ME|FM Society of BC

We advocate for patients living with Myalgic Encephalomyelitis, Long-COVID and Fibromyalgia.

[ME|FM Society of BC @mefmbc]

The @bcndp budget has once again failed our community. @Josie_Osborne we urge you to act immediately and prioritize the care this community deserves. Please see our response here - https://t.co/JN9n5RxG8W

[ME|FM Society of BC @mefmbc]

Our 2026 Annual General Meeting is coming up on Saturday, September 26 at 2 pm PST.

Join us for updates on our strategic plan, projects, and day-to-day work supporting the ME|FM community — and share your own ideas and feedback.

Register for the AGM → https://t.co/spZm1qUrzg

[ME|FM Society of BC @mefmbc]

September is Pain Awareness Month.

And this year brings major new fibromyalgia research:

2.5 million people
6 countries
26 genetic regions

The largest genetic study of FM yet is giving researchers important new clues about its biology.

https://t.co/R7MIFTxVQz

[ME|FM Society of BC @mefmbc]

Free ME|FM Society of BC membership means real impact 💜 Vote at our AGM, join member socials, serve on the Board, get research updates first, and help us make a stronger case to government for better care in BC.

👉 Join free: https://t.co/LKvLvPNJrL

[ME|FM Society of BC @mefmbc]

With so many treatments competing for our attention, how do you evaluate what's credible? Our Interdisciplinary Advisory Committee has put together guidance for weighing research studies, programs, and treatments.

Read the full statement on our blog.

https://t.co/HuieSNYHZn

[ME|FM Society of BC @mefmbc]

2026 AGM: Sat, Sept 26, 2 PM PST. Hear updates on our strategic plan and projects, then share your own feedback.

Become a member: https://t.co/LKvLvPNJrL
Register: https://t.co/ggWtUDO9xv
#MECFS #LongCOVID #MEFMSocietyofBC

[ME|FM Society of BC @mefmbc]

In BC, there are over 200,000 people with either myalgic encephalomyelitis (ME) or Long COVID that has lasted over a year. If this is you or your loved one, your voice is deeply needed.

Tell your story to your MLA.

Email [email protected]

[ME|FM Society of BC @mefmbc]

Join the Stanford Community Symposium: The Molecular Basis of ME/CFS. Latest research updates from leading speakers, on behalf of Dr. Ronald Davis.

Sept 11, 8:00 AM PST, virtual

Register: https://t.co/V4O7blAtRk

[ME|FM Society of BC @mefmbc]

25% of people with myalgic encephalomyelitis (ME) are house- or bed-bound.

possible, and they don't often reply to those outside their ridings. The more volunteers
we have across BC, the stronger our advocacy.

Sign up via the linktree in our bio or email [email protected]

[ME|FM Society of BC @mefmbc]

Facing dismissal or unsafe care from providers? Your MLA needs to hear it. We'll help you tell your story, no pressure, at your own pace. Sign up via the link in our bio or email [email protected]

#MECFS #LongCOVID #MEFMSocietyofBC

[ME|FM Society of BC @mefmbc]

New page for providers: free continuing education on ME, Long COVID, and FM, covering diagnosis, PEM, and more. Share it with your care team.

https://t.co/dMPKH4ZQDb

#MECFS #LongCOVID #MEFMSocietyofBC

[ME|FM Society of BC @mefmbc]

New peer-reviewed research confirms it: how we define Long COVID directly affects whether treatments help or harm. We've broken down the different types, each with distinct symptoms and treatments.

Read more: https://t.co/njTnkm0mdd

#LongCOVID #MECFS #MEFMSocietyofBC

[ME|FM Society of BC @mefmbc]

The ME|FM Society of BC is recruiting Board Members in Fundraising, Non-profit Management, Legal, and Financial Management (Treasurer). ~10 hrs/month, fully virtual, disability accommodations available.

Apply by Aug. 27: [email protected]
#Volunteer #MEFMSocietyofBC

[ME|FM Society of BC @mefmbc]

Join the #Plank4ME challenge! Send us a 15-second video or photo of you planking (or lying down, no pressure) in support of ME research, benefiting OMF's current campaign. Details: https://t.co/0YYjWiagWU

#MECFS #Plank4ME #MEFMSocietyofBC

[ME|FM Society of BC @mefmbc]

New research may explain why exertion hits so hard in ME/CFS. Read more + register for OMF's July 9 Journal Club: https://t.co/tLGm0OwIRp

https://t.co/JqJZlMA8de

[ME|FM Society of BC @mefmbc]

You shouldn't have to explain yourself to get through an airport. The Hidden Disabilities Sunflower Program lets travellers with ME and other invisible illnesses quietly signal they may need extra time. Air Canada was first in North America to adopt it. https://t.co/bkZp4z1xQy

[ME|FM Society of BC @mefmbc]

Connection isn't optional for people living with ME and Long COVID. It's a lifeline.

New blog post → You Are Not Alone: Isolation, Seniors, and the Power of Peer Support

Read it + hear directly from your community, in their own words → https://t.co/nNoqi1lGwj

[ME|FM Society of BC @mefmbc]

For people already facing isolation as they age, ME and Long COVID can cut off what's left: community, connection, the sense that someone understands.

Find a support group → https://t.co/IIx9RWNPlw

[ME|FM Society of BC @mefmbc]

We didn't ask about peer support groups in our 2025 community survey. Seniors told us anyway.

"The total lack of ability to meet social needs and reduce loneliness"

Their words, and others, are in our new blog post. https://t.co/nNoqi1lGwj

[ME|FM Society of BC @mefmbc]

Thanks to your support and triple-matching funds from a generous sponsor, just over $11,000 was raised for ME/CFS advocacy. Prize winners have been drawn — congratulations! Thank you to all who donated, and to @OperaMariposa for their amazing partnership. 💜

[ME|FM Society of BC @mefmbc]

1,258 patients & caregivers shaped OMF Canada's ME research priorities.

🔬 Top findings: post-exertional worsening, cognitive dysfunction, neuroinflammation & more.

Hear what's next at their free webinar June 22, 10 a.m. PT : https://t.co/RWURxwzGSO

@OpenmedfCanada