Until Maya’s Rule was invoked—by their own staff.
Suddenly there’s urgency. Suddenly there’s surgery.
But Revie hasn’t changed.
So why did their response?
(2/5
@primarychildren — why hasn’t her transfer been initiated?
Why did it take internal policy failure to act?
Why did she have to suffer this long?
She deserves informed care.
She deserves better.
Help us get her out.
#RevieDeservesBetter
(5/5)
We initiated every escalation—MRIs, seizure inductions, transfer requests.
Not the hospital. Us.
We requested a transfer 2 weeks ago.
Outside hospitals told us:
“No records. No communication. Just her name in the system.”
(4/5)
On May 7, the only plan on the table was a vague VNS with no surgical date and a 3–6 month wait to see if it worked.
That’s not a plan. That’s a delay disguised as care.
(3/5)
Until Maya’s Rule was invoked—by their own staff.
Suddenly there’s urgency. Suddenly there’s surgery.
But Revie hasn’t changed.
So why did their response?
(2/5)
This is Revie. She has drug-resistant epilepsy.
@primarychildren sent her home again and again—while we bagged her on our living room floor.
Her siblings helped save her life.
We begged for help. We asked for a plan.
We were ignored.
(1/5)
#RevieDeservesBetter#MedicalNeglect