From Cheryl: "Chester is our 8 yr old son, born with spastic quadriplegic cerebral palsy. Due to his condition he is unable to eat by mouth and at 10 months old, had surgery to insert a g-tube. He was failing to thrive and was not able to eat enough by month to grow (continued)
The change in Chester's health has been drastic. I cannot explain what a relief it is to have such an extreme reduction in the movement disorder. He still has periods where he has very mild episodes, but they are easily managed and are very mild.
“…My family is extremely grateful to the Mica Hammond Fund and its donors for their aid and for their role in spreading awareness of rare and undiagnosed diseases."
Claire on her brother: "My youngest brother has a rare neurodevelopmental genetic disorder of the DHDDS gene. This disorder is one of countless rare genetic conditions without a cure or approved treatment, so symptoms are treated individually. My brother experiences (continued…)
“…student. My goal is to help children with disabilities find their voice in the world and continue to fight for awareness and more equitable opportunities for individuals with disabilities. The Mica Hammond Fund Scholarship will help cover the costs of my education. (…cont’d)
“…Our insurance & Medicaid don't cover...Wanted to give a huge shoutout & thank you to the Mica Hammond Fund for assisting us by providing funding for an amazing blender...Can't wait to see where this journey takes us!"
Kara on her son Teddy: "Teddy has had a G-tube for over 2 years..We've had many struggles on our G-tube journey...We've worked really hard to overcome them...still issues with diet...We spoke to our dietician about a blended diet...Home blends...expose him to different foods...