Aaliyah'sMastoAngels

[Aaliyah'sMastoAngels @MastoBabii]

Happy rare disease day!!!! Send me a pic of you showing support and wearing blue!!!

[Aaliyah'sMastoAngels @MastoBabii]

Don’t forget to wear blue on rare disease day and tag me!!!!

[Aaliyah'sMastoAngels @MastoBabii]

NIH trip was amazing!!!!

[Aaliyah'sMastoAngels @MastoBabii]

@Pearce1Amanda Aaliyah is 6 (going on 16 lol) and doing great :) were in DC now to see her specialist, but so far so good!!

[Aaliyah'sMastoAngels @MastoBabii]

#NewProfilePic

[Aaliyah'sMastoAngels @MastoBabii]

Been at #NIH since yeaterday. Heart this place :) #mastocytosis updates to come...once I get results back lol

[Aaliyah'sMastoAngels @MastoBabii]

@JessieJaneDuff @skinpact You’re so awesome :) thank you!!!

[Aaliyah'sMastoAngels @MastoBabii]

Spot on Beautiful! http://t.co/c8Tz0bKvAk #Spot on Beautiful!

[Aaliyah'sMastoAngels @MastoBabii]

#CHG #Wearherby truly is the best company to work for. Great work ethic and awesome culture!!!!

[Aaliyah'sMastoAngels @MastoBabii]

@JessieJaneDuff thank you so much :) I try to make sure she always knows how awesome polka dots are!

[Aaliyah'sMastoAngels @MastoBabii]

@NeriumNightDay topical things don't work for her, they will come back as it is in the blood.

[Aaliyah'sMastoAngels @MastoBabii]

@AhmadEid9 https://t.co/GQ1cfyfSga

[Florida Atlantic University @FloridaAtlantic]

Congrats to #FAU first med school #graduates #GoOwls RT @abennettphoto: Class Prez Sarah Gennette

[Aaliyah'sMastoAngels @MastoBabii]

@AhmadEid9

[Aaliyah'sMastoAngels @MastoBabii]

@skinpact I lived your post. My daughter has a rare disease, amongst other symptoms, it gave her polka dots head to toe

[Aaliyah'sMastoAngels @MastoBabii]

Disgusted with #southwestairlines their response to what happened was so disgraceful, smh, no one I know will ever travel with them again

[Aaliyah'sMastoAngels @MastoBabii]

take the 7 day no makeup challenge!! #NoMakeupMarch #MastoBabii #AMA2011 #Mastocytosis #RareAndStrong #SpotOnBeautiful #AaliyahsAngels

[Aaliyah'sMastoAngels @MastoBabii]

@SouthwestAir reference #: 261093929756

[Aaliyah'sMastoAngels @MastoBabii]

@SouthwestAir I appreciate the contact, thank you for that. I am sending you an account of the situation via email and postal mail

[Aaliyah'sMastoAngels @MastoBabii]

@Pearce1Amanda @UkMastocytosis That's amazing!!! Aaliyah is 3 & we thought she has cutaneous, but our last trip to NIH indicated systemic :/