MS'ed With The Wrong Girl

exhausted but never tired, a woman living with MS pushes from one activity to another wondering if life will ever be normal. a short documentary about @Jahoofka

[MS'ed With The Wrong Girl @MSedWith]

We couldn't be more proud of @Jahoofka and the courage she has shown in letting us tell the story of her struggles with Multiple Sclerosis.
Please take 20 minutes to learn about this inspiring Edmontonian and feel free to share the @STORYHIVE film around!
https://t.co/0jfmZfFIhv

[Patrycia💡 @Jahoofka]

10 years in the blink of an eye. This will be my first year since being diagnosed not riding in #MSBike

“Someone willing to modify is someone willing to proclaim their own agency. That’s strong as hell.” @RobinNYC

[Patrycia💡 @Jahoofka]

In 2 weeks we are finding out if Baby Shoofaloofka is a boy or girl, but first we want to have some fun! As you can imagine the past few months have been pretty difficult at our house and we haven’t had a chance to do much fundraising.

[Patrycia💡 @Jahoofka]

This was our first year back to in person #MSWalk since 2019 & while it was amazing it was also tough. You might think the stroke was the hardest part, but compared to the empty feeling I have missing Chris & Doug after losing them both this year, the stroke recovery feels easy.

[Patrycia💡 @Jahoofka]

Yesterday marked 3 weeks since my stroke. Currently I am walking, talking (both languages no problem), reading, doing word puzzles, doing laundry, showering, doing dishes, haven’t had any balance issues and no issues with stairs.

[Patrycia💡 @Jahoofka]

May is #MSAwarenessMonth and today I am very excited to share this news! I’m so honoured to have been selected as part of the Accessibility Advisory Committee for the @CityofEdmonton!

[Patrycia💡 @Jahoofka]

Doug, I am all that I am because you took a terrified 24 year old trying to act tough in the face of an incurable chronic illness under your wing & showed her what she could do with the right support & the right attitude. You made me brave enough to inspire others to do the same.

[Patrycia💡 @Jahoofka]

10 years. It’s been 10 years since I looked at that very first MRI of my brain and saw all those white spots. January 19 has always been a day that my life changed, because 31 years ago my amazing brother was born and I am beyond grateful for that every single day.

[Patrycia💡 @Jahoofka]

Today is International Day of Persons with Disabilities and this day often gets me thinking…. How do I measure up?

How disabled is disabled enough to be considered disabled? Huh? Exactly.

[MS'ed With The Wrong Girl @MSedWith]

Today is #BurgersToBeatMS!
Visit any @AWCanada and $2 from every teen burger sold goes to @MSSocietyCanada to support MS research and help improve the lives of those living with MS! You can also donate directly to the MS Society and A&W will match your donation up to $20K!

[MS Canada @MSCanOfficial]

TODAY IS THE DAY & we want to see your epic #BurgersToBeatMS selfies! Don’t be shy, taking a selfie with your favourite @awcanada Teen Burger® means raising awareness for over 90,000 Canadians living with MS. Make sure to include #BurgersToBeatMS & tag us! 🍔📸👍

[MS'ed With The Wrong Girl @MSedWith]

@Jahoofka’s donation page is here: https://t.co/GiJRJwWiEF

[MS'ed With The Wrong Girl @MSedWith]

Today, @rzechowka, @chefpaulshufelt and other riders are riding over 170km from Edmonton to Camrose and back in one day to raise money for MS Research and support!

You can support her today here: https://t.co/rqath6Dntr

Have a great ride everyone!

[MS'ed With The Wrong Girl @MSedWith]

@MSSocietyCanada @mssocietyABNWT
#VirtualMSBike #ThisIsMS #LifeWithMS #multiplesclerosis

[MS'ed With The Wrong Girl @MSedWith]

This Saturday is #MSBike and @Jahoofka and her team are riding from #YEG to Camrose and back in one day (170+kms) to raise money for MS support and research.
Show your support by donating to her MS Bike page at the link below and help to #endMS!
https://t.co/js1LzgfuEm

[Patrycia💡 @Jahoofka]

Ride it! This Saturday July 10 is #MSBike and I’ve convinced a group to ride to Camrose and back with me in one day! #letsride #VirtualMSBike #ThisIsMS #LifeWithMS #endMS #biking #trekbikes #treksilque #projectone #rideit #multiplesclerosis https://t.co/qvnLNE8Jhc

[MS'ed With The Wrong Girl @MSedWith]

Always fundraising and supporting. Love it!

[Patrycia💡 @Jahoofka]

Party in the front, business in the back? Hanging out in one of the stunning @FHLottery dream homes 😍 This year tickets help support @abwomenshealth which is taking the first step to closing gaps in women’s health—a historically underfunded area—with a commitment to research.

[Patrycia💡 @Jahoofka]

Lhermitte's sign is a sudden, brief, sensation like an electric shock that moves down your neck into your spine. The perfect storm. The neck pain may move into your arms and legs and sometimes to your fingers and toes.

[Patrycia💡 @Jahoofka]

No one could see from looking at me that there was anything wrong with me, but I knew, my eye hurt, a lot and I was so afraid. I showed up to an emergency room, dressed up all pretty for what was supposed to be a night out and told the nurses and doctors I am blind in one eye.

[Patrycia💡 @Jahoofka]

Indestructible. I have my annual MRI in a week. I choose to live my life like Mr. Burns. When in reality there are so many things wrong with me the slightest breeze might kill me... I have MS, Hashimoto Thyroid, PCOS and everything that comes with those, like anxiety.

[Patrycia💡 @Jahoofka]

Today is International Day of Persons With Disabilities. I told @chefpaulshufelt that this morning and his response was “in my mind that is not you.” But in reality it is me. I focus so much on my abilities that even I sometimes forget that I have struggles that people don’t see.

[MS'ed With The Wrong Girl @MSedWith]

And her dog is amazing too!! Gruuuu The HamburGruular!

[Patrycia💡 @Jahoofka]

Gru knows exactly what day of the year it is and Root Bear is happy to dig in after a long day of #BurgerstoBeatMS photo shoots. Thank you to everyone who bought a #teenburger and did anything to #MakeMSMatter today 📷: Mama Rzechowka #LifeWithMS #ThisIsMS