π"the increasing evidence base that compression rather than prophylactic antibiotics is most useful in preventing recurrence of cellulitis, especially in the previously difficult to treat/higher-risk patients is relevant." π
Please take a few minutes to watch this abstract presentation from @ILF_Lympho by @ElineHoogstra, expert patient and Dutch patient advocate, to acknowledge the amazing work and collaboration among associations in Europe. Thanks Elineπ https://t.co/cpYKE3XeGP
Great to see these parameters included in this study: - "quality of life statistically improved as well as pain, heaviness, anxiety, impact on hobbies, work, purchasing clothes and intimacy/desirability" π
Had the opportunity at the Italian Lymphoedema Framework conference to participate in a round table discussion on the challenges of the patients and caregivers to obtain their compression garments. Patient involvement is at the heart of ILF. #lymphedema@ILF_Lympho
@Lymphwales@northernlymph I loved this presentation. Went straight to youtube to watch the suggested talk and have been putting the learnings into practice to support my newly discovered organ. πππ
Dr. Christoffer Nissen from Bispebjerg Hospital talking about @vascern at DALYFOs workshop today. Thank you for the recognition of the work of the patient representatives π #lymphedema#raredisease
Great start to DALYFOs workshop with Dr Christoffer Nissen from Bispebjerg Hospital. Appreciation to experts who support patient associations π #lymphedema
And it's a wrap. Another year of advocacy work. So much achieved. So amazing friendships I have gotten along the way. π #lymphedema#WorldLymphedemaDay
This is the webinar for all patients with primary lymphedema and/or caregivers. With Prof Sahar Mansour and Carina Mainka, mother of a child with #kif11#lymphedema#Genetics
ποΈMark your calendars! Weβre hosting a #webinar to talk all things #genetics and primary #lymphedema.
Join us on February 28 at 5 pm CET for an insightful session. Don't miss out and be sure to bring your #questions
Register here β‘οΈ https://t.co/qmnXmZaaML
#geneticresearch
@Rebeccaelwell3@BritishLymph π so true...not just physical characteristics but also daily life such as work, exercise, activity level and body image should be included when compression garment is measured for and ordered.
Presenting the PPL VASCERN #cellulitis flowchart to clinicians at @ASLBiella today, along with my personal pillars of self-management in #lymphedema. Thank you to the organisers for involving the patients π€
Such a privilege to get to meet with Prof Christine Moffatt and hear her talk about quality of life for children and young people with #lymphedema. Results will be presented at @ILF_Lympho conference in june. #kidscreen#QoL#raredisease