MedicsforRareDisease

This account is no longer active, please continue to follow our work on Instagram and Bluesky! @medicsforrare

[MedicsforRareDisease @MedicsForRare]

Please continue to follow our work on Bluesky and Instagram 💙

[MedicsforRareDisease @MedicsForRare]

Today Helen is over at the @RCPCHtweets conference! If you see her make sure you say hello! #RCPCH2025

[Ataxia and Me CIO 1184030 @Ataxia_and_Me]

Be #Ataxia aware at #Swansea #RareDisease Study Day - Saturday 8th March
Unlock the mysteries of rare diseases
booking link:
https://t.co/5KXhhLTvAs
@SwanseaUni / @MedicsForRare #SwanseaRDStudyDay

[MedicsforRareDisease @MedicsForRare]

@DrCallumGardner @CEmWilliams @rarediseaseday @ehlersdanlosuk

[Department of Health and Social Care @DHSCgovuk]

Read the England Rare Diseases Action Plan 2025 https://t.co/JtF4CpE6Qb

[MedicsforRareDisease @MedicsForRare]

@LizTwistMP Thank you Liz for your unwavering support of the Rare Disease Community. We are glad you like your socks! #ShowYourStripes

[The Doctor Magazine @TheDrMagazine]

Dr Daybell is also an ambassador for @MedicsForRare, a charity helping to drive rare disease awareness. Its campaign #ShowYourStripes on @rarediseaseday today encourages medics to wear stripey socks in support.

Read the full interview here: [5/5]
https://t.co/8uYxFaLttO
#RareDiseaseDay2025

[MedicsforRareDisease @MedicsForRare]

Check out our Ambassador and Paralympian legend in this piece by @Seren_Boyd @ParalympicsGB #ShowYourStripes #RareDiseaseDay

[The Doctor Magazine @TheDrMagazine]

Table tennis star @KimDaybell was at the peak of his career and preparing for his third @ParalympicsGB games...

But he shelved his sporting dreams to work full-time as a doctor in Covid and retired from his sport soon after.

Has it all been worth it? @Seren_Boyd asks [1/5]
https://t.co/8uYxFaLttO

[MedicsforRareDisease @MedicsForRare]

@Seren_Boyd @TheDrMagazine @KimDaybell Thank you for using your platform to highlight the challenges face by the rare community but also how important this resilient community is to society and medicine 🤍🖤🤍🖤🤍

[MedicsforRareDisease @MedicsForRare]

@aishseedat @jamilaslegacy You all so wonderful! Thank you! You can send us your photos via this page https://t.co/7F6jT5mP5u

[MedicsforRareDisease @MedicsForRare]

@GallowayAdam @Leeds_Childrens @NIHRresearch @LeedsHospitals @OCTRUctu @STEPS_Charity @LTHTPaedPhysio @NONSTOPPhD Ahh what great photos! We love the mix-n-match job - great work team. You can submit your photos to our gallery here https://t.co/7F6jT5mP5u

[MedicsforRareDisease @MedicsForRare]

@Dr_FelixChan @UoB_Pharmacy So many great stripes here! And so happy to see our socks amongst them! You can submit your photo to our gallery here: https://t.co/7F6jT5mP5u

[MedicsforRareDisease @MedicsForRare]

@pamslater26 Glad to see the Zebra is such a fan of our socks, Pam! Thanks for Showing Your Stripes! You can submit you photo to our gallery here and find out what to do next: https://t.co/7F6jT5mP5u

[MedicsforRareDisease @MedicsForRare]

@GivingVoiceUK @RCSLT Looks like this dog loves stripes nearly as much as we do! We would love to put this photo in our gallery - if you are happy for us to do that, could you consider submitting it here please? Thank you! https://t.co/7F6jT5mP5u

[MedicsforRareDisease @MedicsForRare]

Well done Emma and thank you to @MediaplanetUK #ShowYourStripes #RareDiseaseDay

[MedicsforRareDisease @MedicsForRare]

Dr Emma Huskinson is featured in the @Telegraph today about the Red Flags of Rare Disease study. While innovation in diagnostics and treatment march on healthcare professional training has been left behind. HCPs need to know when and how to suspect undiagnosed rare conditions

[MedicsforRareDisease @MedicsForRare]

@genomicsedu @rarediseaseday This is brilliant - so many lovely stripes! 🦓🦓 You can submit your photo to our gallery here: https://t.co/7F6jT5mP5u

[MedicsforRareDisease @MedicsForRare]

@Ataxia_and_Me Thanks for joining us 🦓🦓🦓

[MedicsforRareDisease @MedicsForRare]

@cj_chapha It's never too early!!🦓🦓🦓

[MedicsforRareDisease @MedicsForRare]

@Seren_Boyd @TheDrMagazine @UHSFT We're so glad we've been able to work with you Seren! Thanks for Showing Your Stripes!! You can submit your photo to our gallery here: https://t.co/7F6jT5mP5u