Maria Rodríguez Sánchez

Project manager at @ERNEuroBloodNet, the European Reference Network in Rare Hematological Diseases 🩸

[Mar Mañú Pereira @mmanupe]

Reunión anual del equipo de investigación en anemias raras. 5 años desde su creación!. Gracias @VHIR_ @vallhebron @CCBD_VHResearch

[ERN EuroBloodNet @ERNEuroBloodNet]

📢We invite you to contribute to the 2 open
@ERNEuroBloodNet
mappings! We need your collaboration:
1⃣ https://t.co/LNu98nSH2q
2⃣ https://t.co/3KlPFg45UL
#ERNeu #HealthUnion #EU4Health #ShareCareCure #PNH #Thrombosis

[ERN EuroBloodNet @ERNEuroBloodNet]

🔎Discover the June 2023 @ERNEuroBloodNet #newsletter!
🗞️Click on the link below to stay updated⤵️
https://t.co/AhvgH7SesO
#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure

[ERN EuroBloodNet @ERNEuroBloodNet]

📢B. Gulbis represented the @ERNEuroBloodNet during the 4th Annual #WorldSickleCellDay2023 24-Hour Sickle Cell-A-Thon! Working in the fight against sickle cell disease!
More information: https://t.co/Xl2GIiNEWx… #WSCD23 #SickleCellAwareness #sicklecell #WorldSickleCellDay

[ERN EuroBloodNet @ERNEuroBloodNet]

Help @eurordis to develop a Patient Partnership Framework for the #ERNs! People living with a rare disease and healthcare professionals belonging to the ERNs are invited to participate before June 26!
https://t.co/PbZslQzn6Y
#ERNs #ERNeu #HealthUnion #EU4Health #ShareCareCure

[ERN EuroBloodNet @ERNEuroBloodNet]

The @ERNEuroBloodNet meeting at the #EHA2023 is being held right now!! Join us at the session Hall Fantasie! #ERNEu #healthunion #EU4Health #ShareCareCure #ERNs

[ERN EuroBloodNet @ERNEuroBloodNet]

First session of the @ERNEuroBloodNet meeting is “Improving access to diagnosis and treatments”. #ERNeu #HealthUnion #EU4Health #ShareCareCure #ERNs #EHA2023

[PNH Global Alliance @GlobalPnh]

Update from @ERNEuroBloodNet #EHA2023 which has collaborated with us to help patients #access treatment in European countries and those fleeing war in #Ukraine . One way we are working on this important issue.

[ERN EuroBloodNet @ERNEuroBloodNet]

The clinical trial entitled “SATISFY” has been presented to the audience of the #EHA2023 attending at the @ERNEuroBloodNet meeting. #ERNeu #ERNs #ShareCareCure #EU4Health

[European Hematology Association @EHA_Hematology]

#EHA is happy to welcome @ERNEuroBloodNet to #EHA2023 and applauds the ERN's important work for patients with rare and extremely rare hematological diseases.

[ERN EuroBloodNet @ERNEuroBloodNet]

@ERNEuroBloodNet is working for improving the access to treatments for #PNH. M. Piggin from @PNHSupport & @GlobalPnh together with R. Peffault de Latour has presented this interesting talk. Stay tunned to our social media to collaborate with us!
#ERNS #ERNeu #ShareCareCure

[ERN EuroBloodNet @ERNEuroBloodNet]

Clinical diagnostic support system of the healthcare centres for high risk of Thrombotic thrombocytopenic purpura was introduced by F. Payvandi at the @ERNEuroBloodNet meeting. #eha2023 #ERNs #ERNeu #ShareCarecure #EU4Health #TTP

[ERN EuroBloodNet @ERNEuroBloodNet]

📢We invite you to contribute to the 2 open @ERNEuroBloodNet mappings! We need your collaboration:
1. https://t.co/LNu98nSH2q
2. https://t.co/3KlPFg45UL
#ERNeu #HealthUnion #EU4Health #ShareCareCure #PNH #Thrombosis

[ERN EuroBloodNet @ERNEuroBloodNet]

🎉TODAY STARTS THE #EHA2023!!! Do not forget to visit the @ERNEuroBloodNet booth at the collaboration plaza. More details:
https://t.co/GSlzmywa9V
#ERNeu #HealthUnion #EU4Health #ShareCareCure #ERNs

[ERN EuroBloodNet @ERNEuroBloodNet]

The @ERNEuroBloodNet ePAG, @LorisBrunetta came to visit us! You will find us at the Collaboration Plaza. Come to say hi!
#ERNeu #HealthUnion #EU4Health #ShareCareCure #ERNs #EHA2023
https://t.co/GSlzmywa9V

[ERN EuroBloodNet @ERNEuroBloodNet]

2⃣ @ERNEuroBloodNet MAPPINGS HAVE BEEN LAUNCHED THIS WEEK!
1. https://t.co/LNu98nSH2q
2. https://t.co/3KlPFg45UL
We invite you to contribute to the mappings, We need your collaboration!
#ERNeu #HealthUnion #EU4Health #ShareCareCure #PNH #Thrombosis

[Maria Rodríguez Sánchez @Maria_RodriSan]

Do not miss it!!

[ERN EuroBloodNet @ERNEuroBloodNet]

📢Everything is ready for TODAY'S session of
@ERNEuroBloodNet #TopicOnFocus on #AplasticAnemia & #PNH for Patients & their Families program! Do you have the link? Perform your registration to receive it
https://t.co/EXyLS0sOL9
#ERNs #ERNeu #HealthUnion #EU4Health #ShareCareCure

[Maria Rodríguez Sánchez @Maria_RodriSan]

⚠️Help us to assess the management of Venous Thrombosis ans Arterial Thrombosis in Pediatric Patients in Europe!
➡️ Submit your answers before June 30.
#ERNeu #HealthUnion #EU4Health #ShareCareCure

[ERN EuroBloodNet @ERNEuroBloodNet]

🗣️Pediatric Thrombosis is a rare disease.
▶️ Is it time for an @ERNEuroBloodNet working group thrombosis?
▶️If you treat children with thrombosis, contribute to the mapping.
📭 Open until June 30th.
https://t.co/LNu98nSH2q

[ERN EuroBloodNet @ERNEuroBloodNet]

📢TOMORROW at @ERNEuroBloodNet: Next #TopicOnFocus on #AplasticAnemia & #PNH for Patients & their Families webinar session!
Do not miss it: https://t.co/ptCZmMW7EE… #ERNeu #HealthUnion #EU4Health #ShareCareCure

[ERDERA @ERDERA_org]

New free course: "Diagnosing rare diseases" covers research progress, genetic tests, and diagnosis impact over 5 weeks. Expert mentors available May 2 - June 24.
ℹ️ Learn more at: https://t.co/c64iwajlNy
@EJPRareDiseases @fdmaladiesrares