Professor of Neurology and Consultant Neurologist at UCL Queen Square Institute of Neurology & National Hospital for Neurology and Neurosurgery, London
Open Access:
🌎Real world data from TRIUMPH study found ⬆️response rates with #galcanezumab vs traditional oral options at 3 months
🧠 Clinical impact: these findings support considering #CGRP-targeted therapies earlier
🔗https://t.co/jI5PuHNG3J
@Manjit_Matharu et al
"Type 1 spinal CSF leaks in patients with SIH are mostly high-flow leaks that take, on average, 1.5 seconds to pass the ventral dural tear. DSM offers high temporal resolution and was ideally suited for detecting these leaks when used as a first-line investigation."
📺 Our trustee Dr Bern Hard featured on TV
BBC Wales News!
Raising awareness of #CSFLeaks and championing the need for better diagnosis and care for patients.
👁️ Watch from 2:00 - 4:23 mins:
👉 https://t.co/ED97zS81zK
Link expires at 6:28 PM GMT on 30/12/25 don’t miss it!
📣 If you've had transvenous embolisation to repair a CSF venous fistula in the 🇬🇧UK🇬🇧
❗️And you would like to help ensure this procedure continues to be available to patients in the UK in future:
👉Please contact us today at [email protected]
It's a condition you may not have heard of - with truly devastating effects.
Learn more about the reality of CSF leaks and why more research and funding is urgently needed.
Watch the new documentary, which launches on 03 December via our YouTube channel. #CSFleak
Open Access:
🧠Persistent postural-perceptual #dizziness (PPPD) and vestibular #migraine (VM) share symptoms—but are they the same disorder?
📖This review explores their overlap, distinctions, & treatment implications
🔗https://t.co/L1SyEPw2lI
David Moreno-Ajona MD, PhD
🧠 Headache Academy Reflections
A clear CSF leak thread ran throughout, culminating in Dr Cheema's brilliant overview of orthostatic headache syndromes.
🗣️ Precise leak site now located in most MRI+ve patients
🗣️ SIH curable in majority of patients
Momentum building! 💙
I have spent decades calling for more minority Muslim representation in the corridors of power but if this is what it looks like, an eagerness to suck up to power and suppress dissent and opposition to genocide, then no thanks.
✨ Amazing day at Headache Academy! ✨
200+ delegates & huge interest in CSF leaks — fantastic to see so many keen to learn
Our new guideline infographic was a hit ⭐️ great to hear it'll be shared in clinics to raise awareness 👁️
🙏 thanks to all who stopped by 💙
#csfleak
“Jewish people in that Manchester synagogue are not responsible for Israeli foreign policy - likewise Muslims going to a mosque are not responsible for what some crazy jihadist might do."
"I 𝘸𝘪𝘴𝘩 we could separate the two things.”
@maitlis | @jonsopel
🧠 Thrilled to be at #HeadacheAcademy - Royal College of Physicians London!
💡 Raising awareness of CSF leaks through patient experience & advocacy
👩⚕️ With neurologists, pain specialists, GPs & more!
💙 Work together to drive progress in CSF leak care! 💙
#csfleak#Neurology
💥 #AAC2025: Bern surprised to be asked to join the Q&A panel to share about her story and the charity
🎤 No script just heart, powerfully raising awareness of SIH and the guideline.
👏 Huge thanks to Bern #standupforleakers 🫶 & to the chair and delegates for the warm welcome 💙
🎥 Bern reflects on key moments from #Hydrocephalus2025
We’re deeply grateful to everyone who contributed to this vital dialogue on CSF leaks, building bridges across disciplines and uniting clinicians, researchers, and patients to improve outcomes for those affected 💙