/DAyLzl6pLv

[LuMind IDSC @LuMindIDSC]

Need information on DS-related subjects for your organization, class, or presentation? Just want to learn more about issues facing the DS community? Check out our new website for info on upcoming webinars and a library of previously-recorded webinars! https://t.co/sdMTQRQFAY

[LuMind IDSC @LuMindIDSC]

The winter holidays can be both a joyful and challenging time. In our next myDSC webinar, we’ll discuss ways to support the mental health of people with Down syndrome and their families during the holiday season. Register here: https://t.co/scH8fyHDuj

[LuMind IDSC @LuMindIDSC]

John Cronin, co-founder of John’s Crazy Socks, knows that people with Down syndrome have a 95% chance of developing Alzheimer’s by age 65. That’s why he’s doing his part by participating in the LIFE-DSR study. Learn more about LIFE-DSR: https://t.co/Jg7jX2b3jq

[LuMind IDSC @LuMindIDSC]

Doing some #BlackFriday shopping on Amazon today? If you shop at https://t.co/PLGu7QcRZG and add LuMind IDSC as your charity, a portion of the sale price will support our mission! You can also support LuMind IDSC via the Amazon app by changing your AmazonSmile settings.

[LuMind IDSC @LuMindIDSC]

This Thanksgiving, we’re spending a #ThankfulThursday expressing gratitude to the amazing runners who raised funds by marathoning in Berlin, Chicago, and New York City. We couldn’t build a healthier and more independent future for people with #Downsyndrome without you!

[LuMind IDSC @LuMindIDSC]

November is #EpilepsyAwarenessMonth! According to a study published in the Journal of Clinical Medicine, “Individuals with DS have an increased risk for epilepsy … especially after age 40 years.” Check out our myDSC resources on epilepsy here: https://t.co/uk6aSZnPrG

[LuMind IDSC @LuMindIDSC]

A member of our community, Amy Kolb Tucker, shared this blog co-written by her daughter Katy. In it, Katy describes what it feels like to have #Alzheimers: https://t.co/HkCPduvWUi

Learn more about the connection between #Alzheimers and #Downsyndrome here: https://t.co/R9i9cNgI5f

[LuMind IDSC @LuMindIDSC]

Our organizational newsletter has information on upcoming community events, research news and opportunities, and more! If you’re not already signed up to receive it, register to get it at https://t.co/rH9ttCr2y3.

[LuMind IDSC @LuMindIDSC]

Our community is full of people who represent the bright future we know our loved ones can achieve—like John Cronin, co-founder of John’s Crazy Socks. During this season of giving, we hope you’ll support our work to brighten more futures: https://t.co/DEVwOWQoIL

[LuMind IDSC @LuMindIDSC]

Interested in learning more about the kind of research that’s being done to address #Alzheimers? Check out our Research Spotlight blog on a new treatment, lecanemab, that has shown promising results in patients with early-stage Alzheimer’s: https://t.co/s4eU0JGN4N

[LuMind IDSC @LuMindIDSC]

LuMind IDSC and the Down Syndrome Clinical Trials Network are pleased to announce the launch of the DS-CTN Data and Safety Monitoring Board (DSMB). Learn more: https://t.co/kHWpLmgUdz

[LuMind IDSC @LuMindIDSC]

@SamanthaDerivan Thank you, Sam! We love this pic!!!

[LuMind IDSC @LuMindIDSC]

Every Thursday in November is #ThankfulThursday! This week, we’re thanking everyone who’s participated in Down syndrome research—whether that was taking a survey from home or attending an in-person study like LIFE-DSR. We couldn’t do this without you!

[LuMind IDSC @LuMindIDSC]

November is #DiabetesAwarenessMonth. According to the Down Syndrome Medical Interest Group (DSMIG), children with Down syndrome are four times more likely to develop diabetes than other children. Check out our myDSC resources on diabetes here: https://t.co/CdUetZ2CnK

[LuMind IDSC @LuMindIDSC]

The winter holidays can be both a joyful and challenging time. In our next myDSC webinar, we’ll discuss ways to support the mental health of people with Down syndrome and their families during the holiday season. Register here: https://t.co/scH8fyIbjR

[LuMind IDSC @LuMindIDSC]

In our next research webinar on Nov. 15, we’ll meet with the PI of the Memantine Follow-Up Study, Dr. Alberto Costa. He'll explain how the study was conceived, walk us through the results, and share insights for future studies. Register here: https://t.co/KxEu2OYBNo

[LuMind IDSC @LuMindIDSC]

Solving some of the biggest medical challenges of the Down syndrome community is a huge task. We need people with DS age 25+ and their caregivers to help us do it! Get details on the LIFE-DSR study at https://t.co/5hv0H3Rqdg. Ask us about travel reimbursement!