Christine and Gary Ludwin are fundraising for Motor Neurone Disease Association. They're doing the Run Disney (Dopey) Challenge!
Check out their @JustGiving page and please donate if you can. Thank you! #JustGiving https://t.co/k3xHWc4IxD
Big thanks to the Garden of England Crematorium at Bobbing, near Sittingbourne, for inviting us to their Open Day. Several people took leaflets and asked questions about MND and the Association. Ellie's delicious cupcakes were very popular too!
Great article from @friendsofwisdom about our regular Support Group meetings. They've been described by many as a lifeline and we're delighted to be able to fund them.
Big thanks to @TheShaunWallace for hosting our annual quiz again. A great night as usual, with over £1800 raised to support local people living with MND.
On average, it takes 12 months for vital home adaptations. This is unacceptable, people with #MND don’t have time to wait.
Contact your local councillor and ask them to speed up the DFG process 👇
https://t.co/Mq3VzxY8Rn
Today on Mother's Day, we are remembering all the mother's who we have lost to motor neurone disease.
And we are sending so much support to all the mother's with or affected by MND. We won't rest until there's a cure.
We are sending lots of love. 🧡
We’ve been looking urgently into how we can help improve access to tofersen for people living with SOD1-MND in the UK. Too many are still prevented from accessing this life-extending treatment, and that must change.
Read what we’re doing to help fix this: https://t.co/MnASAQTgzt
This is us, the MND Association. Renewed, united and driven every day to make change happen.
Every day we support people affected by motor neurone disease, campaign for better care and fund ground-breaking research.
Because with MND, every day matters.
@UHSFT Over the last year, the MND Association has been campaigning for people with SOD1 motor neurone disease to have access to tofersen.
Read an update below. https://t.co/G2j93CYucz
The @UKMNDRI is a globally unique initiative focused on translating lab discoveries into treatments for #mnd#als. It’s first flag ship project
https://t.co/Ymt0cAL5W8
Is a unique platform to rapidly screen both novel and repurposed/repositioned drugs for efficacy signals.
We are pleased to hear that councillors on East Riding Council have backed a motion calling for people with MND to have applications for funding and home adaptations sped up.
Read more here 👉https://t.co/SgxTY0pg0m
#MND
Christine and Gary Ludwin are fundraising for Motor Neurone Disease Association. They're doing the Run Disney (Dopey) Challenge!
Check out their @JustGiving page and please donate if you can. Thank you! #JustGiving https://t.co/k3xHWc4IxD
It's our Christmas Bazaar on November 22nd in Rochester. Why not come along and do some Christmas shopping and help raise money for local people living with MND?
If you're you living with motor neurone disease (#MND) and keen to help the MND Association make the biggest impact for you and others with the disease, we want to hear from you.
Your input is vital to the direction we take.
But people with terminal illness will no longer be subject to suicide prevention.
And let’s be in no doubt that the 6 month rule will be extended so it covers people like me. I’ve learned to live with terminal illness but I fear for those newly diagnosed in future.