myositisIndia

Myositis India is a patient community for mutual understanding and support. Follow us on YouTube

[myositisIndia @MyositisI]

#Myositis patient perspectives on the #covid pandemic ~ audio visual #patients teleconsultations are preferred during the pandemic over telephone or routine visits . Fear of contracting covid & anxiety are widely prevalent, and so are logistic challenges in procuring medicines.

[Latika @LatikaGupta_]

Delighted to share our article on unique challenges faced due to #COVID-19 in patients with #myositis in @RheumJnl with @docrota @drhectorchinoy @vikasagrIMMUNO and James Lilleker. https://t.co/GEWMfoNFcg

[Peter Boyd @fibrofella]

Have you #GotYourCOVIDShot yet? If you are 18 years or above, please help researchers learn about its long-term effects, disease flares, pain and fatigue in autoimmune diseases compared with healthy controls irrespective of vaccination status.
https://t.co/xmhRSimrFV

[Latika @LatikaGupta_]

New biomarker for fibromyalgia! #rheumtwitter

[Myositis Support and Understanding (MSU) @MyositisSupport]

Only 1 week left! #Myositis patients and #caregivers, please participate in this 10-15 minute survey conducted by UTSW Med Center for our #Myositis Journey and Burden of Disease Study. See details & get survey links at https://t.co/ZBTE12uLMC #inflammatorymyopathy

[Sreoshy Saha @SreoshySaha]

Which #COVID19 #vaccine would be preferred by #rheumatic patients? What do you think?
If you're >18, fill out the #COVAD survey to help researchers find that out!! @Abraham_RMI @Nellziade @Amansharmapgi @NRAS_UK @eularYoungPARE @MS_Focus @MyositisSupport https://t.co/Pf8qfXmmTu

[Latika @LatikaGupta_]

Have you #GotYourCOVIDShot yet?
If yes, help researchers learn about its long-term effects and disease flares in autoimmune diseases compared with healthy controls by taking this short survey.
@docrota @ElenaNikiUK @Abraham_RMI @Mrudula_Joshi_
https://t.co/w0WTpCx4Nr

[Latika @LatikaGupta_]

The story of livedo, Gottron's and antiMDA5 #myositis

makes sense as vasculopathy/vasculitis is a feature of this disease https://t.co/lGKvfsH4T0

[Latika @LatikaGupta_]

Good Efficacy Achieved by #Baricitinib in the Treatment of Anti-MDA5 Antibody- positive #Dermatomyositis with #Alopecia Areata https://t.co/gs0m9KGHUE

[Ashima Makol MD @AshimaMakol]

✨Expert opinion✨ on M/M of #IIM- #ILD👉 No Consensus, Even on steroid doses!!

✅MILD👉MMF,AZA,Cyclosporine,PO Prednisone

✅MOD👉Pulse GCs for induction,Cyclosporine,Tacro, RTX??, IVIg for steroid sparing

✅MDA5+👉 Tacro+IV CYC+Pulse GCs

✅PROG-ILD👉Antifibrotics?

#ILD2022

[debaditya_roy @debaditya_roy]

#very interesting to note #ILD #ILD2022 #Myositis
🟡Patients with IPAF+MSA but not MAA has similar clinical features and outcomes as those with IIM-ILD

⚠️Time to consider removing MSA's from IPAF criteria?

[Myositis Support and Understanding (MSU) @MyositisSupport]

Today and every Sunday, connect w/ your #myositis family for loving, caring support! Join us on Clubhouse TODAY at 7 PM ET / 6 CT / 5 MT / 4 PT - All who are living with #myositis welcome! Join here: https://t.co/5z37cnwBDO #myositissupport #myositiswarriors

[Vivek Nagaraja @vivnag]

#Myositis - #ILD autoantibody review by Dr. Lundberg at #ILD2022

✅60-70% → #ILD in #Myositis
✅‼️Anti-synthetase (upto 90%) and MDA-5 Ab‼️ 🔺risk
✅Any ILD pattern; 👀MDA5 → rapidly progressive type
✅Better prognosis 😊 than IPF

[debaditya_roy @debaditya_roy]

#Important take home points from the wonderful lecture on ILD in myositis in International symposium on ILD by Dr.Lundberg

🟡ILD may be the only or predominating manifestation!

#ILD # ILD2022 #Myositis @MYONET_Registry

[Ashima Makol MD @AshimaMakol]

🌟Superb flowcharts for evaluating and managing #Myositis #ILD in 2022 by @docrota🌟

🔑 Think of Myositis associated and specific Abs early 👉MDA-5 in RP-ILD/ Acute presentation
🔑 Many may present WITHOUT myositis or derm manifestations

#ILD2022
#PulmTwitter
#RheumTwitter

[debaditya_roy @debaditya_roy]

#Therapies in CTD ILD #Wonderfully depicted!
#ILD2022 #Myositis #ILD
👇👇

✅ Evidence Based

@LatikaGupta_ @Rudra_P_Goswami @Abraham_RMI @AshimaMakol @ScleroIndia @myoIN5 @MyositisI

[debaditya_roy @debaditya_roy]

#Role of IVIG and Plasmapheresis in RP-ILD(anti MDA 5 +) explained by Dr.Rohit Aggarwal #ILD2022 #IVIG #ILD #Myositis

🟡More studies and RCTs needed in Myositis ILD

@LatikaGupta_ @ERheumat @Rudra_P_Goswami @kunalchandwar @Abraham_RMI @MYONET_Registry @myoIN5

[Dr. Dinesh Khanna @sclerodermaUM]

@Worldsclerofnd @robertocaporali @danfurst @clivekelly @EricMatteson @MatucciMarco thanks for excellent discussion. Expert opinion
❌❌DRUGS TO AVOID in 2022 for RA-ILD
1. High dose steroids, esp for long term
2. Rituximab (due to covid)
3. Azathioprine- ❌jt
4. MMF-❌jt
✅✅DRUGS TO CONSIDER
1. METHOTREXATE!
2. Abatacept
3. Tocilizumab
4. JAKi
5. Antifibrotics

[Ashima Makol MD @AshimaMakol]

Should everyone with #IIM #Myositis get HRCT?

🔑 NO (eg. SRP+, NXP-2, TIF-1g very low risk for ILD)

🔑 Who Must?

✅Anti-synthetase syndrome
✅MDA-5+
✅Ro-52+
✅PM-Scl+
✅U1-RNP
✅Symptomatic, Abnormal PFTs

#ILD2022
#RheumTwitter

[Dr. Dinesh Khanna @sclerodermaUM]

Excellent summary by @docrota

[Latika @LatikaGupta_]

I am very pleased to share our observations now confirmed in a #systematicreview- #Tuberculosis is rampant & leads to morbidity & even #mortality in #myositis patients in endemic regions. Thanks to @SaloniHaldule &@Rudra_P_Goswami for awesome teamwork!!https://t.co/lbYHfpEby4

[Abraham E. Gracia R. @Abraham_RMI]

In this review article, @LatikaGupta_ et al explain the clinical clues to identify the different causes of myopathies that could mimic the idiopathic inflammatory myopathies.
Via @IJRheum
https://t.co/1l4WuRXr2b
Congratulations, great paper 🥳🎉🎉
CC @APLAR_org