Megan

Post Covid vaccine long hauler, now a chronic illness warrior💪

[Megan @MegJC28]

This is a thread...🧵🧵
For the last 19 months I have used twitter to vent on my darkest days whilst suffering from my Astrazeneca vaccine injury, my last tweet was just another vent, and I did not expect it to get the response It has.

[Megan @MegJC28]

Only took 5 years to get a diagnosis of suspected Small fibre neuropathy. Having more in depth tests to check for other neurological conditions and autoimmune diseases. All it takes is one good doctor to actually LISTEN. long time fucking coming. #vaccineinjuries

[Megan @MegJC28]

I am tired, life is tiring.

[Megan @MegJC28]

Is it normal to randomly cry when brushing your teeth when you're grieving? asking for a friend😂 #griefsucks

[Megan @MegJC28]

Well, I haven't posted in a while, but for the record, I still feel like crap, I am dealing with MCAS, POTS, delayed gastric emptying, SIBO, HEDS, Leaky gut, nutritional deficiencies, the list is endless and the 'help' is basically zero.

[Megan @MegJC28]

Lastnight I noticed an enlarged lymph node in my neck, this morning I’ve woken up with a sore chest and a runny nose, lurgy incoming I reckon, FUCK.

[Megan @MegJC28]

@iAmericatoo @mrG00777 That would be great, thanks!

[Megan @MegJC28]

Zinc carnosine is making me sleep so good, but I feel really groggy when I wake up and I think it’s because it’s giving me crazy dreams

[Megan @MegJC28]

If I could eat pancakes today I’d probably have one with lemon and sugar and one with blueberries and maple syrup. I hate MCAS so much 😞

[Megan @MegJC28]

@mrG00777 Aah okay! Yes they are 😊

[Megan @MegJC28]

Chronic illness has also changed me for the better in that I am more positive now, I can advocate for myself and my family when it comes to medical stuff and I no longer waste my now valuable time on people who don’t deserve it!

[Megan @MegJC28]

@mrG00777 I tried magnesium a few weeks ago but I think I have gastritis at the moment and it made it more sore which is a shame, glad it helps you!

[Megan @MegJC28]

I saw a new physio this afternoon,what a gent,stressed about my fatigue and nutritional deficiencies,but bottom line is my shoulder is fucked just from repetitive movement so he’s given me some really basic gentle stuff to do, which I appreciate.He also is into Lego as much as me

[Megan @MegJC28]

@angryhacademic Sending love Harriet, hope they’re actually helpful this time!! X

[Megan @MegJC28]

@VWhealer My MCAS is not controlled enough for this kind of stuff right now

[Megan @MegJC28]

If there was a place I could go to get treatment/ fixed for months/ a couple of years I would totally do it if it meant I could live the rest of my life normally

[Megan @MegJC28]

Had to get my ass up at stupid o clock this morning to travel to an appointment that I thought would be a waste of time but he was actually awesome!! He knew about mcas, dysbiosis and sibo. He said the nerve endings in my gut are mis-firing. Nice to speak to someone knowledgeable

[Megan @MegJC28]

When you finally find the energy to see your nephew bear 🥰❤️

[Megan @MegJC28]

One of the most annoying things about brain fog is that I loose things all the time

[Megan @MegJC28]

@angryhacademic 🫂❤️

[Megan @MegJC28]

Mentally struggling right now, feel so overwhelmed with everything, one minute I feel like I’ve figured out a plan to try to heal,next minute it goes to shit because my body is so reactive. The vaccine injury shit is not for the weak 😭