Living with Myeloma

What is important to people living with myeloma in Europe after the first line of treatment: University of Stirling & @MyelomaEurope

[Living with Myeloma @MyelomaStudy]

our new paper was published today: #Myeloma and #work in three European countries. Free to read/download. Please share!

https://t.co/afJUpitiQf

[Living with Myeloma @MyelomaStudy]

We had a great meeting with @MyelomaEurope yesterday about sharing the findings from this study. Look out for: patient info, briefing papers, policy summaries, presentations and much more from the team soon!

[Living with Myeloma @MyelomaStudy]

First paper from our #Myeloma study was published today: a #SystematicReview of people of working age.

Please read and RT! With @MyelomaEurope

https://t.co/Ld8bXelMHa

[Living with Myeloma @MyelomaStudy]

Good news in Ireland today for people with myeloma https://t.co/kwjy4CWgjQ

[The Irish Times @IrishTimes]

First Irish trial to treat patients with Car-T immunotherapy opens at St James’s Hospital in Dublin https://t.co/LD5pPuVpNn

[Fundacja Carita im. Wiesławy Adamiec @CaritaFundacja]

Tegoroczne zmiany leczenia szpiczaka plazmocytowego zbli��yły Polskę do europejskich standardów 🌏, m. in. zapewnione zostało leczenie podtrzymujące lenalidomidem dzięki pojawieniu się odpowiedników generycznych.
Więcej na:
https://t.co/DuOLUn5AHp
#szpiczak #refundacja

[Fundacja Carita im. Wiesławy Adamiec @CaritaFundacja]

Ze szpiczakiem plazmocytowym można żyć wiele lat. Potrzebne kolejne linie leczenia 💊💊💊

Zapraszamy do lektury artykułu⤵️
https://t.co/wQtiixwg7x
#szpiczak #myeloma #terepie

[Living with Myeloma @MyelomaStudy]

Myeloma Patients Europe report finds huge inequalities in access to myeloma clinical trials in Central and Eastern Europe: https://t.co/rV6FMV0Os5

[Myeloma Patients Europe @MyelomaEurope]

Click on the link to read the full MPE report about the access barriers to myeloma clinical trials in Central Eastern European countries.

https://t.co/5lFKtMj5Ze

[Living with Myeloma @MyelomaStudy]

Happy St Andrews day to everyone who loves Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 Latha fèill Anndrais sona dhuibh 🤍💙

[Myeloma Patients Europe @MyelomaEurope]

According to a study published in @BloodAdvances, caregivers of patients undergoing a stem cell transplant cope with high caregiver burden, psychological distress, and worse quality of life.

Read more about it: https://t.co/DUOwLvHDZW

[Living with Myeloma @MyelomaStudy]

https://t.co/RgavwMG8e9

[Myeloma Patients Europe @MyelomaEurope]

Click on the link and join our official MPE Telegram Channel and stay on top of the latest information on #myeloma, #ALamyloidosis, patient advocacy projects, and programmes developed by MPE

https://t.co/mlLzq5aVgU

[NHS @NHSuk]

Most people feel stressed sometimes and some people can find low levels of stress helpful or even motivating. But if stress is affecting your life, there are things you can try that may help.

Find out more: https://t.co/i6koNSDC7M #StressAwarenessWeek

[University of Stirling @StirUni]

It's Stress Awareness Week, and #UofStirling, alongside the @stirlingunion has created a programme of online and face to face events for staff and students. Find out more at 👇https://t.co/HNhIy13SaH #NationalStressAwarenessWeek #BeConnected @UofSStudentHub

[University of Stirling @StirUni]

To all our students and staff celebrating #Diwali, may the joy and light of this festival brighten your life, today and always. 💚

[Mental Health Foundation @mentalhealth]

It’s World Mental Health Day 🌎. An opportunity to talk about mental health. To share tips & advice. And to let people know that it’s okay to ask for help if you’re struggling 💚. #WMHD #MentalHealth #WorldMentalHealthDay

[Myeloma Patients Europe @MyelomaEurope]

According to the research presented at the #EuropeanMyelomaDay online event, 38% of haematologists reported that their patients typically had 3 medical consultations and 31% stated they had 4 or more.
You can read the full report by clicking on the link
https://t.co/kvZl67AOdR

[Living with Myeloma @MyelomaStudy]

We are approaching the end of our data collection phase - but still have a few more days for interviewees in Germany! Do talk to us

https://t.co/pguFkxLXxH

[Myeloma Patients Europe @MyelomaEurope]

According to the findings of the research presented at the #EuropeanMyelomaDay online event, approximately 24% of patients waited 5 months or more to get a myeloma diagnosis.

Click on the link to read the full report: https://t.co/kvZl67SpCr