MLDA

Malaysia Lysosomal Diseases Association is non-for-profit patient support organization dedicated to improve the lives patients afflicted with Lysosomal Diseases

[MLDA @MLDA2011]

Good morning All! Have you register for the IJM Land Half Marathon 2019? RM5 from every registration will be channeled towards two charities, namely the Malaysia... https://t.co/kzir2FhN6G

[MLDA @MLDA2011]

Hello everyone!

Here's the new collection of HOPEs.

As we are going to Ride With Hope at Paris-Brest-Paris Randonneur, we hope to get everyone support in raising funds and also creating awareness for rare... https://t.co/VPioBBHZUC

[MLDA @MLDA2011]

Yesterday was an exciting day for Hopes! From Audax BRM 300kM by 邱繼学， Jacky and Yuen at Teluk Intan to Faye at Sekinchan then challenging Perez mountain climbing by Ir Lee Yee Seng. Thank you so much for... https://t.co/navESElvqU

[MLDA @MLDA2011]

Last weekend is the 12th Janamanjung Fellowshipride 2019​ in Teluk Batik, Manjung, Perak. Hope enjoy the 121kM ride despite 3 hours riding in the rain. Sharing with you his story via:

https://t.co/szAsNtogIc

Adopt a Hope today at RM 150 via... https://t.co/szAsNtogIc

[MLDA @MLDA2011]

https://t.co/so98Mp5P0Z https://t.co/6vQJ5VVzLE

[MLDA @MLDA2011]

Thanks to the organizer and crew of HKL City Run 2019, sponsors, donors(The Budimas Charitable Foundation and others), runners and those who adopt Hope! We are very thankful and happy to meet up with other NGO... https://t.co/gRg4UZUsy3

[MLDA @MLDA2011]

Syabas dan tahniah diucapkan kpd Pengarah Hospital Besar Kuala Lumpur Dr Heric Corray dalam menganjurkan HKL City RUN 2019 pada hari ini, terima kasih juga diucapkan kepada The Budimas Charitable Foundation... https://t.co/1ZwRGQcCok

[MLDA @MLDA2011]

We are here with new 'HOPE'!! Meet us today from 6am until 2pm. — at HKL City RUN 2019 https://t.co/hf2S14uLkP

[MLDA @MLDA2011]

A few days ago we lost one of our #PompeWarrior...

Baby Ariq Ulwan has been diagnosed with Pompe disease at the early age of 3 months. However... https://t.co/YWAra94vQy

[MLDA @MLDA2011]

It's been a great pleasure last night to share on Ride with HOPE campaign with Audax Randonneurs Malaysia riders and also the invited guest Jeff and Carmela from Singapore and Philippines respectively.... https://t.co/RfLhw7dHtO

[MLDA @MLDA2011]

Good morning, sharing today news at page 2 Sinchew Daily https://t.co/lH3CrotFCR, pls share to adopt a Hope in supporting Ride with Hope campaign, We hope more people will support Ride... https://t.co/lH3CrotFCR

[MLDA @MLDA2011]

Good morning, sharing today news at page 2 Sinchew Daily https://t.co/lH3CrotFCR, pls share to adopt a Hope in supporting Ride with Hope campaign, We hope more people will support Ride with Hope campaign by adopting a... https://t.co/fVYGdKaVyD💕🙏

[MLDA @MLDA2011]

Today is our AGM. By "gotong royong" (teamwork) we finish 48 Hopes in 1 hour.
We hope more people will support Ride with Hope campaign by adopting a Hope for RM 150 via https://t.co/fVYGdKaVyD💕🙏.

[MLDA @MLDA2011]

Today Hope went for BRM 300 kM recee Teluk Intan - Sungkai - Kampar - Teluk Intan with Faye, Wan Yin and Ken Ong.
We wish them to have a safe ride 🙏💕

I am not alone 🚴‍♂️🚴‍♀️🚴‍♀️H🔸O🔸P🔸E

211kms

#audaxrandonneursmalaysia
#audaxrandonneurs
#ridewithhope
#mlda

[MLDA @MLDA2011]

Check out our latest video for PBP Campaign: Ride with HOPE on youtube! And don't forget to subscribe for more videos. The president, Ir Lee Yee Seng and one of his friend,... https://t.co/A3EzH94KSv

[MLDA @MLDA2011]

Watch NOW at #BernamaNews #The Nation. Ir Lee Yee Seng (President of MLDA) and Siva SK (A father of Pompe children) talking about #Pompe disease.

#MoveonPompe
#InternationalPompeDay
#PompeWarrior https://t.co/hoTp85dTh6

[MLDA @MLDA2011]

Thank you #RTM Tv1 for the media exposure on the news provided the community with a nice introduction to our association and hope. We hope more people will offer hands to support and help our family members.

#showyoucare
#mldaonnews
#LSDonnews https://t.co/tsNLF9EU8d

[MLDA @MLDA2011]

A Pompe's father journey (Ir Lee Yee Seng):

Today is International Pompe Disease Day, this is the day to remember people with this unique disease and strive to live in all the world in... https://t.co/WkKcVKu15z

[MLDA @MLDA2011]

Let's share your photos or videos using hashtag #GreaterThanPompe!
A campaign by Sanofi Genzyme. https://t.co/r72SnN1XDO

[MLDA @MLDA2011]

Today is International Pompe Day. Two fathers with Pompe disease children will talk about their experiences and challenges in raising children's with Pompe disease.

As per in our record... https://t.co/7rhIlZej99