Mark bedwell AlS

Als warrior

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

Cooperstown HOF @GeorgeHBrett is right.
No American should have to travel to China to get #stemcell treatments because @US_FDA has failed to approve one here.

Since July 3rd, 2025, @FDACBER has had a Citizens' Petition asking it to approve a stem cell therapy called #NurOwn. Response was due over 6 months ago. It contains unprecedented survival data that proves #NurOwnWorks and could give people like Sarah a chance to preserve function.

People who got NuOwn in EAP had:

▪︎ 7.25 yrs of trach free survival vs 2.5 yrs natural history
▪︎ 100% achieved 5 yr survival vs <20% in natural history

All this beats survival data of approved #ALS and cancer therapies. Give @SarahNauser @SlangsOnSports & 32k others a chance to watch decades more @MLB HOF Induction ceremonies. Grant Accelerated Approval of NurOwn.

@SecKennedy said he'd end the war on stem cells. This is your chance to change the future of #ALS. Check out the Citizens Petition at https://t.co/Ti71nRQUwR

Thx @MLBNetwork and #MLBCentral for supporting the ALS community.

@FDACommissioner @FDA_KyleD @SecKennedy
@POTUS @SusieWiles47 @realDonaldTrump

#FightLikeAGirl #MLBCentral #MLBTonight #BaseballTwitter #nurownworks #LouGehrig #LG4day #BaseballisGreat #ENDALS

[Rain Consulting Group @RainConsulting]

Roger Goodell - Commissioner @nflcommish, @NFL, @NFLPlayers, and @NFLPA, @nflnetwork

A landmark JAMA Network Open study found that former NFL players have nearly four times the incidence and mortality of ALS compared with the general U.S. male population.

The NFL has invested millions in understanding brain injury and improving player safety. Today, it has an opportunity to help answer one of the biggest unanswered questions facing the ALS community.

Please establish a $50 million NFL ALS Research Fund to support the confirmatory Phase 3b trial of NurOwn.

This isn’t a request to approve a drug. It’s a request to generate the evidence.

NurOwn has produced clinical and biomarker findings that have given hope to many people with ALS, including reports that some participants experienced functional improvements or stabilization relative to their pre-treatment decline. The FDA has cleared a Phase 3b confirmatory trial designed to determine whether those findings can be confirmed.

Who better than the NFL, a league whose own community has been disproportionately affected by ALS, to help make that trial possible?

The Ice Bucket Challenge has raised awareness however patients want effective treatments.

The NFL can help transform the future of ALS treatment. Making it a treatable disease. NurOwn is the closest treatment to making this happen in 160 years.

That would be a legacy measured not in championships, but in lives.

#ALS #NFL #PlayerSafety #NurOwn #EndALS @iamalsorg @aVoice4ALS @MinoShah @Cylebo @DeionSanders @ShannonSharpe

[AZ Latina ☮️🌊🟦 @aVoice4ALS]

There is HOPE @ChrisJohnson28.
Ask @Titans teammate Craig Stevens how #NurOwn stem cell therapy slowed his younger brother's #ALS. Eric Stevens played FB at CAL & @RamsNFL
then was diagnosed at 29. Follow Eric's story at
@stevens_nation

⬇️FDA testmony:
https://t.co/crFtieqz95

Eric & others in NurOwn Expanded Access have petitioned @US_FDA to listen to his 8 yrs of evidence that people on NurOwn are living over 7 years vs 2.5 years in ALS natural history.

@MayoClinicNeuro Anthony Windebank was a trial investigator and told FDA how #NurOwnWorks.

@michaelstrahan & @NFLPA please tell this story & story of 4x risk in NFL. #NurOwnisHope

@GMA @ABC @ABCWorldNews
@LisaDeBartolo @RonnieLottHOF

#CJ2kIceBucketChallenge #EndALS

[Mark bedwell AlS @Markbedwell11]

https://t.co/Pfo7A8RvwR

[Shah Minokadeh, M.D. @MinoShah]

.@SecKennedy @DrMakaryFDA @RobertKennedyJr @MartyMakary

Regulatory RIGIDITY denies safe/effective #Nurown for 100% fatal #ALS. Elsie died after pleading with the @FDACBER because she was witness to years of UNPRECEDENTED #LivingProof that #NurownWorks

NUROWN CITIZEN'S PETITION NOW OVER 100 DAYS PAST THE DEADLINE

Marty, I wonder if you even think or care about the military service members who will receive the ALS diagnosis because of the IRAN war that @realDonaldTrump started.

1 of every 6 ALS deaths are military veterans

[Mark bedwell AlS @Markbedwell11]

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[Mark bedwell AlS @Markbedwell11]

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[Mark bedwell AlS @Markbedwell11]

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[Mark bedwell AlS @Markbedwell11]

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[Mark bedwell AlS @Markbedwell11]

https://t.co/1ukzbWjKkz. Would everybody share this please and remember I love you all.

[Mark bedwell AlS @Markbedwell11]

https://t.co/1ukzbWjKkz. Would everybody share this please and remember I love you all.

[Mark bedwell AlS @Markbedwell11]

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[Mark bedwell AlS @Markbedwell11]

@bsw5020

[Mark bedwell AlS @Markbedwell11]

Check out Mark Bedwell ALS's video! #TikTok https://t.co/XrcPiBopel

[Mark bedwell AlS @Markbedwell11]

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[Mark bedwell AlS @Markbedwell11]

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[Mark bedwell AlS @Markbedwell11]

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[Mark bedwell AlS @Markbedwell11]

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[Mark bedwell AlS @Markbedwell11]

Check out Mark Bedwell ALS's video! #TikTok https://t.co/h1p0gw3Yf7

[Mark bedwell AlS @Markbedwell11]

@SenMullin please contact Morgan or your scheduler about a key Als matter. I really do need your help.