🄼🄸🄻🄺🄸 🐰

21 | Cosplayer(?) | Bartender | twitch streamer | cat mum

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

Marin's on her way !! #paxaus

[pop jinx ❤️‍🔥🍒 @xPopJinx]

@sadcrib hear me out tho

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

@bemardayot what?

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

Just resting on a window louver

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

@Kazchronos i am

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

@ItsEthero @JustChaoticChey I shouldn't be working because of the low light conditions it isn't good for my eyes. That and alcohol is something I'll have to give up to preserve my eyes including smoking. When I go clubbing I'll need to wear sunglasses. I am going to try be an AIN at least I'm almost a nurse

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

Whoops drunk me told work... 🤷‍♀️
Gotta go see a specialist.. hopefully it's not all that bad.

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

@JustChaoticChey It is when I will no longer be able to work for them. My boss is my friend, the owners however are the ones I'm concerned about. I know she is just trying to be positive for me.

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

@Kazz_Takahashi Oh thank goodness

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

AMN affects less than 1 in 1 million people
The condition isn't well-known and can be hard to diagnose.
45% of people had cases that involved both eyes.

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

Research says I won't go "blind" but the holes kinda prevent a lot of stuff... so it's not great.

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

I will need to leave my bartending as well and eventually nursing. So let's hope for the best.

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

2/2 Thus I need to take vitamins to give my body building blocks to prevent further damage and increasing size of the holes in my macular layer. But whether my body will use those vitamins to prevent is a question... in time I will lose my sight, there is no management/treatment

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

so it looks like early onset of Acute Macular Neuroretinopathy. However, my presentation is minimal vs the journal paper patients. So he didn't want to diagnose. I have holes in my macula layer close to the central vision point. 1/2

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

so I will need to monitor my eyesight but its not looking good, rare eye disease but wasn't given an official diagnosis. But its likely in the future i will lose my eyesight indefinitely

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

@KidwithSmurf Often with eyes it's not treatable if there is significant damage...

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

I'm kinda getting nervous tbh

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

@Fishandcow101 May need to follow up with a retina specialist.

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

Not the doc going "you speak of this like it's normal,"
"Its only been going on for 2 months..."
😂
*level of concern increased*
"I'll have you explain it in more detail"

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

Waiting... Waiting for my eyes to be seen. But first mummmm

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

Apparently my description of my events was, in fact, not normal

[🄼🄸🄻🄺🄸 🐰 @MilK3iss]

So I have an eye test today (GO CHECK YOUR EYES) uh but time will tell if what I'm experiencing is normal or I may need to see a specialist ☺️