National Down Syndrome Policy Group

The NDSPG supports people with DS to have a say in the formation of policy in matters that impact their lives. We provide the secretariat for @APPGDS

[National Down Syndrome Policy Group @NDSPolicyGroup]

Huge congratulations to our brilliant Cornwall Advisory Group, who are finalists in the BBC Radio Cornwall Make a Difference Awards! 🏆
We’re so proud to see their voices, work and contribution recognised. 💛
The awards take place in September – we’ll be cheering them on! 🙌

[National Down Syndrome Policy Group @NDSPolicyGroup]

Utterly disgraceful. These allegations expose a shocking culture too many families will sadly recognise. No child should be denied the support they need because of delay tactics or cost-cutting. Children deserve dignity, transparency & timely support - not barriers & derision.

[ITV News @itvnews]

Managers told council staff to delay access to SEND support and laughed about it, whistleblower says
https://t.co/xggrQ3M1H1

[National Down Syndrome Policy Group @NDSPolicyGroup]

Watch the second clip from our Down Syndrome Summit. So good to connect people with Down syndrome from across the UK to discuss issues that matter to them.

🎥 Watch full Summit highlights @ https://t.co/BznwnAmD1L

Summer Newsletter will be landing in your inbox soon!

[Portsmouth Down Syndrome Association 💚 @PortsmouthDSA]

🎬 Tonight’s the night! We’ll be tuning in to @BBCCasualty at 8.10pm to watch Tommy Rhys-Powell make his guest debut! 🌟📽️A proud moment for Tom & his mum, our Education Practitioner Allison. Great to see authentic representation & inclusion on screen. 👏📺
#RepresentationMatters

[National Down Syndrome Policy Group @NDSPolicyGroup]

Why did people with Down syndrome across the UK travel to attend our Down Syndrome Summit?

Hear directly from some advocates in this clip.

🎥 Watch full Summit highlights

https://t.co/EwJQA9TGC4

Summer Newsletter will be landing in your inbox soon!

[National Down Syndrome Policy Group @NDSPolicyGroup]

@PortsmouthDSA @LucyScoular @C_CrookPDsa @DrACthePompeyGP @Compton1Cecile @leroymorrad @AndyFord33107 @RichJEH72 @BrooksStaceyL @benebrooks @Chris_AttwellLD Great pics! Happy Father's Day!

[National Down Syndrome Policy Group @NDSPolicyGroup]

Congratulations Cornwall Down Syndrome Advisory Group nominated for a BBC Radio Cornwall #MakeADifference Award.

(audio credit: BBC Radio Cornwall)

[Tommy Jessop @tommyjessop]

@NDSPolicyGroup @BAFTA @ottobaxter Congratulations @ottobaxter on becoming an NDSPG Ambassador. The @NDSPolicyGroup really is doing brilliant work making sure we can speak up and our voices are heard.

[National Down Syndrome Policy Group @NDSPolicyGroup]

🥂 to our co-founder @rachaelross21 on being appointed OBE. She works tirelessly with us & @PortsmouthDSA improving outcomes for people with #DownSyndrome & their families, driving policy change & recognition of specific needs of people with Down syndrome
https://t.co/waih1eXjxw

[National Down Syndrome Policy Group @NDSPolicyGroup]

@PortsmouthDSA @rachaelross21 @RoyalFamily @BrooksStaceyL @LucyScoular @DrACthePompeyGP @benebrooks @Chris_AttwellLD @C_CrookPDsa @AndyFord33107 @RichJEH72 @leroymorrad @AmandaMartinMP Well deserved and many congrats Rachael! 👏👏👏

[Portsmouth Down Syndrome Association 💚 @PortsmouthDSA]

We're proud to share that Chair @rachaelross21 has been awarded an OBE in The King’s Birthday Honours List @RoyalFamily for services to education, national policy & people with #DownSyndrome 🎉 A well-deserved recognition of 20+ years of dedication & advocacy. Congrats Rachael!🎉

[National Down Syndrome Policy Group @NDSPolicyGroup]

Welcome to filmmaker, actor, @BAFTA Breakthrough recipient @ottobaxter as NDSPG Ambassador. His work challenges stereotypes & expands representation for people with Down syndrome.
“Looking forward to letting people know about the brilliant work we do with NDSPG”.
@tommyjessop

[National Down Syndrome Policy Group @NDSPolicyGroup]

Many congratulations to NDPSG founding officer Dr Elizabeth Corcoran and team. Our friends @DSRF_UK continue to press for Down syndrome specific medical research by funding projects and disseminating the findings. Follow them to see their latest work.

[DSRF_UK @DSRF_UK]

DSRF UK is delighted to announce the publication of two articles in The Lancet, in collaboration with researchers led by @stellenboschuniversity, which urge for a transformative shift in the healthcare paradigm & experience for the Down syndrome community. Dr Elizabeth Corcoran,

[National Down Syndrome Policy Group @NDSPolicyGroup]

Fantastic news. Our very own Jake Binns from the Advisory Group has been selected to swim in this year’s @SOGreatBritain Olympics in Birmingham 26 to 30th August.

This has been a dream of his. Well done Jake 👏👏👏

[National Down Syndrome Policy Group @NDSPolicyGroup]

“I’m so proud” Ted said after he completed the adapted #TenTorsChallenge for The National Down Syndrome Policy Group.

Thanks Ted. We’re so proud of you too 😊

There’s still time to show Ted your support: https://t.co/LDGYz7fHaO

[National Down Syndrome Policy Group @NDSPolicyGroup]

@PortsmouthDSA @BenSwann16 @PennyMordaunt @LucyScoular @Chris_AttwellLD @DrACthePompeyGP @AndyFord33107 @callen620918 @leroymorrad @AmandaMartinMP @tommyjessop Congrats to everyone @PortsmouthDSA. Fantastic news, well done all! 👏👏👏

[Tommy Jessop @tommyjessop]

No need to be blue this spring!
Have a spring in your step and be joyful.
#spring #bluebells #joyful

[Portsmouth Down Syndrome Association 💚 @PortsmouthDSA]

Wonderful seeing Portsmouth DSA’s Lizzie on @itvnews! 🌟A successful apprenticeship proving that people with Down syndrome & LD can thrive in the workplace benefiting the whole community. Well done, Lizzie!

[National Down Syndrome Policy Group @NDSPolicyGroup]

@PortsmouthDSA @itvnews @callen620918 @kenross2011 @pennyhoops @Chris_AttwellLD @LucyScoular @DrACthePompeyGP @DamianHinds @BenSwann16 @C_CrookPDsa @AndyFord33107 Congratulations, Lizzie! Your achievements show the incredible potential of people with Down syndrome and learning disabilities when given real job opportunities. It’s time for more companies to see ability, not labels, and open doors to meaningful paid work.

[National Down Syndrome Policy Group @NDSPolicyGroup]

@PortsmouthDSA @BenSwann16 @Chris_AttwellLD @LucyScoular @AndyFord33107 @C_CrookPDsa @BrooksStaceyL @benebrooks @leroymorrad @RichJEH72 @DrACthePompeyGP Happy Easter everyone! 💜