Minnesota PKU Foundation

Providing resources and advocacy for people with Phenylketonuria in Minnesota.

[Minnesota PKU Foundation @MNPKU]

Skittles and smarties are tied for first place! Vote now -- it's going to be a close race!

[Minnesota PKU Foundation @MNPKU]

Happy Halloween MN PKU community! 🎃 What's your favorite PKU-friendly Halloween treat? Reply with your fave if you don't see it here!

[Minnesota PKU Foundation @MNPKU]

Want an easy way to help PKU research? Support the PKU patient registry! The registry helps describe the PKU population so that researchers can better serve the PKU community. Register here: https://t.co/sCqX1M1at4

[Minnesota PKU Foundation @MNPKU]

Protip: some medical food companies offer assistance to
help patients with medical foods and formula costs! You can find a comprehensive list of companies and organizations at https://t.co/yUJGjK1MZU.
#pkuinthistogether

[Minnesota PKU Foundation @MNPKU]

Happy Halloween MN PKU community! 🎃 What's your favorite PKU-friendly Halloween treat? Reply with your fave if you don't see it here!

[NPKUA @NPKUA_Info]

Teens are attending school and their focus should be on learning, not on their formula. Join Galen for a virtual event for Teens to learn about a formula option that is easy and discreet for your lifestyle. Register now: https://t.co/9S3BweJYiY #pkuinthistogether

[Minnesota PKU Foundation @MNPKU]

ACTION ALERT: Congressional support for the Medical Nutrition Equity
Act has DOUBLED since last year! Let's keep up the momentum -
contact your Members of Congress and ask them to co-sponsor the
MNEA (S.3657/HR.2501) today!
https://t.co/cLY2Y4eUJz

[HCU Network America @HCUAmerica]

Come @HCUAmerica and @howmuchphe August 19th at 7 pm CT for a back-to-school chat for the #lowprotein community. No matter the grade, our panelists will help answer your questions. Click to register & submit your questions ahead for the panelists.

https://t.co/0bZDesLDGs

[Minnesota PKU Foundation @MNPKU]

Back to School: Low Protein Virtual Chat https://t.co/oLONqvKn6V

[Minnesota PKU Foundation @MNPKU]

Did you know that your PKU story can have an impact on educating members of Congress and galvanize their support for the Medical Nutrition Equity Act? Have you shared your PKU story? What are you waiting for? Share your story today at https://t.co/jVUXrD3hTX!

[Minnesota PKU Foundation @MNPKU]

PKU News' COVID CARE program is offering grants to help PKU community members who have been affected by the pandemic. The grant program provides a gift certificate for $150 for low-protein foods, and a How Much Phe subscription. Details can be found at: https://t.co/M9GNMNCWx4

[Minnesota PKU Foundation @MNPKU]

There are two upcoming webinars -- one on Thursday, June 25 at 10:00 am CDT on the Home Phe Monitor, and one on Tuesday, July 9 at 10:00 am CDT on an NPKUA Research Update. Registration information and updates can be found here: https://t.co/6QzeTbXzvW.

[Minnesota PKU Foundation @MNPKU]

The National PKU Alliance conference has been postponed, but they just announced a Virtual PKU Series running June - October 2020 with educational offerings and research updates. More information can be found here: https://t.co/6QzeTbXzvW. #pkuinthistogether

[NPKUA @NPKUA_Info]

CALLING ALL PKU ADVOCATES: Submit your PKU story on the PPMNE website: https://t.co/Qa9LaM58jl. Patient stories play an integral role in educating Members of Congress to support our cause in championing the MNEA. Add your voice to those fighting for medical nutrition coverage!

[Minnesota PKU Foundation @MNPKU]

The @NPKUA_Info is looking for US-based adult volunteers for 2 brand new and exciting programs launching in 2020! Are you a PKU adult or caregiver who would like to pay it forward? Apply to become a mentor/volunteer today: https://t.co/BAyd8s15Ka. Apply by July 15th!

[NPKUA @NPKUA_Info]

BREAKING NEWS: @RepGraceMeng has signed on as co-sponsor of the Medical Nutrition Equity Act. We now have 66 co-sponsors! If you would like to advocate for HR 2501, visit https://t.co/hrQcEcjJm9 to send a message to your Reps urging them to sign on as co-sponsors!

[NPKUA @NPKUA_Info]

REMEMBER to sign up for the National Day of Action to contact your Members of Congress and ask them to co-sponsor this vital legislation. Sign up here - https://t.co/xmb4G5aixw.

[Minnesota PKU Foundation @MNPKU]

Today is #GivingTuesdayNow and @NPKUA_Info has a matching challenge! Help us max out fundraising for this amazing organization.

[NPKUA @NPKUA_Info]

Take the $15,000 Be Well Challenge!
Please donate today - your gift will be matched dollar-for-dollar up to $15,000! Donate today at https://t.co/7QDddGLaIw
#pkuinthistogether

[Minnesota PKU Foundation @MNPKU]

Today!

[PKU News @howmuchphe]

Join @PKUCookforLove tomorrow for a Facebok live Cinco de Mayo #lowpro cooking demo! Ingredients & more on the event listing: https://t.co/irilGFY0Db

[Minnesota PKU Foundation @MNPKU]

ANOTHER SUPPORTER for nutrition equity! Thank you to @BettyMcCollum04 for signing on as a co-sponsor of the Medical Nutrition Equity Act, HR2501. #medicalfoodsnow #PKU

[NPKUA @NPKUA_Info]

Input needed from US Residents! Is COVID-19 affecting your access to medical care for your Inherited Metabolic Disorders (IMDs)? Let us know what you're struggling with & help us learn how we can help. Please take 2 minutes to complete this survey: https://t.co/wyHdrElQXR