Tammy (Mack) Marler

[Tammy (Mack) Marler @MackTammy]

Sad

[Mike Harrington @Shankapotomas]

So, it looks like @US_FDA shot down Nurown. An ALS treatment with real results for patients early in the disease, or with slow progression. Why?!? Why must the treatment help X number of people, when it can change the lives of some now? I want to fucking live!

[Tammy (Mack) Marler @MackTammy]

When your doctor writes ALS is a progressive neurodegenerative in nature with progression over time that is NOT treatable it really makes a person numb.

[Brian Wallach @bsw5020]

My wife looked at me today, paused, and said, “This life with ALS is hard.” She’s right. There is no way to sugarcoat it, this disease is a motherf*cker. Every day you have to retrench, reassess what you can do—stairs, showering, eating, breathing. /1

[Tammy (Mack) Marler @MackTammy]

@MaryB51630191 Definitely the future I thought I would have. ALS sucks

[Tammy (Mack) Marler @MackTammy]

@Shankapotomas

[Tammy (Mack) Marler @MackTammy]

@bsw5020

[Tammy (Mack) Marler @MackTammy]

@alsadvocacy @bsw5020

[Tammy (Mack) Marler @MackTammy]

FDA Approve this please !!

[Shah Minokadeh, M.D. @MinoShah]

38 year old w #ALS recovered strength after #Nurown

“He couldn’t walk a year ago, he walked six miles this past weekend”

Tens of 1000s dead/dying of 100% fatal #ALS denied #Nurown by @FDACBER despite years of UNPRECEDENTED results.

@SteveFDA @HHS_ASH
https://t.co/ucw83CQHJF

[Tammy (Mack) Marler @MackTammy]

I may have ALS and unable to stand on my own two legs but as of 7/22/2020 I can still open the jar of nail polish and paint my own fingernails #ihateALS

[Tammy (Mack) Marler @MackTammy]

@BrianBeatsALS @alsadvocacy Anxiously waiting to hear the pros of the trial and what it’s done for you

[I AM ALS @iamalsorg]

TAKE ACTION: ACT for ALS (HR 7071) will create an infrastructure to fund early access to promising therapies for patients with fast-progressing terminal diseases like ALS. Help make this dream a reality.

Tell your representative to support this bill: https://t.co/0QsYTGCAKd

[Tammy (Mack) Marler @MackTammy]

@Shankapotomas @bsw5020 My kids family friends

[Tammy (Mack) Marler @MackTammy]

Please 🙏

[Tammy (Mack) Marler @MackTammy]

Every senator needs to approve ! Thank you !!

[Martha McSally @MarthaMcSally]

Americans suffering from terminal conditions don't have time to wait for potentially life-saving treatments. I introduced a bill this week to safely accelerate the approval process for drugs that could treat serious and life-threatening illnesses.

[I’m Dying To Tell You Podcast with Lorri Carey @LorrisPodcast]

Please take 2 quick steps to get us closer to ALS treatments and cures.
Step 1.
Sign House Bill here: https://t.co/jT4rhR2ve0
Step 2.
Sign Senate Bill here: https://t.co/X7aRRWeNPe

@iamalsorg @bsw5020 @alsassociation @ALSOhioCnS @ALSANorthernOH @ALSKids4Cure #ENDALS #ALS

[EndALS @FinishALS]

Two bills. Two chances to make absolutely huge impacts in ALS. Let’s get this done!

[Tammy (Mack) Marler @MackTammy]

@pulte Please put money in the research to cure ALS ❤️ I need this cure

[I AM ALS @iamalsorg]

Today, the House and Senate announced bills that will create real pathways to provide faster and broader access to therapies for #ALS.

This movement is working and our congressional leaders are listening, all because of you.

📖👇

https://t.co/EfgTYnwpph

[Tammy (Mack) Marler @MackTammy]

@pulte Happy Birthday Pulte - I see you and it makes me feel good

[Tammy (Mack) Marler @MackTammy]

@pulte Happy Birthday Pulte! I see you and thank you !!