Mid Kent Branch MNDA

Working to raise awareness and to support those affected by Motor Neurone Disease in the Mid Kent area

[Mid Kent Branch MNDA @MNDMidKent]

Christine and Gary Ludwin are fundraising for Motor Neurone Disease Association. They're doing the Run Disney (Dopey) Challenge!
Check out their @JustGiving page and please donate if you can. Thank you! #JustGiving https://t.co/k3xHWc4IxD

[Mid Kent Branch MNDA @MNDMidKent]

Big thanks to the Garden of England Crematorium at Bobbing, near Sittingbourne, for inviting us to their Open Day. Several people took leaflets and asked questions about MND and the Association. Ellie's delicious cupcakes were very popular too!

[Mid Kent Branch MNDA @MNDMidKent]

Great article from @friendsofwisdom about our regular Support Group meetings. They've been described by many as a lifeline and we're delighted to be able to fund them.

[Mid Kent Branch MNDA @MNDMidKent]

Big thanks to @TheShaunWallace for hosting our annual quiz again. A great night as usual, with over £1800 raised to support local people living with MND.

[MND Campaigns @mndcampaigns]

On average, it takes 12 months for vital home adaptations. This is unacceptable, people with #MND don’t have time to wait.

Contact your local councillor and ask them to speed up the DFG process 👇

https://t.co/Mq3VzxY8Rn

[Mid Kent Branch MNDA @MNDMidKent]

Such sad news 😢

[My Name'5 Doddie Foundation @MNDoddie5]

We're thinking of the Burrow family at this extremely difficult time. Geoff was a tireless MND campaigner and is a huge loss to the community.

[MND Association @mndassoc]

Today on Mother's Day, we are remembering all the mother's who we have lost to motor neurone disease.

And we are sending so much support to all the mother's with or affected by MND. We won't rest until there's a cure.

We are sending lots of love. 🧡

[My Name'5 Doddie Foundation @MNDoddie5]

We’ve been looking urgently into how we can help improve access to tofersen for people living with SOD1-MND in the UK. Too many are still prevented from accessing this life-extending treatment, and that must change.

Read what we’re doing to help fix this: https://t.co/MnASAQTgzt

[MND Association @mndassoc]

This is us, the MND Association. Renewed, united and driven every day to make change happen.

Every day we support people affected by motor neurone disease, campaign for better care and fund ground-breaking research.

Because with MND, every day matters.

[MND Association @mndassoc]

@UHSFT Over the last year, the MND Association has been campaigning for people with SOD1 motor neurone disease to have access to tofersen.

Read an update below. https://t.co/G2j93CYucz

[Lee Millard @onein300]

The @UKMNDRI is a globally unique initiative focused on translating lab discoveries into treatments for #mnd #als. It’s first flag ship project

https://t.co/Ymt0cAL5W8

Is a unique platform to rapidly screen both novel and repurposed/repositioned drugs for efficacy signals.

[Mid Kent Branch MNDA @MNDMidKent]

Great to hear. Disappointingly, some of us are still waiting for replies from our local councillors.

[MND Association @mndassoc]

We are pleased to hear that councillors on East Riding Council have backed a motion calling for people with MND to have applications for funding and home adaptations sped up.

Read more here 👉https://t.co/SgxTY0pg0m

#MND

[Mid Kent Branch MNDA @MNDMidKent]

Only 2 days before Christine and Gary's challenge starts!

[Mid Kent Branch MNDA @MNDMidKent]

Christine and Gary Ludwin are fundraising for Motor Neurone Disease Association. They're doing the Run Disney (Dopey) Challenge!
Check out their @JustGiving page and please donate if you can. Thank you! #JustGiving https://t.co/k3xHWc4IxD

[MNDA East Surrey @mndaeastsurrey]

Pls support @MNDpatients ask to @DHSCgovuk @DHSCmedia @wesstreeting @AshleyDalton_MP to review & change decision to remove "clinically vulnerable patients" from Covid vaccine guidelines. Illogical on both medical & economic grounds! @ClaireCoutinho @_Chris_Coghlan @Rebecca_SPaul

[MNDA East Surrey @mndaeastsurrey]

Huge thanks to Limes Designs, Dorking for their support of people living with #MND and their families in our branch area. @MNDPatients @HelloDorking @DorkingWDRS

[Mid Kent Branch MNDA @MNDMidKent]

Well done Andy!

https://t.co/KKF8ZoXl0F

[MND Association @mndassoc]

We’ve updated our information to cover the current flu and #COVID vaccination programmes.

Read more here 👉 https://t.co/XfjHUek4x8

#MND

[Mid Kent Branch MNDA @MNDMidKent]

It's our Christmas Bazaar on November 22nd in Rochester. Why not come along and do some Christmas shopping and help raise money for local people living with MND?

[MND Association @mndassoc]

If you're you living with motor neurone disease (#MND) and keen to help the MND Association make the biggest impact for you and others with the disease, we want to hear from you.

Your input is vital to the direction we take.

[Mid Kent Branch MNDA @MNDMidKent]

Andy is planning to run 170 miles in aid of our Branch. You can read his story and donate here 👇

https://t.co/qI8rEp9rWM

[Nicola Waters @AberdareNic]

But people with terminal illness will no longer be subject to suicide prevention.

And let’s be in no doubt that the 6 month rule will be extended so it covers people like me. I’ve learned to live with terminal illness but I fear for those newly diagnosed in future.