Marcy Muse

Advocate for equality and kindness. Registered Social Worker/Counselor. hEDS 🦓 Dysautonomia/POTS, MCAS, MITO🦓 Fed up with #UCP. #equality She/Her🌈 ✌️❤️☯️🇨🇦

[Matthew Hodson @Matthew_Hodson]

When I was diagnosed with #HIV 25 years ago I doubted I would live to 50.
Today I turn 56.
The drugs that keep me alive also mean I can’t pass HIV on to sexual partners.
HIV changed. Tell everyone.

[Marcy Muse @Marcysmuse]

@Captaincoby00 Grossest of 🤮

He is a despicable human.

[Marcy Muse @Marcysmuse]

@Danishinaabe Happy Birthday 🎈❤️

[Marcy Muse @Marcysmuse]

@guyfelicella ❤️🙏❤️

[Marcy Muse @Marcysmuse]

@dysclinic @Theholisticpsyc I feel I am able to answer this as was severely parentified from very young age- cptsd happens and hypersensitivity.

Hypersensitivity is not good with dysautonomia, eds and Mcas.

I am convinced some (not all) of my medical conditions are made much worse by this trauma.

[Marcy Muse @Marcysmuse]

@dysclinic @mileswgriffis Thank you for fighting with us. For us. 🙏❤️

[Marcy Muse @Marcysmuse]

@ask_aubry 😬 💔

[Marcy Muse @Marcysmuse]

@AreOhEssEyeEe @Humanlty1o1 Why am I getting your disgusting tweets. Fuck off.

[Marcy Muse @Marcysmuse]

@Jad_Sattar @purplemamabear You chose ❤️. They choose fear. Sad. Heartbreaking 💔

[Marcy Muse @Marcysmuse]

@wecarryon2 I’m livid for you. 😡

[Marcy Muse @Marcysmuse]

@MegoRexx @lori_bauckman @EM_RESUS ❤️🙏🦓

[Marcy Muse @Marcysmuse]

@lori_bauckman @EM_RESUS There are a lot of us on this thread screaming this. I brought my research to gp and said I think I found my answer. 🦓 He and I are both grateful I did the leg work and we both know I know much more about it. We are a team in my care. 🙏

Keep advocating for your daughter. 🙏🦓

[Marcy Muse @Marcysmuse]

❤️🙌🙏

[Sam Ghali, M.D. @EM_RESUS]

Doctors be like: Don’t confuse your Google search with my 4 years of Medical School

Patients be like: Don’t confuse your 4 years of Medical School with my 20 years of living with the fucking disease

[Marcy Muse @Marcysmuse]

@Tinaarchip @EM_RESUS ❤️

[Marcy Muse @Marcysmuse]

@kurt_beckett @drdagly

[Marcy Muse @Marcysmuse]

@According2Luke 😂

[Marcy Muse @Marcysmuse]

@a_h_reaume This is beautiful:) ❤️

My disability love story is the opposite. When I was with my husband- I felt 100X worse than I do now on own. Still have same disabilities but my capacity to handle is so much better on my own:) 🙏❤️

Who you spend your time/energy with matters.

[Marcy Muse @Marcysmuse]

@aaronhoyland @nxtdooractivist 😂❤️

[Marcy Muse @Marcysmuse]

@Deanne54321 😳 I’m so incredibly sorry. Scary. I hope you have a speedy recovery.