Neuroendocrine Cancer Foundation

The Neuroendocrine Cancer Foundation (previously known as LACNETS) provides a community of support & education for those with neuroendocrine cancer.

[Neuroendocrine Cancer Foundation @NCFCancer]

Join the Neuroendocrine Cancer Foundation for “Practical Tips in Managing Your Neuroendocrine Cancer Care” today from 10:00–11:30 AM Pacific.

Taymeyah Al-Toubah and Tiffany Romershausen, MPH, MSN, AGPCNP-C, of Moffitt Cancer Center share important insights to help you spearhead your medical team and confidently navigate your healthcare. Gain practical logistics for managing the ongoing cycle of scans, lab work, and "ologist" appointments. Discover well-informed, real-world suggestions on finding and building strong partnerships with your providers and specialists. We hope this discussion empowers you to effectively and efficiently coordinate your care.

Topics include:
✨ Coordinating NET care
✨ Working with NET specialists
✨ Preparing for oncology appointments
✨ Patient advocacy and second opinions
✨ Scans and symptom management
✨ Communicating effectively with your medical team

💻 This is a virtual event.

Watch it here: https://t.co/GjgBK046ym

#NeuroendocrineCancer #NETcancer #NeuroendocrineTumor #cancersupport #PatientAdvocacy #cancercaregiver #netcommunity #ncfcancer

[Neuroendocrine Cancer Foundation @NCFCancer]

📣 New FDA Approval for the Neuroendocrine Cancer Community

The U.S. Food and Drug Administration (FDA) has approved BRAVNETSA™ (lutetium Lu-177 dotatate) injection for the treatment of adults with somatostatin receptor-positive gastroenteropancreatic neuroendocrine tumors (SSTR-positive GEP-NETs), including foregut, midgut, and hindgut NETs.

BRAVNETSA offers another treatment option for patients and families navigating neuroendocrine tumors.

Please note: BRAVNETSA is not currently commercially available. Additional information about availability is expected in the future.

Learn more and review the full prescribing and safety information:
https://t.co/LuTbAl6g7x

Availability updates:
https://t.co/vsqffw06bS

#neuroendocrinetumors #NETcancer #gepnets #nuclearmedicine #PatientAdvocacy #ncfcancer

@LantheusNews

[Neuroendocrine Cancer Foundation @NCFCancer]

Join us TODAY for Luncheon With The Experts featuring Aman Chauhan, MD, MBBS, medical oncologist and Associate Professor of Medicine at UCSF.

@AmanChauhanMD specializes in neuroendocrine cancers, with expertise spanning clinical trials, radiopharmaceutical therapy, theranostics, treatment sequencing, symptom management, and guideline development.

📅 Thursday, September 17, 2026
⏰ 12 PM Eastern / 9 AM Pacific
📍 Live on Facebook and YouTube
✅ No registration required

Bring your questions! Dr. Chauhan will answer audience questions live—just leave yours in the Facebook comments or YouTube chat. The session will also be recorded and available afterward.

Learn more and watch: https://t.co/UX56sHairl

#NeuroendocrineCancer #NETcancer #neuroendocrinetumors #CancerEducation #luncheonwiththeexperts #ncfcancer

[Neuroendocrine Cancer Foundation @NCFCancer]

The FDA has approved BEXLUTRY™ (lutetium Lu 177 dotatate injection) from Curium for adults with somatostatin receptor-positive gastroenteropancreatic neuroendocrine tumors, also known as SSTR-positive GEP-NETs.

BEXLUTRY is a radioligand therapy designed to bind to somatostatin receptors commonly found on GEP-NETs and deliver targeted radiation to tumor cells. This approval adds another FDA-approved treatment option for eligible adults with foregut, midgut, and hindgut neuroendocrine tumors.

Learn more: https://t.co/CW3aTmGVF5

For patients and caregivers, this is an important reminder to talk with your healthcare team about your tumor type, somatostatin receptor status, prior treatments, and whether radioligand therapy may be appropriate for your individual care plan. This information is for educational purposes only and is not medical advice.

#NeuroendocrineCancer #NETcancer #gepnets #radioligandtherapy #lutetium177 #curium #PatientEducation #ncfcancer

[Neuroendocrine Cancer Foundation @NCFCancer]

🍂 Take time to pause, reconnect, and embrace transformation.

The Neuroendocrine Cancer Foundation invites neuroendocrine cancer patients and caregivers to our Autumn Virtual Health & Wellness Retreat on Saturday, September 26, 2026, from 8:15 AM–12:15 PM Pacific Time.

This year’s theme, Transformation, will explore the emotional, mental, social, and behavioral changes that can accompany life with neuroendocrine cancer. Through a supportive, interactive Zoom experience, participants will have an opportunity to step away from the day-to-day and focus on connection, creativity, movement, and mindfulness.

The morning will include:
🧘‍♀️ Chair Yoga with Julie Wolinsky
🎨Art Therapy with Angie Madama
🌿Guided Meditation with Ruth Q. Wolever, PhD, NBC-HWC
🗨️ Reflections, Connection & Sharing with Victoria Ramirez, LCSW

The retreat is offered at no charge to neuroendocrine cancer patients and caregivers, but space is limited.

✨Learn more and register: https://t.co/ZhI6ttyM3D

We hope you’ll join us for a morning dedicated to wellness, community, and transformation.

#NeuroendocrineCancer #NETcancer #cancersupport #cancercaregivers #healthandwellness #mindfulness #arttherapy #yoga #ncfcancer

[Neuroendocrine Cancer Foundation @NCFCancer]

Research Opportunity: Carcinoid Syndrome

Adults in the United States who are living with carcinoid syndrome may be eligible to participate in a reimbursed, non-promotional market research study conducted by LDA Research Ltd, an independent healthcare market research company.

The study aims to better understand patient experiences with carcinoid syndrome, including the patient journey, treatment experiences, symptom management, and the day-to-day impact of living with the condition.

Participation may include either:
• A 60-minute online interview with a $100 honorarium
• A 2-hour online focus group with a $200 honorarium
Participation is voluntary, and responses will remain confidential and anonymous.

Interested in seeing whether you qualify? Complete the short screening questionnaire here:
https://t.co/8JnIe4yVW6

#carcinoidsyndrome #NeuroendocrineCancer #NETcancer #PatientResearch #PatientVoice #CancerResearch #ncfcancer

[Neuroendocrine Cancer Foundation @NCFCancer]

Join us for Luncheon With The Experts with J. Randolph Hecht, MD, gastrointestinal medical oncologist at UCLA Health.

Dr. Hecht is the Medical Director of the UCLA GI Neuroendocrine Tumor Program and has extensive experience in gastrointestinal oncology, neuroendocrine tumor clinical trials, targeted therapies, immunotherapy, and radiopharmaceutical therapy research.

📅 Thursday, August 27, 2026
⏰ Noon Eastern / 9 AM Pacific
💻 Watch live on Facebook Live or YouTube Live
📝 No registration needed
❓ Submit your questions live in the Facebook comments or YouTube chat

Hosted by Rain Bennett, Luncheon With The Experts is a recurring educational series for patients, caregivers, and the broader neuroendocrine cancer community.

Learn more: https://t.co/oEKPCifOjO

#NeuroendocrineCancer #NETCancer #PatientEducation #LuncheonWithTheExperts #CancerSupport #NCF

[Neuroendocrine Cancer Foundation @NCFCancer]

Join us for When Hormones Interfere With Quality of Life in Neuroendocrine Cancers, a virtual event with Jaydira Del Rivero, MD, endocrinologist and medical oncologist at the National Institutes of Health.

Neuroendocrine cancers can sometimes produce hormones that affect daily life. This webinar will explore hormone-related symptoms, how they may impact quality of life, and what patients and caregivers can discuss with their healthcare team.

📅 Thursday, August 27, 2026
⏰ 1:30–3:00 PM Pacific
💻 Virtual Event
🔗 Register: https://t.co/aqyd5iXJEl

@JaydiDelRivero
#NeuroendocrineCancer #NETCancer #PatientEducation #CancerSupport #Hormones #SymptomManagement #NCF

[Neuroendocrine Cancer Foundation @NCFCancer]

New podcast episode: NEN Treatments: Focus on Cabozantinib

In Episode 54 of the Neuroendocrine Cancer Foundation Podcast, host Lisa Yen speaks with Dr. Namrata “Neena” Vijayvergia, a medical oncologist and clinical trialist, about cabozantinib and what patients and caregivers may want to know.

Since its FDA approval on March 26, 2025, cabozantinib has emerged as the newest treatment option for NET patients—adding another valuable tool to the treatment toolbox. It’s become a hot topic in support groups and forums, with many patients wondering what to expect. In this episode, Fox Chase Cancer Center medical oncologist Dr. Namrata (“Neena”) Vijayvergia answers the most frequently asked questions about cabozantinib. She explains how it works, how it differs from other therapies, what patients should know about dosing and side effects, and shares insights on a new clinical trial exploring the next generation of cabozantinib.

Listen now: https://t.co/bhE7OAJTYf

#NeuroendocrineCancer #NETCancer #NeuroendocrineTumor #Cabozantinib #TargetedTherapy #CancerPodcast #PatientEducation #ClinicalTrials #NCF

[Neuroendocrine Cancer Foundation @NCFCancer]

Join us for Living With Neuroendocrine Cancer: The Caregiver/Co-Survivor Perspective on Thursday, July 30, 2026.

This virtual webinar will feature an open and honest conversation with four individuals who support loved ones living with neuroendocrine cancer. Together, they will share the realities of navigating a parallel journey as caregivers and co-survivors.

🗓️ Thursday, July 30, 2026
⏲️ 12–1 PM Pacific
👉 For caregivers, patients, families, and the broader neuroendocrine cancer community

Register here: https://t.co/zTdvoJhFj5

#NeuroendocrineCancer #NETcancer #caregiversupport #cancercaregivers #cosurvivor #PatientEducation #ncfcancer #neuroendocrinetumors

[Neuroendocrine Cancer Foundation @NCFCancer]

We are honoring the life and legacy of Tom Bajoras — beloved husband of Lisa Yen, NCF’s Director of Programs & Outreach, and a cherished member of the neuroendocrine cancer community.

Tom lived with neuroendocrine cancer for more than eleven years and shared his music, creativity, kindness, and service with so many. From performing original piano pieces at the 2023 NET Cancer Day Symposium to composing and editing music for the NCF podcast, Tom’s contributions touched our community in ways both seen and unseen.

In 2023, Tom received the Giovanna Joyce Imbesi Above & Beyond Award, recognizing his dedication to the NET community and the meaningful connection he created through music.

We are grateful for the beauty Tom shared, the journey he offered, and the love he brought into this community.
Read our tribute: https://t.co/L0OXpMeUFm

#NeuroendocrineCancer #NETcancer #ncfcancer #cancercommunity

[Neuroendocrine Cancer Foundation @NCFCancer]

Join us for Luncheon With The Experts featuring Jonathan Strosberg, MD, Professor in the Department of Gastrointestinal Oncology and Section Head of the Neuroendocrine Tumor Division at Moffitt Cancer Center.

Dr. Strosberg specializes in the management of neuroendocrine malignancies and has contributed extensively to the field through research, publications, leadership with NANETS, and service on the NCCN Neuroendocrine Guidelines Committee.

📅 Thursday, July 23, 2026
⏰ Noon Eastern / 9 AM Pacific
💻 Watch live on Facebook Live or YouTube Live
📝 No registration needed
❓ Submit your questions live in the Facebook comments or YouTube chat

Hosted by Rain Bennett, Luncheon With The Experts is a recurring educational series for patients, caregivers, and the broader neuroendocrine cancer community.

Learn more: https://t.co/Kqss5RCSwG

#NeuroendocrineCancer #NETCancer #PatientEducation #CancerSupport #LuncheonWithTheExperts #NCFCancer

[Neuroendocrine Cancer Foundation @NCFCancer]

Neuroendocrine Cancer Foundation is partnering with @TriageCancer for their upcoming webinar, "Managing Health Insurance Transitions," on July 22, 2026. Learn how to stay covered when moving, changing jobs, or switching between Medicaid, Medicare, and Marketplace plans. + Free CE for professionals.

Register: https://t.co/6hxb2eJ5FN

#HealthInsurance #NeuroendocrineCancer #NETcancer #NeuroendocrineTumor #triagecancer

[Neuroendocrine Cancer Foundation @NCFCancer]

In case you missed it: the Virtual 2026 Neuroendocrine Cancer Patient Conference is now available to watch here: https://t.co/LgMPaSwt00

Watch the Virtual 2026 Neuroendocrine Cancer Patient Conference, a free online event designed for individuals living with neuroendocrine cancer, as well as caregivers and families seeking trusted, expert-led information.

The conference featured expert-led education on key topics in neuroendocrine cancer care, including:
- Understanding your neuroendocrine tumor diagnosis
- Overview of treatment options, including systemic and liver-directed therapies
- Managing treatment side effects
- The role of imaging and scans in monitoring disease
- When and how to consider surgery and clinical trials
- Key insights to help you navigate complex care decisions

The program features:
✅ 19 leading NET experts sharing practical, patient-centered insights
✅ Real patient stories offering perspective and connection
✅ Expert panel discussions on supportive care and treatment decision-making
✅ Q & A sessions where specialists answered questions from the community
✅ A virtual format you can pause, rewind, and replay

Watch now on the NCF website or YouTube, and help us improve future programs by completing our short anonymous survey: https://t.co/ZljzeTJvWs

#NeuroendocrineCancer #NETcancer #PatientEducation #CancerSupport #clinicaltrials #ncfcancer #neuroendocrinetumors

[Neuroendocrine Cancer Foundation @NCFCancer]

Now starting in 15 minutes...

Tune in at https://t.co/xAvVrKHk1Y

or https://t.co/RXuhpwj5Yq

[Neuroendocrine Cancer Foundation @NCFCancer]

Tomorrow: Join us for the Virtual 2026 Neuroendocrine Cancer Patient Conference.

This free online event is designed for people living with neuroendocrine cancer, caregivers, and families seeking trusted, expert-led information.

🗓️ Saturday, June 20
⏲️7:00 AM Pacific
▶️Watch on the NCF website (https://t.co/LgMPaSwt00) or YouTube (https://t.co/w2CBJYcn8f)
❓ Live Q&A with NET specialists
⏪Pause, rewind, and replay sessions

Hear from 19 leading NET experts, learn about diagnosis, treatment options, imaging, surgery, clinical trials, side effect management, and hear real patient stories.

Submit your questions for the live Q&A through the Slido feed on the event page.

Learn more: https://t.co/bSh7zR7VH6

#NeuroendocrineCancer #NETCancer #patienteducation #cancersupport #clinicaltrials #ncfcancer

[Neuroendocrine Cancer Foundation @NCFCancer]

Tomorrow: Join us for the Virtual 2026 Neuroendocrine Cancer Patient Conference.

This free online event is designed for people living with neuroendocrine cancer, caregivers, and families seeking trusted, expert-led information.

🗓️ Saturday, June 20
⏲️7:00 AM Pacific
▶️Watch on the NCF website (https://t.co/LgMPaSwt00) or YouTube (https://t.co/w2CBJYcn8f)
❓ Live Q&A with NET specialists
⏪Pause, rewind, and replay sessions

Hear from 19 leading NET experts, learn about diagnosis, treatment options, imaging, surgery, clinical trials, side effect management, and hear real patient stories.

Submit your questions for the live Q&A through the Slido feed on the event page.

Learn more: https://t.co/bSh7zR7VH6

#NeuroendocrineCancer #NETCancer #patienteducation #cancersupport #clinicaltrials #ncfcancer

[Neuroendocrine Cancer Foundation @NCFCancer]

The neuroendocrine cancer community came together in Atlanta for a powerful day of education, connection, and hope.

Read the full recap and the recordings of the speaker presentations: https://t.co/f8TFPx9leg

NCF’s Patient Education Event welcomed approximately 110 patients, caregivers, clinicians, scientists, advocates, and industry partners for expert-led sessions on surgery, liver-directed therapy, systemic treatments, imaging, PRRT, clinical trials, and emerging research.

Attendees heard from leading regional experts from Emory University, UAB, and Vanderbilt, connected with others who understand the NET journey, and left with practical knowledge, new relationships, and renewed hope.

Thank you to our speakers, sponsors, partners, and everyone who joined us in Atlanta. Together, we are advancing education, awareness, and support for the neuroendocrine cancer community.

#NeuroendocrineCancer #NETCancer #patienteducation #cancersupport #clinicaltrials #PRRT #cancercommunity #ncfcancer

[Neuroendocrine Cancer Foundation @NCFCancer]

Join us for the Virtual 2026 Neuroendocrine Cancer Patient Conference on Saturday, June 20, 2026, from 7:30 AM–1:00 PM Pacific.

This free online event is designed for people living with neuroendocrine cancer, caregivers, and families seeking trusted, expert-led information.

This year’s theme, Navigating a Changing Neuroendocrine Cancer Landscape, will explore diagnosis, treatment options, scans and imaging, surgery, liver-directed therapy, PRRT, clinical trials, side effect management, supportive care, and treatment decision-making.

What to expect:
✅19 leading NET experts
✅Patient stories
✅Practical, patient-centered education
✅Live Q&A with specialists
✅Fully virtual access with the ability to pause, rewind, and replay sessions
✅Free registration

Register today: https://t.co/LgMPaSwt00

#NeuroendocrineCancer #NETCancer #patienteducation #cancersupport #clinicaltrials #ncfcancer

[Neuroendocrine Cancer Foundation @NCFCancer]

What an incredible day at the Neuroendocrine Cancer Patient Conference in Atlanta, with over 100 incredibly engaged guests!

We are so grateful to @UGrewalMD, our speakers, patients, caregivers, clinicians, advocates and sponsors for coming together to learn, connect, and support one another. Seeing such a strong turnout reminds us of the power and resilience of this incredible community.

A special thank you to our outstanding speakers from Emory, Vanderbilt, and UAB, as well as our generous sponsors, for helping make this event possible. 💚

#neuroendocrinecancer #netcancer #netawareness

[Neuroendocrine Cancer Foundation @NCFCancer]

Join us in Los Angeles on Sunday, May 31, for this dynamic patient education event—a collaboration between @norcalcarcinet and the @NCFCancer, in partnership with the Society of Nuclear Medicine and Molecular Imaging (SNMMI).

Dr. Eric Liu and Dr. Erik Mittra discuss the upcoming Neuroendocrine Cancer Patient Education Day at the 2026 SNMMI, highlighting what attendees will learn about neuroendocrine cancer—including PRRT, imaging, and treatment options—and why in-person events offer valuable opportunities to ask questions and connect with experts and other patients.

Learn More at:
📌https://t.co/6MApI7k2mu

#NeuroendocrineCancer #NETCancer #CarcinoidCancer #PRRT #RareCancer #CancerEducation #PatientEducation #CancerSupport #Oncology #Healthcare