Neuroendocrine Cancer Foundation

The Neuroendocrine Cancer Foundation (previously known as LACNETS) provides a community of support & education for those with neuroendocrine cancer.

[Neuroendocrine Cancer Foundation @NCFCancer]

Join us for the Virtual 2026 Neuroendocrine Cancer Patient Conference on Saturday, June 20, 2026, from 7:30 AM–1:00 PM Pacific.

This free online event is designed for people living with neuroendocrine cancer, caregivers, and families seeking trusted, expert-led information.

This year’s theme, Navigating a Changing Neuroendocrine Cancer Landscape, will explore diagnosis, treatment options, scans and imaging, surgery, liver-directed therapy, PRRT, clinical trials, side effect management, supportive care, and treatment decision-making.

What to expect:
✅19 leading NET experts
✅Patient stories
✅Practical, patient-centered education
✅Live Q&A with specialists
✅Fully virtual access with the ability to pause, rewind, and replay sessions
✅Free registration

Register today: https://t.co/LgMPaSwt00

#NeuroendocrineCancer #NETCancer #patienteducation #cancersupport #clinicaltrials #ncfcancer

[Neuroendocrine Cancer Foundation @NCFCancer]

What an incredible day at the Neuroendocrine Cancer Patient Conference in Atlanta, with over 100 incredibly engaged guests!

We are so grateful to @UGrewalMD, our speakers, patients, caregivers, clinicians, advocates and sponsors for coming together to learn, connect, and support one another. Seeing such a strong turnout reminds us of the power and resilience of this incredible community.

A special thank you to our outstanding speakers from Emory, Vanderbilt, and UAB, as well as our generous sponsors, for helping make this event possible. 💚

#neuroendocrinecancer #netcancer #netawareness

[Neuroendocrine Cancer Foundation @NCFCancer]

Join us in Los Angeles on Sunday, May 31, for this dynamic patient education event—a collaboration between @norcalcarcinet and the @NCFCancer, in partnership with the Society of Nuclear Medicine and Molecular Imaging (SNMMI).

Dr. Eric Liu and Dr. Erik Mittra discuss the upcoming Neuroendocrine Cancer Patient Education Day at the 2026 SNMMI, highlighting what attendees will learn about neuroendocrine cancer—including PRRT, imaging, and treatment options—and why in-person events offer valuable opportunities to ask questions and connect with experts and other patients.

Learn More at:
📌https://t.co/6MApI7k2mu

#NeuroendocrineCancer #NETCancer #CarcinoidCancer #PRRT #RareCancer #CancerEducation #PatientEducation #CancerSupport #Oncology #Healthcare

[Neuroendocrine Cancer Foundation @NCFCancer]

🗓️ Join us for Luncheon With The Experts at 9 am Pacific (Noon Eastern) today!

“Luncheon With The Experts” is a recurring educational outreach series (previously hosted by the Carcinoid Cancer Foundation) aimed at patients, caregivers, and the broader neuroendocrine cancer community. The sessions are hosted by Rain Bennett.

The series features medical specialists — oncologists, surgeons, researchers, and other clinical experts — who present on topics relevant to neuroendocrine cancer and answer audience questions live via chat.

Programs are typically delivered live (over Facebook Live and YouTube Live) at noon Eastern Time, allowing participants to join with their lunch break.

Live sessions are recorded and will be available afterwards.

⏲️ April 30, 2026, 9 AM PACIFIC (Noon Eastern)

Join on Facebook Live at: https://t.co/zJ2zSD9iwf
Join on YouTube Stream at: https://t.co/5wICyYtGfc
For more information visit: https://t.co/JLXi7YrBGG

#NeuroendocrineCancer #NETCancer #cancereducation #patientsupport #TargetedTherapy #NeuroendocrineTumor

[Neuroendocrine Cancer Foundation @NCFCancer]

Lisa Yen and Dr. Daniel Halperin of the Emory Winship Cancer Institute discuss the value of attending their upcoming in-person patient education event in Atlanta on May 16.

They highlight the importance of community connection, the opportunity to engage with patients, advocates, and experts, and why this moment—amid rapid advancements and ongoing clinical trials—is especially meaningful for those affected by neuroendocrine cancer.

To learn more about the event in Atlanta, visit https://t.co/YLf4WesyPv.

[Neuroendocrine Cancer Foundation @NCFCancer]

💙 Newly Diagnosed with Neuroendocrine Cancer? You’re not alone.

Join us for a virtual patient education webinar designed to bring clarity, confidence, and guidance during one of the most overwhelming stages of the journey.
🗓️ April 23, 2026
⏲️ 8:00 – 9:30 AM PT

Hear from Dr. Osama MoSalem, Medical Oncologist at Saint Luke’s Cancer Institute, as he provides a clear and compassionate overview of what every newly diagnosed NET patient should know.

You’ll learn:
• What neuroendocrine cancer is and how it differs from other cancers
• Understanding grade & stage
• Key tests and scans used at diagnosis
• Treatment pathways (surgery, medications, targeted therapy, radioligand therapy, clinical trials)
• Important questions to ask your care team
• Practical next steps to feel more prepared and empowered
Whether you’re newly diagnosed, supporting a loved one, or seeking clarity—this session provides a strong foundation to move forward with confidence.

🔗 Register now: https://t.co/RRR3pv4Evl

#neuroendocrinecancerawareness #patienteducation #cancerawareness #virtualevent #cancerawareness

[Neuroendocrine Cancer Foundation @NCFCancer]

📌 Join us for Luncheon With The Experts on March 26!

“Luncheon With The Experts” is a recurring educational outreach series (previously hosted by the Carcinoid Cancer Foundation) aimed at patients, caregivers, and the broader neuroendocrine cancer community. The sessions are hosted by Rain Bennett.

The series features medical specialists — oncologists, surgeons, researchers, and other clinical experts — who present on topics relevant to neuroendocrine cancer and answer audience questions live via chat.

Programs are typically delivered live (over Facebook Live and YouTube Live) at noon Eastern Time, allowing participants to join with their lunch break.
Live sessions are recorded and will be available afterwards.

🗓️ March 26, 2026
🔗 Join on Facebook Live at: https://t.co/mXI0QOK6zf
🔗Join on YouTube Stream at: https://t.co/5wICyYtGfc

For more information visit: https://t.co/RtPRzQ4cxs

#NeuroendocrineCancer #NETCancer #cancereducation #patientsupport #TargetedTherapy #NeuroendocrineTumor

[Neuroendocrine Cancer Foundation @NCFCancer]

➡️✍️https://t.co/rLuQeZma1s
If you are living with or caring for someone living with neuroendocrine tumors (NETs), we invite you to share your experiences through an online survey.

While there is no compensation for completing this survey, your responses will help us better understand the needs of people living with NETs. The survey will take 3-5 minutes to complete, and your answers will remain anonymous.

We thank you for considering participating in this survey. Your responses are impactful.

[Neuroendocrine Cancer Foundation @NCFCancer]

➡️ Register at https://t.co/ITxX52E8Iq

Join us for a discussion of targeted therapies in neuroendocrine cancer, one of the fastest-growing areas of NET treatment. Unlike traditional chemotherapy, targeted therapies focus on specific pathways or features of cancer cells. Understanding how these treatments work can help patients feel more confident and informed when discussing options with their care team.

In this session, Dr. Rohit Thummalapalli, medical oncologist at Memorial Sloan Kettering Cancer Center, explores novel, innovative targeted treatments used or being studied in NETs, such as DLL3 and antibody–drug conjugates (ADCs). Dr. Thummalapalli will explain what these therapies are, how they work, and why they are becoming increasingly important in NET care.

Whether you’re newly diagnosed or considering later-line treatments, this webinar will help you better understand the evolving landscape of targeted therapy and what it may mean for your care.

#NeuroendocrineCancer #NETCancer #TargetedTherapy #cancereducation #cancerresearch #ncfcancer #NeuroendocrineTumor

[Neuroendocrine Cancer Foundation @NCFCancer]

📺 Join Us for a Special Screening: Zeal for Life

The Neuroendocrine Cancer Foundation invites you to an inspiring afternoon featuring a special screening of “Zeal for Life.” This powerful documentary highlights the resilience, optimism, and determination of people living with neuroendocrine cancer — along with the caregivers and experts who support them.

Come connect with the community, hear meaningful stories, and celebrate the spirit of living with zeal.

🗓️ Date: Saturday, March 7, 2026
📽️ Event: “Zeal for Life” Documentary Screening
📌Location: CinemaWest Beach Cities Movie Theater, 831 S Nash St, El Segundo, CA 90245
This event shines a light on the hope, courage, and dedication that define the neuroendocrine tumor (NET) community.

▶️ Learn more and register: https://t.co/f3GWeY6ePY

#zealforlife #NeuroendocrineCancer
#NeuroendocrineTumor #cancerawareness #PatientStories #caregiversupport

@AmanChauhanMD

[Neuroendocrine Cancer Foundation @NCFCancer]

Today, we honor a 60-year legacy — and look ahead with purpose.

After nearly 60 years of service, the @CarcinoidNETs (CCF), founded by Dr. Richard R.P. Warner, has announced it is closing operations.

We are honored that the Neuroendocrine Cancer Foundation (NCF) was chosen as CCF’s successor organization. Over the past two years, NCF has worked closely alongside CCF to ensure continuity of support.

💙What This Means for Our Community:

🧡A new, unified Neuroendocrine Cancer Provider Directory — developed in partnership with the Neuroendocrine Tumor Research Foundation (NETRF) — will launch later this year to help patients connect with experienced providers
🧡The Patient Support Line will continue
🧡Luncheon with the Experts (LWTE) webinars will continue
🧡Stories of Hope will continue to amplify patient and caregiver voices

We are deeply grateful to CCF and to Keith Warner and @GraceGoldstein for their decades of leadership, service, and unwavering dedication to the NET community. Their confidence in NCF is something we do not take lightly.

Our commitment remains clear: no one facing neuroendocrine cancer should feel alone. We will continue building on this legacy with trusted education, compassionate support, and meaningful connection.

— The NCF Team

#NeuroendocrineCancer #NETCancer #ContinuingTheLegacy #PatientSupport #cancercommunity #NeuroendocrineTumor #netawareness

[Neuroendocrine Cancer Foundation @NCFCancer]

#RareDiseaseDay #NeuroendocrineCancer #NETCancer #patientadvocacy

[Neuroendocrine Cancer Foundation @NCFCancer]

Tune in now to watch "The Latest in Neuroendocrine Cancer Clinical Trials" with Dr. Soares!

https://t.co/NvUNP72Oyi

[Neuroendocrine Cancer Foundation @NCFCancer]

🖥️ Watch "Hope on the Horizon for 2026"

At GI ASCO in San Francisco, Lisa Yen, Director of Programs and Outreach for the Neuroendocrine Cancer Foundation, sits down with leading neuroendocrine cancer experts Dr. Garima Gupta (University of Alabama at Birmingham) and @AmanChauhanMD (UCSF) to discuss what they are most excited about on the horizon in 2026.

In this conversation, Drs. Gupta and Chauhan share their enthusiasm for several potentially practice-changing clinical trials and emerging therapies, including:
- New formulations of somatostatin analogs, such as oral options, are being studied for carcinoid syndrome
- The NET RETREAT trial, exploring retreatment with PRRT for patients who previously benefited from this game-changing therapy
- Advances in DLL3-targeted therapies, including BiTEs, antibody-drug conjugates, and radiopharmaceuticals for high-grade neuroendocrine carcinomas
- The STELLAR-311 trial, investigating the novel agent zanzalintinib in neuroendocrine tumors across multiple primary sites

The discussion highlights progress across the full spectrum of neuroendocrine neoplasms—from low-grade to high-grade disease—and underscores the growing momentum in a field with significant unmet needs.

Thank you to the physician-scientists and researchers driving innovation and hope for the neuroendocrine cancer community.

#NeuroendocrineCancer #NeuroendocrineTumor #NETCancer #neuroendocrinecancerawareness #hope

[Neuroendocrine Cancer Foundation @NCFCancer]

📌 Call to Action

Care partners and caregivers play a vital role in supporting people living with neuroendocrine carcinoma—and your voice matters.

If you are caring for someone with NEC, you’re invited to take part in a confidential online survey to help researchers better understand the challenges you face and how support can be improved.

✅ Short online survey
✅ Confidential
✅ Honorarium provided for eligible participants
Your experience can help shape better care for the NEC community.

➡️ Learn more and sign up here: https://t.co/nndIW3QBh3

#NeuroendocrineCancer #CaregiverSupport #CarePartner #PatientSupport #ncfcancer #NETCancer #NeuroendocrineTumor

[Neuroendocrine Cancer Foundation @NCFCancer]

Join us on January 21, 2026, for a virtual educational webinar with @JaydiDelRivero, MD, Medical Oncologist and Endocrinologist at the National Cancer Institute. This session will focus on functional neuroendocrine tumors (NETs), including hormone-related symptoms, diagnosis, and treatment options.

Designed for patients, caregivers, and advocates looking to better understand NETs and feel more informed about care.

📷Learn more and register: https://t.co/OdPR8TVuuC

#NeuroendocrineCancer #patienteducation #ncfcancer #NeuroendocrineTumor #Neuroendocrine #neuroendocrinecancerawareness

[Neuroendocrine Cancer Foundation @NCFCancer]

🎉 Here’s to an Impact-Driven 2026!

As we welcome the new year, the team at the Neuroendocrine Cancer Foundation reflects with gratitude on the progress, resilience, and connection within our community. In 2025, we expanded educational events, shared breakthroughs in neuroendocrine cancer research, and strengthened support networks for patients and caregivers.

In 2026, we renew our commitment to education, connection, and empowerment so that no one faces neuroendocrine cancer alone.

What’s ahead:
• More expert-led webinars and support programs
• Enhanced resources for patients and caregivers
• Continued updates on clinical trials and treatment advances
Thank you to our supporters, volunteers, partners, and the entire neuroendocrine cancer community for walking with us. Together, we bring clarity, strength, and progress to every step of the journey.

Happy New Year—here’s to community and continued progress in 2026.

💙 Visit us at https://t.co/PsiHkGlpBx to learn more and stay connected.

#ncfcancer #NeuroendocrineCancer #NeuroendocrineTumor #netawareness #NETCancer

[Neuroendocrine Cancer Foundation @NCFCancer]

💟 "The email that changed everything."
After being diagnosed with a neuroendocrine tumor, Dusty felt scared, isolated, and unsure of where to turn. One of the first emails she received from NCF said, “You are not alone. We are here to help.”

That message became the start of community, education, and empowerment.

Read Dusty’s story:
👉https://t.co/Xd4J82GEl4

#NeuroendocrineCancer #NETCancer #PatientStory #youarenotalone #ncfcancer #NETcancerawareness #NeuroendocrineTumor