The MindKind Study

MindKind's aim is to design a databank that will collect information about emotional health from young people.

[Meg Doerr @MegDoerr]

More here: https://t.co/LraSL8tXkr Many thanks to investigative partners @SageBio @uwglobalmh @HigherHealthSA @WalterSisuluUni @ZingelazZ @OxChildPsych @minafazeloxford @psychiatry_ucam @Tamsin_J_Ford @netshrink @CMHLPIndia & learning partners @mirandarwolpert @wellcometrust

[The MindKind Study @MindkindThe]

We are proud to announce the publication of our first paper on youths' preferences for data governance for sharing. We also compare the acceptability of various models. Check out the paper for more!

[Meg Doerr @MegDoerr]

📣 @MindkindThe in @PLOSONE 📣 What are youth governance preferences for a global mental health databank? Youth are committed to co-producing architectures for more open sharing of mental health data to accelerate/derive benefit from research https://t.co/1tzsifpOnT

[The MindKind Study @MindkindThe]

Check out the Bridging the Gap report to learn about best practices for scaling participatory mental health research.

[Miranda Marcus @RooMarcus]

The Bridging the Gap report is now out! Developed by @Sagebio alongside @MindkindThe, it shares technical, design and governance tools or features needed to scale participatory methods while supporting transparent, reproducible and inclusive science. 🧵 https://t.co/HRz2EXBA7V

[The MindKind Study @MindkindThe]

@DrBFernandes sharing some findings from the study!

[Blossom Fernandes @DrBFernandes]

Sharing our early findings from @MindkindThe Great to discuss how young people wish to share their mental health data @iaymh #iaymh2022

Check out the protocol paper for more details: https://t.co/MUfIr1Xlc1

[The MindKind Study @MindkindThe]

Check out this blog by the spectacular @Shuranjeet about including youth with lived experience as co-researchers. @wellcometrust @Sagebio
https://t.co/vJpthraW8e

[The MindKind Study @MindkindThe]

Also, check out this blog post about our work by the fabulous @MegDoerr. @Sagebio
https://t.co/u0067CWFh4

[The MindKind Study @MindkindThe]

We hope you enjoyed our webinar today. Our full report is now available.

[Miranda Marcus @RooMarcus]

🧵Today @wellcometrust & @sagebio released findings from a cutting edge study that explored how to collect & share mental health data from youth around the world, using a randomised trial of different data stewardship models and deliberative democracies. https://t.co/Ppr7czBITm

[The MindKind Study @MindkindThe]

And HUGE thanks to our partners in research in India: @netshrink @CMHLPIndia; South Africa: @HigherHealthSA @WalterSisuluUni @ZingelazZ; the UK: @OxChildPsych @minafazeloxford @psychiatry_ucam @Tamsin_J_Ford; and the US: @UW @uwalacrity @uwglobalmh

[The MindKind Study @MindkindThe]

Please join us on Sept 6th to hear about the outcomes of the MindKind Study and innovative, youth-informed models for mental health data sharing. https://t.co/g97DrwPPdj @wellcometrust @mirandarwolpert @uwalacrity @uwglobalmh @sagebio @ZingelazZ @OxChildPsych @psychiatry_ucam

[The MindKind Study @MindkindThe]

If you missed our protocol paper, check it out here in advance of our webinar.
https://t.co/hXdG2fbUNA

[The MindKind Study @MindkindThe]

ICYMI: We recently shared some new insights about working with youth to shape mental health research. Collaboration, transparency, representation, safeguarding, reflection are key!

[The MindKind Study @MindkindThe]

and also this post by @laramangravite of @Sagebio https://t.co/ShdWVoITcx

[The MindKind Study @MindkindThe]

ICYMI: Read these blog posts to learn about why we're doing this study. The first is by @RooMarcus https://t.co/IDuAcwg7u0

[Blossom Fernandes @DrBFernandes]

**Calling 16-24 yo's in the UK**

We need you to help us by providing your views of how mental health #data is collected & stored by taking part in a study of a new mental health app & help shape #mentalhealth research at https://t.co/1DYNQOnXOp

Pls RT and share!!