Quick witted artist who’s McGuyvering thru life w/ #longcovid, #cEDS, #MCAS, #TBI, etc. I ♥️ zings of inspiration. I don’t break, I bend mother duckers. 🦓💪🏻
Bc for some of us it’s been falling apart since our birth. Not our first go round with someone else deciding our rights. Now, it’s just affecting the more abled society and they can hear the roars we’ve been screaming from the back for years. #LGBTQ#InvisibleDisabilty#Feminist
By the time summer rolls around, they’ll enter a state known as hyperphagia in which they eat non-stop and can gain up to four pounds in a single day!
Learn more about bears found in parks at: https://t.co/WTzeT9JLfN
@ru12xu@CheyCab Place below us made corn beef and cabbage all day long, with their windows open. That scent’s lodge deep in the memory bank and nose holes with the whole experience! 🤣
@ru12xu@CheyCab Lived right near W 7th and Grand. It was a shit show but very interesting free entertainment the entire night and deep into the next day. Didn’t want to walk the streets for fear of ruining my shoes or loosing my lunch. 🫣🤢
Many people were told by a parent that they were a ��difficult child” when the parent actually meant: “I’m having difficulty parenting and raising you is challenging me.” This would create so much less shame.
Dust of Snow❄
by Robert Frost
The way a crow
Shook down on me
The dust of snow
From a hemlock tree
Has given my heart
A change of mood
And saved some part
Of a day I had rued.
'Snowflake On A Crow's Wing' image by Shawn Bergman
#heirloomgardener
@roxy_mojo Never heard of it. Doesn’t mean we don’t but I’ve not seen it in stores. However, haven’t really been to many stores in two/three years either… would check Byerly’s/Lunds, Whole Foods, Kowalski’s, or Jerry’s.
@Jillj07894385@Carolyn40911932 Don't succumb to social pressures, because if/when you fall into disability like me, those friends will be gone. This is the loneliest journey. I wear my mask with pride now, even if I'm the only one in the room with it.
Please understand that what some people refer to as distant, cold, unapproachable is often someone who got hurt by those closest to them when they needed support. I’m not saying that it’s easy to connect with someone who feels shut off. I’m saying there’s more to the story.
#Longhaulers have a look.
An expression.
Something in the eyes.
I don’t know what. But I see it in selfies etc.
A smile can’t hide it. Make up can’t. It’s there under the surface.
A look that says ‘I’m struggling but I keep going.’
Know what I mean?
#longcovid#mecfs
@teganandsara two other great folk artists with a song about Mondays. 🤯
I know it’s Tuesday but fuck if it isn’t a very Monday feeling Tuesday.
https://t.co/tnasCx9NLJ
@Gnolatinbird1 @ThatEricAlper The fact that Dolly wrote this AND Jolene on the same day will always blow my mind and make me feel like an underachiever.
This!!! We absolutely need the Beighton scale test in schools along with scoliosis test.
#EDSers will have far better lives not spending years trying to get their body back into a safe space, due to unfortunate events occurring, all because their diagnosis was fat too late.
“Earlier diagnoses lead to a future of proactive care, instead of reactive, which benefits the patients greatly. […] Precision medicine has to be the answer.”
- @LynseyChediak at the @Congenica webinar ‘The Real Costs of Rare Disease’ 👏🏼 #RareDisease