For nearly 10 years, former NFL player, broadcaster, and author Tim Green has lived with ALS, navigating a disease that has changed nearly every aspect of his life while continuing to inspire others facing the same diagnosis. https://t.co/WO1WShvSbi
2016 >>> 2026
Same clinic. Same girl. Same hustle.
What I remember from that 2016 video was fighting for my life to hold my phone up to record. Today I’m just thankful yall can’t see up my dress 🫣
Shoutout to @limpbroozkit for encouraging me, always. Happy Friday!
We've resubmitted our BLA to the FDA for our investigational, muscle-targeted treatment for SMA! Our progress reaffirms the promise of myostatin biology as we continue to prioritize scientific advancement & the needs of children & adults living with SMA. https://t.co/sBGmmtvVok
📢 Big news for the SMA community:
The FDA has approved a high-dose SPINRAZA regimen for SMA—another major step forward in care. Developed by @biogen, this milestone builds on decades of MDA-supported research.
Progress keeps moving
🔗 https://t.co/lZKWRgZglo
#SMA#Research
#News: Today, the FDA approved a new dosing regimen option for our spinal muscular atrophy (SMA) therapy. This approval represents an important step toward expanding options for people living with SMA. Learn more: https://t.co/HDJd3NCqgn
#News: At the 2026 #MDAConference, hosted by @MDAorg, we’re presenting new Phase 1b results and details on the Phase 3 clinical development program for an investigational spinal muscular atrophy (SMA) medicine. Read more: https://t.co/nTZ5Uul90r
#MDAConference: Lily Sander, 18, @MDAorg's 2026 National Ambassador, who introduced Allison Moore, founder and CEO of the Hereditary Neuropathy Foundation, and winner of the 2026 MDA Legacy Award for Achievement in Clinical Research.
#RareDisease#CharcotMarieToothDisease