MNDAChiltern

Chiltern branch of the Motor Neurone Disease Association. Supporting people living with MND locally

[MNDAChiltern @MNDA_Chiltern]

A huge thank you to @HarewoodGolf who chose us as their charity of the year and have raised a massive £18,500 for us through a number of fundraising events and challenges. The money you have raised will provide invaluable support for people living locally with MND.

[MNDAChiltern @MNDA_Chiltern]

Thank you to Sue Pomeroy, Ladies’ Captain of Princes Risborough Golf Club, who completed a tandem skydive for us and raised over £1850 for us.

[MNDAChiltern @MNDA_Chiltern]

1 week until our open gardens event on Fri 14 June at the award winning Bledlow Manor near Princes Risborough (2-5pm). The weather for the afternoon is looking dry and mild. Tickets can be purchased on the day (£9pp) or in advance (£7.50). Tickets: https://t.co/r5gQpu0RjY

[MNDAChiltern @MNDA_Chiltern]

@JohnAda10163823 So sorry for your loss. Sending love from our branch xx

[MNDAChiltern @MNDA_Chiltern]

Who has seen the advert on TV yet? Do you think it captures the experience of living with and caring for someone with MND well?

[MND Association @mndassoc]

Motor neurone disease (#MND) takes everything, but the MND Association is here so no one faces it alone.

Show your support here: https://t.co/VM3X4j857V

#Corrie

[MNDAChiltern @MNDA_Chiltern]

Could you urge your local council to adopt the Charter to help ensure local people with MND get the support they need #ChampionTheCharter

[MND Association @mndassoc]

Join the #ChampionTheCharter campaign urging councils to adopt the MND Charter, making a real difference in the lives of those with MND and their caregivers.

Let's ensure councils understand and meet the needs of our community.

Explore how 𝘺𝘰𝘶 can help below 👇

[MND Association @mndassoc]

Huge thank you to all of our MND Connect Helpline volunteers for the incredible support they offer those living with and affected by #MND.

Contact our helpline via:
📞 0808 802 6262
📧 [email protected]

We're proud members of @HelplinesUK

#HelplinesAwarenessDay24

[MND Association @mndassoc]

You can make a huge difference to the MND community. Find out more below 👇

[MND Association @mndassoc]

Are you interested in sharing your experience of MND to help identify which research should be prioritised? If so, @Lifearc1 would like to hear from you.

Together with @MNDScotland & @MNDoddie5, we're excited to support LifeArc's MND Insights Group!

[MND Association @mndassoc]

Support care grants can make a huge difference, offering essentials like:

• Riser recliner armchair
• Adaptations to property
• Stairlifts
• Washer dryer toilet
• Respite care costs

"I'm now able to sit in the living room with my family, not stay in bed all day" 👨‍👩‍👧‍👧

[MNDAChiltern @MNDA_Chiltern]

One week to go until our open gardens fundraising event at the beautiful Chenies Manor. Home made cake and tea/coffee also available to purchase. Tickets can be bought in advance or on the day (£7pp, no charge for children). https://t.co/Dnxo9d98u9

[MNDAChiltern @MNDA_Chiltern]

We're holding a fundraising event on the 20 Sept at Chenies Manor Gardens. We'd like to run a raffle to help raise even more money. Do you have any raffle suitable prizes you'd be able to donate? If so, we'd be very grateful. Contact us via [email protected]

[MNDAChiltern @MNDA_Chiltern]

Our fabulous fundraiser Nikki is running 60 miles in August to raise funds for our branch. If you'd like to support her great endeavour then you can donate via her JustGiving page:

https://t.co/5k4VX3F1fC

[MNDAChiltern @MNDA_Chiltern]

Join us at Widmer End Village Hall for a fantastic fundraising event including music from The Jigantics (a blend of blues, rock, folk and Americana) and a raffle.

For tickets please contact Barbara Pearman on 07890 445 227/ 01494 711570 or email: [email protected]

[MNDAChiltern @MNDA_Chiltern]

Are you a fan of musical theatre? If so, this event in West Wycombe on Saturday 15 July might be perfect for you. To make things even better it will raise funds for our branch.

[MNDAChiltern @MNDA_Chiltern]

Today is Global MND Awareness Day and we're raising awareness so that we can help raise vital funds to support those with the disease. If you've been affected by the disease, and you feel able to, then share your story to help raise understanding of it #MNDOverMatter #MND

[MND Association @mndassoc]

It's #GlobalMNDAwarenessDay and we’re putting MND Over Matter.

We’re inviting those living with or affected by MND to share their experiences – however openly you wish.

Help others learn and understand more about the realities of #MND. Share your stories using #MNDOverMatter!

[MNDAChiltern @MNDA_Chiltern]

Our next Support Meeting is on Monday 19 June at 2pm at Cedar Barn in Hazlemere. Join us plus others with MND for a chat over a cup of tea and cake. If you need help with transport costs email us [email protected] or call 07716 667582

[MNDAChiltern @MNDA_Chiltern]

We're so proud of our volunteer Carmel who is not only a fabulous AV but also our new branch chair. We couldn't be luckier to have her, and all our other wonderful volunteers, supporting our work.

[MND Association @mndassoc]

Lizzie cared for her husband John, who died of MND in December 2021.

Lizzie, pictured middle below, said: “Carers are kind of caught up in their own little world of coordinating services and support, while trying to limit showing the frustrations of doing so in front of their loved one."

"I honestly don't know what I would have done without our ASC Adele, and our Association Visitor, Carmel. Those two women kept me afloat. Sometimes I just needed someone to act as a bit of a sounding board to validate my thoughts.”

We have lots of support for carers. Visit our Carers Hub for more info 💙 https://t.co/F4rKleODpu

#CarersWeek

[MNDAChiltern @MNDA_Chiltern]

Did you know that as a carer you have a right to a carer's assessment?

[MNDAChiltern @MNDA_Chiltern]

We know how difficult caring for a loved one can be. We're here to support the carers in our area in any way we can. If you are a carer and want to talk to us then email [email protected] or call 07716667582 #CarersWeek2023 #CarersWeek

[MND Association @mndassoc]

Join us in standing up to say "𝐈 𝐂𝐀𝐑𝐄" for #CarersWeek.

It’s so important that unpaid carers, including those caring for someone with MND, are recognised for the huge contribution they make to their families and communities.

Get involved below 🙋 #MND