Julie L Devlin

I was diagnosed with Dermatomyositis, Sjogrens,Celiac Disease,Neuropathy CVID. I bring awareness through social media and video production.

[Julie L Devlin @MyositisDM]

The Ultimate Wisconsin State Fair Experience! https://t.co/LQHoMRWC7V

[Julie L Devlin @MyositisDM]

Win A Custom Rare Disease Story Shirt, With Your Submitted Name Highlighted! ** Contest Ending On August 11 ** https://t.co/etf0m0bpw7

[Julie L Devlin @MyositisDM]

@keepgoingriri When the rash and itching would not go away and Raynauds Disease started. That’s when I knew something was wrong.

[Julie L Devlin @MyositisDM]

#rarediseaseday2019

[Julie L Devlin @MyositisDM]

Always....#rarediseaseday2019

[Julie L Devlin @MyositisDM]

#myositis #rarediseaseday2019

[Julie L Devlin @MyositisDM]

@BonnieSwift10 Absolutely! Do you have a FB account to talk through messenger? I would love to help you. You can DM me for FB info.

[Peter Frampton @peterframpton]

I am so thankful for everyone’s incredible support and love. I am now going to help raise awareness for IBM. Please help if you can so we can find a cure for this cruel disease.

[The Myositis Association @TheMyositisAssc]

Of his diagnosis with inclusion body myositis, legendary guitarist @PeterFrampton said, "It's not life threatening, it's live changing." Thank you for this message of hope in the face of this debilitating disease that has no treatment and no cure. https://t.co/yZXMsw3HbN

[Julie L Devlin @MyositisDM]

Join MSU for an interactive, online video session Wednesday, Feb 27, 2019, starting at 3 PM ET. This session all about clinical trials. Registration required but free! https://t.co/w7WWgShbik #myositis #rarediseaseday

[Corbus Pharma @CorbusPharma]

Long-term, open-label lenabasum data showed continued favorable safety & further improvement in efficacy outcomes in #scleroderma & #dermatomyositis. Lenabasum is being tested in a Ph 3 scleroderma study. Ph 3 #DM study will begin by year-end. https://t.co/ENygrLV2Vr #ACR18 $CRBP

[Myositis Support and Understanding (MSU) @MyositisSupport]

Are you dressing up for Halloween? Decorating your wheelchair or powerchair, cane, or walker? We want to see! Show us what #myositis looks like "all dressed up." Share your photos/videos on Facebook with hashtag myositis, and mention us on Instagram with username myositis

[Invisible Disabilities Association @InvDisabilities]

We have 9 great #InvisibleDisabilitiesWeek Signs everyone can use! Simply download your favorite. Fill it out. Hold it up in a photo or just post it! Get them here for FREE here: https://t.co/2jMpWceb3v #invisibleillness #spoonies #invisibledisabilities #iaminvisiblenomore

[Invisible Disabilities Association @InvDisabilities]

Welcome to #InvisibleDisabilitiesWeek! Spread awareness! Meet new friends! Share your stories, blogs, books, events, pets, hobbies, frustrations, joys, triumphs and your sheer amazingness! Let's turn the internet BLUE with awareness, education and support! https://t.co/2jMpWceb3v

[Invisible Disabilities Association @InvDisabilities]

2018 #invisibledisabilitiesweek starts Sunday October 14th! Spread awareness! Meet new friends! Share your stories, blogs, books, events, pets, hobbies, frustrations, joys, triumphs and your sheer amazingness! Let's turn the internet BLUE with awareness, education and support!

[Corbus Pharma @CorbusPharma]

"#Dermatomyositis has the ability to steal everything from you. It steals your health from you. It steals your money from you. It can try to steal your relationship from you." Emily Filmore describes her journey with this disease: https://t.co/NrEKa4h0Tr @MyositisSupport

[Corbus Pharma @CorbusPharma]

"Living with [myositis] has totally changed my life. I used to be able to get up in the morning and go to work... I had to leave the workforce. I had to apply for disability." Jerry describes what it is like to live with #myositis: https://t.co/IFSHZccfJR @MyositisSupport

[Julie L Devlin @MyositisDM]

@MyositisSupport @dermatomyositis Thank you @MyositisSupport . I finally got insurance approval last week. Next Monday I start IVIG again!!

[Julie L Devlin @MyositisDM]

My recent flare with @dermatomyositis. Waiting for my IVIG infusions to restart.

[Julie L Devlin @MyositisDM]

Treatment for dermatomyositis receives orphan designation | The Myositis Association https://t.co/VYOB7lfSx4

[Julie L Devlin @MyositisDM]

#autoimmunedisease #invisibleillness