Mission MSA

Mission MSA serves the MSA community by offering support, education, research funding, advocacy and awareness.

[Mission MSA @MissionMSA]

Following momentum from our event in 2025, we are so excited to announce the 2027 International MSA Congress is happening in Dallas, TX September 3-5, 2027.

To learn more, visit https://t.co/eCbwXT6qaK

#MSA2027 #InternationalMSACongress #MSACongress #MSA #multiplesystematrophy

[Mission MSA @MissionMSA]

An MSA diagnosis can feel isolating, but no one should face it alone. In honor of her late husband, Stuart, Joy Stein is matching every donation up to $25,000 made to our Support and Education Impact Fund.

Read full story: https://t.co/Bbk0KrzZme
Donate: https://t.co/nG7OJoz14S

[Mission MSA @MissionMSA]

Join Mission MSA and @CurePSP for a thoughtful webinar on choice, dignity, and end-of-life care. Reflections: A Conversation about Choice at End of Life will explore Medical Aid in Dying (MAID) through expert insight and lived experiences.

Learn more: https://t.co/eGrEsPCm48

[Mission MSA @MissionMSA]

Your questions helped shape this new resource for the MSA community! Our Ask the Experts: Medicare, Medicaid & Social Security video is now available, featuring guidance from experts at the Social Security Administration and Patient Advocate Foundation: https://t.co/Oe2Z5CbRfc

[Mission MSA @MissionMSA]

Joe Lindahl recently attended the MSA Trust Symposium, connect with the Trusts’ incredible staff, tour and learn with UCL researchers and clinicians on their MSA work, and engaged with the UCL Brain Bank who shared their operations and cutting edge research in the field.

[Mission MSA @MissionMSA]

Today is #ClinicalTrialsDay! Join us in recognizing the researchers, clinicians, advocates, and community members moving MSA research forward.

Explore clinical trials making a difference for #multiplesystematrophy: https://t.co/DVS6zIYHcs

[Mission MSA @MissionMSA]

Final day to submit your questions! Get expert guidance on Medicare, Medicaid, and Social Security benefits tailored to the #MSA community. Don’t miss your chance to ask the Social Security Administration and Patient Advocate Foundation for help.

Submit: https://t.co/kEvyQ9HIlu

[Mission MSA @MissionMSA]

We’re excited to share a big milestone: MSA Connect now has over 1,000 active users! Since relaunching last August, our community continues to grow through support, resources, and real connection.
Join today: https://t.co/cpgwUxDEVS
Download mobile app: https://t.co/vKinOKvsiy

[Mission MSA @MissionMSA]

Have questions about Medicare, Medicaid, Social Security, or long-term care planning and how they relate to #MSA?

Submit your questions for Mission MSA’s upcoming Ask the Experts opportunity by May 12, 2026: https://t.co/kEvyQ9HIlu

[Mission MSA @MissionMSA]

We’re proud to introduce Mission MSA’s Quarterly Impact Report--a new way to provide a transparent, comprehensive view of the progress made possible by the generosity of our community.

Explore the full report for the first quarter of 2026: https://t.co/Suoem3NoVF

[Mission MSA @MissionMSA]

This #NationalVolunteerAppreciationWeek, we’re celebrating those who make our community stronger every day.

To all who give their time and care, thank you! You create connection, strengthen support, and drive progress for the MSA community.

#multiplesystematrophy #MSA

[Mission MSA @MissionMSA]

A diagnosis of MSA can bring uncertainty--for individuals and care partners alike.

Our Newly Diagnosed Virtual Support Groups offer connection in small groups (8 spots each). Submit an interest form to join or be added to the waitlist: https://t.co/C5MfeK9piV

[Mission MSA @MissionMSA]

Planning ahead isn’t about the worst-case--it’s about clarity and peace of mind.

This #NationalHealthcareDecisionsDay, explore Mission MSA’s new resources to support you and your loved ones: https://t.co/PpDkNmk6TQ

[Mission MSA @MissionMSA]

Explore investigational treatment options for your loved ones or patients living with Multiple System Atrophy (MSA). The TOPAS-MSA Study is enrolling adults with MSA who can swallow and walk at least 10 meters (33 feet), with or without a cane.

https://t.co/pCqYaq8a5N

[LundbeckUS @LundbeckUS]

Mike wrote off his stumbling, waning strength and fine motor issues to age, lack of sleep or a need for more exercise before he was diagnosed with multiple system atrophy (MSA).

MSA is a rare, progressive disease that is frequently misdiagnosed. #MSAAwareness #multiplesystematrophy #MSA #BrainHealth

[Mission MSA @MissionMSA]

Mission MSA announces our 2026 Centers of Excellence--a growing global network advancing care, research, and education for those affected by multiple system atrophy (MSA).

Read the full press release: https://t.co/cRSxb2cokG

@UBneuroscience @HcpbGroup @idibaps

[Mission MSA @MissionMSA]

“His legacy lives on through the love, support, and awareness we continue to build together.”

Kara and her loved ones are just one example of many turning love into action during our Path to a Cure.

There’s still time to get involved: https://t.co/BoRr8QkCGW

[Mission MSA @MissionMSA]

Living with MSA? A Springfield College doctoral student is studying how individuals find meaning and purpose while living with MSA. Participate in a virtual interview and receive a $25 gift card!

Contact: [email protected] | [phone]

[Mission MSA @MissionMSA]

Mission MSA and our incredible volunteers are on Capitol Hill today advocating for the MSA community!

Together, we’re raising awareness and building momentum toward meaningful change.

#MSAAwarenessMonth

[Mission MSA @MissionMSA]

1 day to go!

Our Virtual Path to a Cure begins tomorrow. Join from anywhere to help raise awareness and support research, education, and resources for those affected by #MSA!

There is still time to get involved: https://t.co/BoRr8QkCGW

#MSAAwarenessMonth #PathtoaCure