“We want to do everything we can to help ourselves now—and we want to help researchers understand more about this disease so that future generations won’t have to worry about it. That’s why we wanted to join the National #ALS Registry.” https://t.co/fapppEBNRO
#BreakingNews For those wondering if the Capt did his push ups for his #FilltheBoot challenge... 👏👏👨🚒 #cantmovetoday Thank you again Spokane for 8K! (And a sore Capt)
So excited to be kicking off #FillTheBoot season this Saturday with @IAFFL3711! 57th & Regal 8AM-4PM! Show your support & be sure to slow down to keep them safe! #Spokane#MDA @IAFFNewsDesk @WSCFF_UNION
Celebrate the start of summer break with us at the Looff Carrousel! On June 15th from 12-2pm, we'll be sponsoring all rides so they're FREE for all of you! We hope you'll join us for this beautiful summer day.
FDA announces plans to accelerate approval pathways for gene therapies targeting "devastating diseases, many of which are fatal and lack available therapy" https://t.co/0Qn489d4Dh
In the next year alone, about 5,000 people in the U.S. may be diagnosed with #ALS. The National #ALSRegistry is connecting people with ALS with researchers who want to find the causes of the disease and help change the lives of future generations:
https://t.co/jcvdgvDh0e
CMT families: Researchers are looking for people with #CMT to participate in a clinical trial to evaluate the effectiveness of an investigational drug. Under dev by Flex Pharma, it is taken in tablet form and may reduce muscle cramps in adults with CMT. https://t.co/cD6UBR5DDC
For people with ALS like Penny, voice and message banking for speech-generating devices makes communication so much more personal: https://t.co/3yIpsH6V6A #ALS#ALSAwarenessMonth