Our Better End of Life report found that a more coordinated, community-based approach to palliative care can help transform peopleβs end of life experience.
Visit: https://t.co/hLvCRURbS3
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@mariecurieuk So lucky to have palliative care teams there to support but the fact we rely on charities & dwindling public funding to deliver this is worrying.
@mariecurieuk This is really interesting. I can't imagine the levels of guilt that must happen not being able to do all you can for your family when sick.
For anyone that works in palliative care and then had to experience it with a family member what did you do that you think made a difference? Knowing it exists has already been a god send.
@aishamadeit Just recently and heβs 4 in August for a while though he only napped 3 days a week on nursery days but the late bed time was getting ridic
@EmmaBostian Amazing! I found it helped me process so much. New motherhood is a savage. Felt like everything changed and I was never going to catch up with it. I recently found a book that really validated my feelings & experience. Itβs helped me SO much. Itβs by @lucyjones called matresence.
@RoseStokes Saying that I only really felt like I could 'go with the flow' was when I was supported, rested and mentally well. If it ever gets to you too much take that as a sign you need a bit of catch up time with yourself. If you can obvs. Hopefully not projecting too much here haha.
@RoseStokes Totally. It didn't feel trivial at the time though as you want this kid to nap and to sleep right! But now looking back I wish I was a bit more pragmatic. Their sleep needs are so individual and change so frequently. Keeping an open mind to it all is probably the only way.