@paulstuart631@bessbbe I'm Karen's sister and I think it's important to say that she had some wonderful friends on the railway who were very supportive. It wasn't all grimness.
@JoeBrownLondon@greatestgather@bessbbe Thanks for posting this. Karen was my sister and we were all immensely proud of her. It's great to see other young women carrying the torch forward!
@hansonzandi It's so important that these conditions are not neglected. They can have a massive impact on individuals and their families.#RareDiseaseDay2024