“People with ME have sadly had to endure far too much disbelief and delay.”
Clip of Dr Hans Kluge, WHO Regional Director for Europe, opening the @Invest_In_ME 2026 International ME Conference #IIMEC18.
Dr Nigel Speight explains why the term ME carries more weight than “Chronic Fatigue Syndrome” and how it would be like renaming Alzheimer’s “Chronic Forgetfulness Syndrome”.
He also describes how a boy’s CFS diagnosis was weakened, leaving the family open to prosecution.
It's beyond time we stop saying M.E is debilitating. What it is is disabling and life threatening. Maybe those words from the likes of healthcare professionals would alter perceptions and opinions?
BBC Morning Live covered the new £4.75m UK government funded #MEcfs DNA study yesterday, which will sequence 6,000 samples as part of the wider DecodeME project.
Unfortunately @DrOscarDuke said Chronic Fatigue Syndrome is “probably the best way to describe” the illness.
Alexa show me a doctor who has not the slightest clue of ME.
Fatigue isn't actually the defining symptom of ME. Which is why conflating it with chronic fatigue is dangerous and wrong.
Caroline Kingdon speaking about functional impairment and mortality in #MECFS
Biobank research has shown people with ME/CFS to be more functionally impaired than people with MS. And between 2001–2016, ME/CFS was mentioned on 88 death certificates in England and Wales.
A really important letter.
It is beyond high time that the unscientific minimising and dismissal of #MECFS#LongCovid and other related illnesses stopped.
@rcpsych please do not platform bad faith actors whom the community does not trust.
That should tell you everything.
The world's first genomic study into ME, or Myalgic Encephalomyelitis, has been announced.
Researchers are hoping that by building a genetic map of the illness, it will help pave the way for a future diagnostic test and even treatments.
But charities have warned that there is more to do and this must only be the start.
ME/CFS is a seriously disabling condition impacting at least 67 million people.
Medical education is lacking in most countries.
Patients are denied the care they deserve.
Consequences are significant.
Share your story and the World ME Alliance's Medical Education Hub #EducateME
Today is #MEAwarenessDay
ME/CFS is often described as neglected and under-researched. That ignores the true history. George Monbiot and Carol Monaghan have described it as one of the greatest medical scandals of the 21st century. They’re right.
“So what you’re really telling us is that everything we’ve been taught in our training as nurses is wrong for this condition.”
Dr Nigel Speight describing a nurse’s reaction after he explained how to care for a patient with severe #MECFS.
For ten years, I've been pushing back against problematic research suggesting that ME, ME/CFS, Long COVID and related illnesses are psyhosomatic, "functional," etc. I'm continuing the project through December. If you'd like to help out: https://t.co/Ad1zvdxXd4
@SkySportsPL I'll believe it when FSG give Slot a contract extension - he's only got one year left. I wouldn't be surprised if he's already mutually agreed to leave at the end season.
@AnythingLFC_@JacobsBen Slot, Hughes, Edwards, Ward & Marques all have one season left on their contracts after this, so are serving their redundant notice, particularly the latter 3. That doesn't sound like a long-term rebuild.
@WilsonCoxLFC I'm hearing reports that LFC are no longer discussing transfers due to the hierarchy having only one season left on their contracts after next season, including Slot. There are reports from Saudi that Hughes is already transitioning his own staff to Al Hilal.