Maruzza Foundation

[Megan Doherty @drmegandoherty]

Perinatal Pallaitive care is starting in India! Great to see this amazing initiative https://t.co/JQFg0tDEoM @SpandanaRayala @twoworldscancer @CanuckPlace Supported by the Children's Palliative Care Leadership Program!

[RichardHarding @RHardingCSI]

@DEBraybrook Thanks so much to all of our partner sites, children, families, @Tog4ShortLives , our great research team and to @ERC_Research for funding

[Maruzza Foundation @MaruzzaCongress]

Ann Goldman is the Honorary President of the Maruzza Congress. Working as the 1st PPC Consultant at GOSH, she is considered THE pioneer of Children’s Palliative Care. She is an editor of the Oxford Textbook of Palliative Care for Children.
https://t.co/jKzs3CZbxr

[CYP Research in Palliative Care @CYP_CSI]

What should be included in a #PCOM for #children with #LifeLimiting/#LifeThreatening conditions #pedpc? @DrLucyCoombes led a #Delphi survey, #YPAG engagement & item generation meeting to gain consensus & develop initial versions of C-POS:UK. Full article: https://t.co/tHmnQz6Ddh

[Maruzza Foundation @MaruzzaCongress]

Listen to the leading PPC experts who will be at the 6th Maruzza Congress on the theme “Roots and Horizons" this Oct. Ulrika Kreicbergs, RN, PhD, holds the Louis Dundas Chair in Palliative Care for Children and Young People, at GOSH Ist, UCL, in the UK
https://t.co/hwQ9LXfKKh

[Maruzza Foundation @MaruzzaCongress]

Don't miss out!
Presenting authors under the age of 35 years can participate in the Vlček Family Foundation Young Researchers’ Award for Excellence in Paediatric Palliative Care
Visit the Congress website: https://t.co/3MBTJaleKo

[Maruzza Foundation @MaruzzaCongress]

The Maruzza Congress offers the perfect opportunity to share your research with an international audience of healthcare professionals, researchers and leading experts working in the field paediatric palliative care.
Submit your abstract; https://t.co/jczfTh3qvx
#PPC

[CYP Research in Palliative Care @CYP_CSI]

In this letter @RHardingCSI, @WolfePPC & @justinnbaker discuss the methodological challenges to developing valid & useful #PCOMs for #children with #LifeLimting conditions. They highlight the importance of South-North partnerships to share lessons learnt: https://t.co/bPxJm0Bifl

[Maruzza Foundation @MaruzzaCongress]

"Roots and Horizons - Learning From Yesterday, Living Today, Shaping The Future"
The 6th Maruzza International Congress on Paediatric Palliative Care aims to address this theme.
See the scientific programme
https://t.co/felQ3zRyz5
Register now!
https://t.co/aHUwJgG12x

#PPC

[Alex Mancini (Smith)💙 @mancini_smith]

Our Neonatal Nursing Workforce MUST be supported & funded in dedicated roles, ensuring families have equitable access to choices & high quality Palliative & Bereavement Care #COINN24 @NNAUK1 @CNOEngland @louisewlowe @cwpluscharity @NeoPallCare @BAPM_Official @Blisscharity

[Maruzza Foundation @MaruzzaCongress]

To celebrate 25 years of activity, we are publishing a series of interviews. The first, with the former Italian Health Minster, Hon. Livia Turco, retraces the origins of law 38/2010 that guarantees access to PPC for thousands of children. https://t.co/NO3ZfN7t4N

[Maruzza Foundation @MaruzzaCongress]

The outcome of the PalliPed Project mapping the situation of dedicated paediatric palliative care (PPC) services in Italy has been published in the Italian Journal of Pediatrics (IJP). https://t.co/mQa4kCmvs2

[Maruzza Foundation @MaruzzaCongress]

Wishing all our friends, colleagues and supporters a very happy and peaceful Easter

[Canadian Virtual Hospice @VirtualHospice]

https://t.co/wLQ7oAWZ1P is home to Me and My Illness, an activity book developed for #kids aged 6-12 years living with life-limiting illness, to help them with their thoughts, feelings and questions. This resource is available for free download. @AWC_Grief https://t.co/oVHaxGHKD3

[Carla Reigada @Carla_Reigada]

Development of the Parental Experience with Care for Children with Serious Illnesses (PRECIOUS) quality of care measure https://t.co/85UJjphqFW

[Stanford Quality of Life & Ped Palliative Care @StanfordQoLA]

Children with cancer at the end of life in a middle-income country: integrated pediatric palliative care improves outcomes.
#Research #StanfordQoLA🐨

https://t.co/3wmYbqSbGn

[Maruzza Foundation @MaruzzaCongress]

From the Chief Koala in person

[Justin Baker @justinnbaker]

Wooohooooooo!!! #StanfordQoLA 🐨 🔥

[Journal of Palliative Medicine @PalliativeMed_j]

@PalliativeMed_J Scoping Review: How Do Children With Medical Complexity Die? https://t.co/owV6gTqDAT Grace Mei Chan Ng et al #PalliativeCare #pediatrics

[Maruzza Foundation @MaruzzaCongress]

Share your research with an international audience of healthcare professionals, researchers and leading experts working in the field paediatric palliative care.
Abstracts must be submitted by the 2nd of June 2024
https://t.co/5wsWHvDzZ6