APPG for Down Syndrome

Our aims are to raise issues affecting people with Down syndrome, promote equality, campaign for equal access & highlight the innate worth of people with DS.

[Don't Screen Us Out @dontscreenusout]

😍😍😍

[Portsmouth Down Syndrome Association 💚 @PortsmouthDSA]

Wonderful seeing Portsmouth DSA’s Lizzie on @itvnews! 🌟A successful apprenticeship proving that people with Down syndrome & LD can thrive in the workplace benefiting the whole community. Well done, Lizzie!

[Tommy Jessop @tommyjessop]

Happy Easter to one and all

#Easter #flowers #SpringJoy

[Matt Dathan @matt_dathan]

It's been FOUR years since parliament passed the Down Syndrome Act, backed by the government and all mainstream parties.

But it has STILL not been implemented

The law is so vital for the 50,000 people in the UK with Down Syndrome:

https://t.co/sYt0YHhLSC
@LiamFox @kenross2011

[APPG for Down Syndrome @APPGDS]

We are looking forward to meeting with @zubirahmed to discuss the #DownSyndromeAct Guidance

[The Times and Sunday Times @thetimes]

Four years after Down’s syndrome law, nothing has changed https://t.co/iJ4XgfHv8O

[National Down Syndrome Policy Group @NDSPolicyGroup]

📣GREAT NEWS!📣

The deadline for responding to the Down Syndrome Act draft guidance consultation has been extended to 30th March 2026!! 🙌🏼

#DownSyndromeAct
#InclusionMatters
#DownSyndrome

[National Down Syndrome Policy Group @NDSPolicyGroup]

We’re thrilled to announce that the draft Guidance for the Down Syndrome Act has officially been published!
This is an important step forward for our community. The consultation runs until 28th January 2026, and we’ll soon share how you can take part and make a difference.

[National Down Syndrome Policy Group @NDSPolicyGroup]

“The Bill presumes the best instead of legislating for the worst.” When we already know that disabled people face serious healthcare inequalities, overlooking these real risks would leave vulnerable people even more exposed under an #AssistedDyingBill.”

[National Down Syndrome Policy Group @NDSPolicyGroup]

Powerful words from @TommyJessop, who joined the @APPGDS to speak out on the urgent need for stronger safeguards in the #AssistedDyingBill. Reading his letter to the @UKHouseofLords, he made it clear: we are #NotCollateralDamage Read Tommy’s letter here: https://t.co/HKlGBJLTLG

[National Down Syndrome Policy Group @NDSPolicyGroup]

Full agenda at today’s @APPGDS AGM. Discussions incl. safeguarding concerns in #AssistedDyingBill, Post-16 transport loophole & updates on DS Act Guidance. Great to welcome NDSPG Advisory Group members from across UK to share their reports & insights. @LeeBarronMP @S_A_Russell

[National Down Syndrome Policy Group @NDSPolicyGroup]

Ahead of the 2nd Reading in @UKHouseOfLords, #NDSPG Patron & Actor @TommyJessop has launched our #AssistedDyingBill campaign with a powerful letter raising concerns about the bill’s lack of robust safeguards. Read his letter here https://t.co/A8ZRhkx4qy @DavidAltonHL @zatzi

[APPG for Down Syndrome @APPGDS]

Thank you Minister @SKinnock @DHSCgovuk for working with the @APPGDS & @NDSPolicyGroup to ensure the #DownSyndromeActGuidance is meaningful, robust & will improve outcomes for all. Reassuring timelines are confirmed for public consultation.
@DamianHinds @garrettflo
#andrewcooper

[APPG for Down Syndrome @APPGDS]

Thank you to contributors, guests and members for participating in today’s APPG for Down Syndrome. Details of topics below ⬇️
@garrettflo
@DamianHinds  @grahamstuart    @CIDDRG @LiamFox @LeeBarronMP  @jackabbott90 @jackmrankin  @JimShannonMP
@MoncktonR @LeeAndersonMP_

[National Down Syndrome Policy Group @NDSPolicyGroup]

A packed agenda incl. delays & ongoing issues with the #DownSyndromeAct guidance, the #AssistedDyingBill, & reported changes to EHCP eligibility. Thanks to Cambridge Uni @CIDDRG for their Alzheimer’s presentation & @garrettflo for sharing the Advisory Group ICB challenge results.

[Lord (David) Alton @DavidAltonHL]

Minister @SKinnock explains why the consultation on the Down Syndrome Act 2022 - pioneered in @UKParliament by @LiamFox & @BaronessHollins has been delayed. @APPGDS @DamianHinds @DownSyndrome @DownSyndromeLPL @HumanRightsCtte @LordSpeaker @CommonsSpeaker @HouseofCommons

[APPG for Down Syndrome @APPGDS]

“As co-chair, it is a privilege to pick up on Sir Liam’s work; the next critical phase needs to be the publication of supporting guidance for the #DownSyndromeAct.” @DamianHinds

[National Down Syndrome Policy Group @NDSPolicyGroup]

A really encouraging article by @DamianHinds MP showcasing the voluntary work of founding officers @kenross2011 @rachaelross21 Its a pleasure to work with Damian & we’re grateful for his collaboration and efforts in the @APPGDS and #DownSyndromeAct

https://t.co/kxX3bq9pV4

[APPG for Down Syndrome @APPGDS]

Productive APPG for Down Syndrome with valuable contributions from @DownsCheshire and @NDSPolicyGroup Advisory Group highlighting their day to day challenges with education, employment, housing and healthcare.

[APPG for Down Syndrome @APPGDS]

Delighted to relaunch the @APPGDS with excellent cross party support, welcoming our new co-chairs, @DamianHinds @GoAndrCoop
Thanks to our new members & @NDSPolicyGroup & particularly our policy network leaders, @fionnathan, Ed @garrettflo for their informative presentation.

[Ian Blackford @blackfordian1]

Today we celebrate World Down Syndrome Day, a global awareness event aimed at amplifying the voices of people with Down’s syndrome, highlighting their vital role in our communities and calling for their full participation in anything affecting their lives.

@APPGDS, @NDSPolicyGroup
#WDSD2024 #NDSPG

[National Down Syndrome Policy Group @NDSPolicyGroup]

Thank you @DHSCgovuk for a very informative meeting tonight with members of our Advisory Group. Thank you to all who came and contributed.
@DHSCgovuk
@RachelM16123456
@LiamFox
@mariacaulfield
@APPGDS
#DownSyndromeAct

[National Down Syndrome Policy Group @NDSPolicyGroup]

‘……we have passed 2 landmark pieces of legislation - the British Sign Language Act and the #DownSyndromeAct.’

This is an epic achievement. We’re proud to work with @liamfox @GillianKeegan @mariacaulfield @DHSCgovuk & grateful for overwhelming support.

https://t.co/caCh0N7ura