Mary Fiance

VP, PR @MDAorg | #RareDisease, #MuscularDystrophy, #NMD, #ALS, #PR | NYC | Previously @92Y, @jazzdotorg @LincolnCenter #ViewsAreMyOwn

[Mary Fiance @MaryFiance]

Proud to receive this recognition from @marquiswhoswho for my work in #communications 🎉

https://t.co/uGkBzHe8Qf

[Eyewitness News @ABC7NY]

For nearly 10 years, former NFL player, broadcaster, and author Tim Green has lived with ALS, navigating a disease that has changed nearly every aspect of his life while continuing to inspire others facing the same diagnosis. https://t.co/WO1WShvSbi

[Eyewitness News @ABC7NY]

Tim Green reflects on nearly a decade with ALS ahead of Wings Over Wall Street Gala https://t.co/wLAJJXYqaX

[Sunny Brous @sunnystrongals]

2016 >>> 2026

Same clinic. Same girl. Same hustle.

What I remember from that 2016 video was fighting for my life to hold my phone up to record. Today I’m just thankful yall can’t see up my dress 🫣

Shoutout to @limpbroozkit for encouraging me, always. Happy Friday!

[Brooke Eby @limpbroozkit]

Click the link below to donate and support MDA efforts to find treatments
https://t.co/xZCsdgLxHn
#MDAPartner #EndALSwithMDA #EndALS #ALS @MDAorg

[Muscular Dystrophy News Today @mdnewstoday_]

MDA 2026 keynote speaker John Crowley discussed with MD News Today the progress made in neuromuscular disease and the future challenges. https://t.co/M5NjIM6m4W

#musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

[Muscular Dystrophy News Today @mdnewstoday_]

Consuming more dietary protein may benefit people with various types of muscular dystrophy, according to a recent study. https://t.co/h7KGytU1bE

#musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

[Muscular Dystrophy News Today @mdnewstoday_]

PGN-EDODM1, an experimental DM1 therapy from Pepgen, showed biomarker activity and splicing correction in an early clinical trial. https://t.co/lEYcmx5MNm

#musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

[Muscular Dystrophy News Today @mdnewstoday_]

New presentations at MDA 2026 expand the understanding of how Duvyzat may help people with Duchenne muscular dystrophy. https://t.co/iV7FvDOBsG

#musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

[Muscular Dystrophy News Today @mdnewstoday_]

Dyne Therapeutics' Z-basivarsen led to gains in motor function and cognition for myotonic dystrophy type 1, and is entering a Phase 3 trial. https://t.co/fOPxpuvrUu

#musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

[Muscular Dystrophy News Today @mdnewstoday_]

Capricor has reapplied for FDA approval of deramiocel, its therapy for DMD-related heart disease, and expects a decision by August 22. https://t.co/bPJqKL2rGG

#musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

[Muscular Dystrophy News Today @mdnewstoday_]

The evidence for Elevidys is growing, and Sarepta is working to make the DMD treatment widely available, the company's research president said. https://t.co/1PODDtW1zH

#musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

[Muscular Dystrophy News Today @mdnewstoday_]

Dyne Therapeutics is advancing z-rostudirsen toward approval for DMD after data showed increased dystrophin and early functional trends. https://t.co/Z2kCN6N8ut

#musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

[Muscular Dystrophy News Today @mdnewstoday_]

The MDA's annual conference highlighted recent breakthroughs and the outlook for future care in the neuromuscular disease community. https://t.co/520992GKJK

#musculardystrophynews #musculardystrophy #musculardystrophycommunity #livingwithMD

[Scholar Rock @ScholarRock]

We've resubmitted our BLA to the FDA for our investigational, muscle-targeted treatment for SMA! Our progress reaffirms the promise of myostatin biology as we continue to prioritize scientific advancement & the needs of children & adults living with SMA. https://t.co/sBGmmtvVok

[Muscular Dystrophy Association @MDAorg]

📢 Big news for the SMA community:

The FDA has approved a high-dose SPINRAZA regimen for SMA—another major step forward in care. Developed by @biogen, this milestone builds on decades of MDA-supported research.

Progress keeps moving
🔗 https://t.co/lZKWRgZglo

#SMA #Research

[Biogen @biogen]

#News: Today, the FDA approved a new dosing regimen option for our spinal muscular atrophy (SMA) therapy. This approval represents an important step toward expanding options for people living with SMA. Learn more: https://t.co/HDJd3NCqgn

[Biogen @biogen]

#News: At the 2026 #MDAConference, hosted by @MDAorg, we’re presenting new Phase 1b results and details on the Phase 3 clinical development program for an investigational spinal muscular atrophy (SMA) medicine. Read more: https://t.co/nTZ5Uul90r

[Rare Disease Advisor @RareDisease_Adv]

#MDAConference: Sharon Hesterlee, MD, president and CEO of the Muscular Dystrophy Association, opening the @MDAorg’s 2026 Clinical & Scientific Conference in Orlando, FL.

#RareDisease #MuscularDystrophy #MedTwitter

[Rare Disease Advisor @RareDisease_Adv]

#MDAConference: Lily Sander, 18, @MDAorg's 2026 National Ambassador, who introduced Allison Moore, founder and CEO of the Hereditary Neuropathy Foundation, and winner of the 2026 MDA Legacy Award for Achievement in Clinical Research.

#RareDisease #CharcotMarieToothDisease

[Rare Disease Advisor @RareDisease_Adv]

#MDAConference: Łukasz J Sznajder, PhD, an assistant professor at the @unlv, and winner of the 2026 @MDAorg Research Momentum Award

Image & quote taken by Senior Correspondent, @LLuxner.

#RareDisease #MuscularDystrophy