Jenn Heater, Chief Oddity (she/her)

I'm not sick, I'm medically complex. Chronic Migraine Warrior| Director of Resources & Policy @MyChronicBrain I 💜Advocacy

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

Spiffing up my bio, looked for an emoticon to add.This is all I found: 🍴Much like me, no spoons. #spoonies #spooniesunite #invisibleillness

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

@ATTHelp Hey Sarah. I DMed you half an hour ago. Still waiting…

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

I have been given the worst run-around of my life trying to upgrade my internet. @ATTHelp, do better.

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

@ATT I truly can’t believe I posted about this in September and my internet has been on the fritz this long. Help!

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

And so it continues! @ATT doesn’t seem to care that I can’t access the internet. My household is two seniors and one disabled individual and no one will help us fix our internet access. Do better @ATT.
#access #internet #TechSupport #senior #disabled

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

@ATT doesn’t seem to care about its customers. My household has been on the phone combined over 10 hrs. Two seniors and one disabled individual live here and we can’t get internet, or help. Please fix this! #senior #disabled #access #help #internet #technicalsupport #accessdenied

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

@AHDAorg @TheHillEvents @thehill Amazing job!

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

@joannakempner @TheHillEvents You are killing it!

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

@TheHillEvents @thehill @MedStarGUH @joannakempner @headachepolicy @AHDAorg @miles4migraine Thank you all for this important panel. #migraine #migraineeducation

[The Hill Events @TheHillEvents]

Now on @TheHill’s ‘Closing the Women’s Health Gap’: Headliner Interview | Migraine: Gender & Health Lens w/ @joannakempner, Associate Professor – Sociology, @RutgersU; Author, Not Tonight: Migraine and the Politics of Gender and Health. #TheHillHealth https://t.co/yjHq9PRsXE

[The Hill Events @TheHillEvents]

Live on @TheHill’s ‘Closing the Women’s Health Gap’: Panel | Migraine Education & Patient Perspective w/ Lindsay Videnieks (@headachepolicy), Julienne Verdi (@AHDAorg), & Katie Moran (@miles4migraine). Share your opinion, tweet at #TheHillHealth https://t.co/yjHq9PS0Nc

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

@TheHillEvents @thehill @headachepolicy @AHDAorg @miles4migraine @joannakempner as not so invisible of a disease. “You can see it. You have to know where to look”

Yes! This is everything. My family knows when I’m sick because they know what it like for me. And they help me because of this. #migraine #thehillehealth. @TheHillEvents

[The Hill Events @TheHillEvents]

First on @TheHill’s ‘Closing the Women’s Health Gap’ t: Headliner Interview | The Real Cost of Migraine w/ Dr. Jessica Ailani, Clinical Professor – Neurology, @MedStarGUH; Director, MedStar Georgetown Headache Center. Tweet your thoughts at #ThehillHealth https://t.co/yjHq9PRsXE

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

@TheHillEvents @thehill @MedStarGUH @joannakempner @headachepolicy @AHDAorg @miles4migraine And kudos to everyone educating policymakers today at @AHDAorg’s Headache on the Hill!!!

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

@TheHillEvents @thehill @MedStarGUH @joannakempner @headachepolicy @AHDAorg @miles4migraine I suffer from both #chronicmigraine and #trigeminalneuralgia and talking about it is so important!

[Jenn Heater, Chief Oddity (she/her) @Medical_Oddity]

@TheHillEvents @thehill @MedStarGUH @joannakempner @headachepolicy @AHDAorg @miles4migraine Thank you @TheHillEvents for discussing #migraine. We advocates know how important it is to educate and talk about it. It’s more than just a headache, and #headache is nothing to laugh at either. #thehillhealth

[The Hill Events @TheHillEvents]

WATCH LIVE: @TheHill’s ‘Closing the Women’s Health Gap’ is starting! Hear from Dr. Jessica Ailani (@MedStarGUH), @joannakempner, Lindsay Videnieks (@headachepolicy), Julienne Verdi (@AHDAorg), & Katie Moran (@miles4migraine). Tweet us at #TheHillHealth https://t.co/yjHq9PS0Nc

[Shades for Migraine @shades4migraine]

Did you know that #healthcare costs for people with #migraine are about $6,575 higher per year than for people without migraine in the U.S.?

Learn more about migraine: https://t.co/i5iahiRsoi

[U.S. Pain Foundation @US_Pain]

Between 28% and 61% of people experience the transition from acute to chronic pain after injuries or surgeries. But why? Our 2022 KNOWvember campaign explored these factors:
https://t.co/TPBM3y9OAX
#PainAwarenessMonth #PainTrials #AcutePain #ChronicPain

[U.S. Pain Foundation @US_Pain]

Between 28% and 61% of people with acute pain may develop chronic pain. The #A2CPS program seeks to predict why, so that targeted treatments can help prevent acute-to-chronic pain.
Learn more:
https://t.co/3kUwevramN
#PainTrials #PainAwarenessMonth #NIHPainProgress #ChronicPain

[U.S. Pain Foundation @US_Pain]

BREAKING ADVOCACY NEWS! This afternoon, @SenBobCasey, @MarshaBlackburn, @timkaine and @kevincramer introduced legislation to support people living with #chronicpain. Senators, thank you for recognizing the 51.6+ million Americans who live with pain. https://t.co/TOXYojuYKp