MJD Foundation

Working in partnership with Aboriginal Australians, their families and communities living with Machado-Joseph Disease to provide comprehensive supports

[MJD Foundation @MJDFoundation]

We're excited to announce dates for the 2025 MJD International Research Conference. We look forward to seeing you in Darwin, Australia!
Further details on conference registration and Travel Scholarship applications to come soon. #mjdinternationalresearchconference2025

[MJD Foundation @MJDFoundation]

In this article from the @apaphysio, researchers (including @MJDFoundation's Julie Wunungmurra, Libby Massey and Ali Grootendorst) share about why co-design is important, and how to get the most out of it:
https://t.co/BpoWPT3Bi1
#machadojosephdisease #MJDfoundation

[NDIS Review @NdisReview]

The #NDIS has not been rolled out properly in places like the Barkly Region of the #NT, and it has failed to reach its potential. Bruce Bonyhady Review co-chair

Hear more from the #NDISReview consultations in remote and First Nation’s communities.

https://t.co/oKlxxcLIzS

[Ataxia Global Initiative @ataxia_global]

🌎Register for Ataxia Global Conference 2023!

online, 15-16 November 2023

https://t.co/JCesqXmz3V

@NAF_Ataxia @AtaxiaUK @CureFA_org @Euroataxia @AtaxiaCentreUCL @Ataxia_and_Me @eurordis @ionispharma @IXICOnews @MJDFoundation @AtaxiasARG @biogen @AtaxiaIndia @SCAsource

[Ataxia Global Initiative @ataxia_global]

📢Save the date for ICAR 2024:

12-15 November 2024, London

Please RT!

@Euroataxia @AtaxiaCentreUCL @Ataxia_and_Me @AtaxiaFighting @ionispharma @IXICOnews @MJDFoundation @AtaxiasARG @ataxiecanada @AtaxiaIndia @hefaassociation @mdsieditor @movedisorder @iansecretary

[MJD Foundation @MJDFoundation]

We’re recruiting for our new CEO. If this is you, check out our full Job Pack here.
https://t.co/f8xBac5nnx

[La Trobe University @latrobe]

Congratulations to @DLaGrappeRN who has been awarded a @FulbrightPrgrm Public Policy Fellowship!

Serving in Vietnam, she will explore how gender-based violence is measured and the role of nurses and Maternal and Child Health services as first responders. https://t.co/BDLuMynFqp

[MJD Foundation @MJDFoundation]

We’ve been contacted by a family living with MJD (SCA3) in India who are desperate for support. Is there a support organisation we can refer them to?
@AtaxiaIndia
@mdsieditor

[MJD Foundation @MJDFoundation]

Save the date! International MJD Conference, May 2025. Darwin, Australia
@ataxia_global
@NAF_Ataxia
@AtaxiaUK @Euroataxia @AtaxiaCentreUCL @Ataxia_and_Me @CPathInstitute @eurordis @AtaxiaFighting @AtaxiasARG @ataxiecanada @AtaxiaIndia @cacna1a @hefaassociation @mdsieditor

[Neurological Alliance Australia @NeuroAllianceAu]

NAA welcomes the interim report of the inquiry into the Culture and Capability of the #NDIA. The recommendations address much needed improvements to the #NDIS for people with neurological and neuromuscular conditions https://t.co/10R4Zacy14

[Rebecca Amery @RebeccaAmery]

You might also be interested in our scoping review about developing AAC systems in languages other than English #AAC #accessforall #SLPeeps
https://t.co/phG9zGO1WK

[Rebecca Amery @RebeccaAmery]

So delighted to be able to share some core findings from our collaborative intercultural participatory action research developing AAC systems in Yolŋu languages for Yolŋu living with MJD #AAC #accessforall #SLPeeps
https://t.co/CObgoJlRQg

[MJD Foundation @MJDFoundation]

At Macquarie University with a cheque for $12,000 presented to Dr Angela Laird’s @LairdNeuroLab
Funds raised by the wonderful Bec Lyons. We also got to hear the latest from the inspiring research of Dr Laird’s team, using zebra fish and mice to find a treatment for MJD.

[MJD Foundation @MJDFoundation]

I just uploaded “No Shame, No Blame, Just Hope” to #Vimeo: https://t.co/yAzadRKXgk

[Tom McIlroy @TomMcIlroy]

Australian paralympian and disability advocate Kurt Fearnley is the new chairman of the National Disability Insurance Agency, Bill Shorten has announced.

Rebecca Falkingham is the new chief executive and Graeme Innes and Ms Maryanne Diamond join the board.

[MJD Foundation @MJDFoundation]

I just uploaded “Bowel function” to #Vimeo: https://t.co/78b4gMQuOs

[MJD Foundation @MJDFoundation]

I just uploaded “Mobility progression.mp4” to #Vimeo: https://t.co/1ndRYqWCAT

[MJD Foundation @MJDFoundation]

I just uploaded “MJD How to use this resource.mp4” to #Vimeo: https://t.co/lRSqafnhhV

[MJD Foundation @MJDFoundation]

I just uploaded “MJD - Vision” to #Vimeo: https://t.co/chqrLDgUbC

[MJD Foundation @MJDFoundation]

I just uploaded “Respecting Gender - Vicky” to #Vimeo: https://t.co/asPZVwAbbL