Mary MACK

laminopathies advocate/activist, LMNA DCM, FPLD, EDMD2, progeroid syndromes. End USA price gouging/End💵barriers to transplant. End USA For-Profit healthcare.

[Mary MACK @MaryOCMack]

Publication and presentation roundup — Spring 2026 | UNC School of Nursing “What I Wish I Knew; The Reality of Heart Transplant,” by Sara Mack, et. al ⁦@MGHMedicine⁩ ⁦@mgh_mpec⁩ ⁦@BWHIntCard⁩ https://t.co/sSWZ05Nf6d

[LMNA cardiac @LmnaCardiac]

Let’s Accelerate LMNA Progress—Together! 💪
https://t.co/BiJmoGzmYk momentum: New initiatives, collabs, stronger community.

Seeking: Connections, partners, funding for LMNA heart lives.

🔹 Networks for impact
🔹 Funding to accelerate

Join! DM or visit site❤️

#LMNACardiac

[Mary MACK @MaryOCMack]

https://t.co/NRCtCMbw4w @LMNAcardiac patient interview series.

[Mary MACK @MaryOCMack]

@LMNAcardiac patient interview series https://t.co/NRCtCMbw4w

[Mary MACK @MaryOCMack]

⁦@LmnaCardiac⁩ patient interview series https://t.co/mfpXAlBNvw

[Mary MACK @MaryOCMack]

@LMNA Cardiac patient interview series https://t.co/NRCtCMbw4w

[DCMFoundation @DCM_Foundation]

Dr. Neal Lakdawala will speak "Genetic Dilated Cardiomyopathy: Insights, Research, and 2026 Clinical Trials". He is a cardiologist & cardiovascular genetics specialist. He will discuss genetic DCM and introduce the DCM Share Project. Learn more & register: https://t.co/yxVIKlIGjk

[LMNA cardiac @LmnaCardiac]

Rare Disease Day 💙
We stand with everyone affected by LMNA-related cardiomyopathy.
Rare, but not invisible.

#RareDiseaseDay #LMNAcardiac #RareButNotAlone #LMNA #DCM

[LMNA cardiac @LmnaCardiac]

🌍 International LMNA community: Sponsored walk for LMNA cardiac research.

📅 Reg opens Feb 9, 10:00 CET (very limited).
💙 Limited tickets (€120) + help with paid accommodation for international guests.

📩 Email us to get on the list.
🎥 https://t.co/FPq7WVscq9

#LMNAcardiac

[LMNA cardiac @LmnaCardiac]

🫀 Help us accelerate understanding of LMNA heart disease.

We’ve partnered with @CitizenHealthHQ to empower patients and advance research.

If you’re living with an LMNA gene mutation or LMNA heart disease, join us:
👉 https://t.co/vCce5w5s87

#LMNA #RareDisease #Cardiomyopathy

[Mary MACK @MaryOCMack]

https://t.co/uYnqxC46d0

[LMNA cardiac @LmnaCardiac]

🫀 From Nov 2–3, the LMNA Cardiac community met in Raleigh, NC for our first U.S. in-person patient meeting — two inspiring days of connection, learning & collaboration with patients, experts & BridgeBio at their Gene Therapy Lab💙

[Mary MACK @MaryOCMack]

https://t.co/e87V8OMO0O
@HeartRhythmAdvo @hrs_journal @American_Heart @stopafib

[DCMFoundation @DCM_Foundation]

You can now get genetically RETESTED for free! Our partners at GCAC are collaborating with a genetic testing company to provide FREE testing. Retesting ensures you have the most accurate info, which can be crucial for your care and your family's health: https://t.co/K7lBOcyDIx

[LMNA cardiac @LmnaCardiac]

𝐇𝐞𝐥𝐩 𝐬𝐩𝐫𝐞𝐚𝐝 𝐭𝐡𝐞 𝐰𝐨𝐫𝐝 𝐚𝐛𝐨𝐮𝐭 𝐋𝐌𝐍𝐀 𝐡𝐞𝐚𝐫𝐭 𝐝𝐢𝐬𝐞𝐚𝐬𝐞
📄 Download the flyer
🖨️ Print & hang it during your next hospital visit or 📧 email it to your medical team.
💙 Ask your doctor or clinic if you can post it in their office or waitingroom.

[Lammerding Lab @LammerdingLab]

Please spread the word about this foundation dedicated to dilated cardiomyopathy caused by mutations in the LMNA gene. It helps connect patients and provide them with resources and connections to clinicians and researchers.

[LMNA cardiac @LmnaCardiac]

We’re proud to be featured in this edition of the ERN GUARD-Heart newsletter with https://t.co/BiJmoGzmYk! 💙

Read the full article 👇

#ernguardheart #LMNAcardiac #patientadvocacy #raredisease #cardiology

[LMNA cardiac @LmnaCardiac]

You can now get genetically RETESTED for free! We are, as a GCAC partner, collaborating with a genetic testing company to provide FREE testing.

👉 https://t.co/OQb2ZY71PP

#genetictesting #lmna #dcm #gcac #lmnacardiac #testing

[Susanna @Susanna_gv]

@LammerdingLab 🙏❤️

[Susanna @Susanna_gv]

Pls share this info about #LMNA-DCM. We are born with a genetic mutation in the LMNA gene that causes a causes a rare progressive very serious heart muscle disease. Today there is no cure. @LmnaCardiac working to find a cure and bring us patients and experts together 🙏❤️