Mid Kent Branch MNDA

Working to raise awareness and to support those affected by Motor Neurone Disease in the Mid Kent area

[Mid Kent Branch MNDA @MNDMidKent]

It's our Christmas Bazaar in a couple of weeks so why not pop along, say hello, and do some shopping? All proceeds will go to supporting local people living with MND and their families.

[Mid Kent Branch MNDA @MNDMidKent]

Huge thanks to the Garden of England Crematorium for their very generous donation to Branch funds. This will make a massive difference to the work we do to support local people living with MND and their families 🧡.

[MND Association @mndassoc]

As we head into winter, it's worth checking the latest guidance on flu and COVID-19 vaccinations if you're affected by MND.

Find out more. 🔗https://t.co/fRXdVXUsVw

[MND Association @mndassoc]

Today, we attended a National Institute for Health and Care Excellence (NICE) committee appraisal listening to the evidence for making tofersen available on the NHS people with SOD1 MND.

Here, Professor Al-Chalabi, from @KingsCollegeLon gives us a recap of how the meeting went, and we'll keep you updated as things progress.

[MND Association @mndassoc]

Congratulations, Sir Kev. 👏

Fresh off raising a further £1.6 million for MND charities, Sir Kevin Sinfield was officially invested today at Windsor Castle.

[Mid Kent Branch MNDA @MNDMidKent]

@Jaynes__World @cris_hoskin @mndassoc @MndaSouth @DarbyRimmerMND @IMNDA @MNDScotland @MNDoddie5 @LDShospcharity Cris is amazing, and it was great to catch up with her and other volunteers at the recent Leadership Forum in Manchester 🙂.

[MND Campaigns @mndcampaigns]

Together with @NeuroAlliance, we’re calling on the Government to commit to a national plan for neurological conditions by introducing a Modern Service Framework for neurological conditions.

Together, we can improve access to services, reduce emergency admissions, and reduce health complications.

Add your voice and sign the open letter now: https://t.co/CJ96KsQnpV

[MND Association @mndassoc]

£1 MILLION 🤩

Sir Kevin Sinfield’s final 7 in 7 challenge has hit £1,000,000 in money raised for MND charities.

No words…other than thank you. 🧡 This money is so vital in bringing us closer to a world free from MND.

As we head into day 6, you can donate here. 🔗 https://t.co/HHKlbgXZgz

#7IN7 #7IN7GrandFinale

[MND Association @mndassoc]

The Extra Mile: Day 5 🧡📸

🔗https://t.co/rZOQq8SIgb

[Rugby on TNT Sports @rugbyontnt]

What a day for the Burrows family.

Rob Burrows son Jackson Burrow scores the winner for team Burrow 🥹

[Mid Kent Branch MNDA @MNDMidKent]

We'll be manning our tombola stand at Doddington Village Fete tomorrow. If you're in the area, why not pop along?

[MND Association @mndassoc]

Understanding the causes of MND is key to finding treatments. That's why we're investing millions of pounds into research.

A mixture of genetic, environmental and lifestyle factors are thought to contribute to the development of MND. Together these 'risk factors' may contribute to the development of MND, but they may not be enough to cause MND on their own.

You can read more about what we know so far here. 🔗https://t.co/cfP6r2AzvN

[MND Association @mndassoc]

As reported in the Sunday Times, pharmaceutical company Trace Neuroscience has begun an early-stage clinical trial of TRCN-1023, a potential treatment that could benefit the 97% of people with MND who have sporadic (non-inherited) disease.

Our Chief Scientist, Dr Brian Dickie, said:

"Although this is an early-stage trial, it represents an important step in the search for new, effective treatments for the majority of people with MND."

The MND Association is proud to have jointly funded, with the Medical Research Council, the fundamental research that helped identify this new therapeutic target and support its journey from the laboratory to clinical trial.

________________________________
#MND #ALS #MNDAssociation #MNDresearch

[The Good Grief Trust @goodgrieftrust]

#saytheirname 🧡

[Mid Kent Branch MNDA @MNDMidKent]

Big thanks to the Garden of England Crematorium at Bobbing, near Sittingbourne, for inviting us to their Open Day. Several people took leaflets and asked questions about MND and the Association. Ellie's delicious cupcakes were very popular too!

[Mid Kent Branch MNDA @MNDMidKent]

Great article from @friendsofwisdom about our regular Support Group meetings. They've been described by many as a lifeline and we're delighted to be able to fund them.

[Mid Kent Branch MNDA @MNDMidKent]

Big thanks to @TheShaunWallace for hosting our annual quiz again. A great night as usual, with over £1800 raised to support local people living with MND.

[MND Campaigns @mndcampaigns]

On average, it takes 12 months for vital home adaptations. This is unacceptable, people with #MND don’t have time to wait.

Contact your local councillor and ask them to speed up the DFG process 👇

https://t.co/Mq3VzxY8Rn

[Mid Kent Branch MNDA @MNDMidKent]

Such sad news 😢

[My Name'5 Doddie Foundation @MNDoddie5]

We're thinking of the Burrow family at this extremely difficult time. Geoff was a tireless MND campaigner and is a huge loss to the community.

[MND Association @mndassoc]

Today on Mother's Day, we are remembering all the mother's who we have lost to motor neurone disease.

And we are sending so much support to all the mother's with or affected by MND. We won't rest until there's a cure.

We are sending lots of love. 🧡