NELFT - Paediatric Epilepsy Community Service

Paediatric epilepsy community nursing service, providing care to C&YP in south west essex. Part of the Roald Dahl Specialist nursing family. @roalddahlcharity

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

Please take note of this important message. Attend Emergency Department if your child is unwell and not improving. @BasildonHosp @

[Jerusha Murdoch-Kelly @jerushaMK]

We are worried children attendances to ED are falling, please bring your child to hospital if they are unwell and not improving. Have a watch of our short video https://t.co/GywRe8r57x @BasildonHosp @WeCYPnurses @KOminuEvbota @rawal_dr @doctorsanjay @KathEvans2 @DFTBubbles RT

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

their secretary. Please contact 999 if seizure activity lasts longer than 5 minutes or as directed in your child’s care plan. We are here to help with seizure advice & support, medications and prescriptions queries. I hope you are all keeping safe and well.

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

Please note that the epilepsy service is still operating Mon - Fri, 8 to 5, if you have any concerns regarding your child’s seizure please do not hesitate to contact the service on 0300 300 1521 opt 2, secure email [email protected]  or contact your Consultant or....

[RCPCH_and_Us @RCPCH_and_Us]

Who doesn't love a #lifehack! Great to see this new digital resource for young people with #epilepsy co-designed by young people with epilepsy 💜

@Epilepsy_12 @drcolindunkley @DrRichJBrown @NELFTPECS @PENSteam @MirekQI @HQIP @sparklescot @PaediatricFOAM @Paedsinapod @RCPCHtweets

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

#lifehack #youngepilepsy
@youngepilepsy

[Young Epilepsy @youngepilepsy]

Find life hacks. Share experiences. Get answers. Spread the word.

Visit https://t.co/XyeLZCESUv today!

#TheChannel 💜

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

https://t.co/rlxLc54pbk
A new resource released from @youngepilepsy please share, it is aimed at young people ages 13-25 who suffer with epilepsy.
Keep Safe, Stay In, Save Lives
Don't forget to reach out if your seizures are increasing.... call your Epilepsy Nurse

[Roald Dahl Charity @RoaldDahlFund]

Such a thrill to see the amazing Lara (star of our Christmas Appeal) play Tiny Tim in A Christmas Carol @oldvictheatre tonight with a marvellous group of #RoaldDahl Nurses and children and families they support!

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

Had an amazing night watching A Christmas Carol @oldvictheatre. A big thank you @RoaldDahlFund for making this possible. Meadow and her family enjoyed the evening, it made her day especially following lots of grueling test at GOSH ❤💛❤💛

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

Infantile spasms awareness week, please watch the video. Raising awareness of this condition helps with speed of diagnosis and treatment! Which is crucial! #ISAW2019

[UKIST 💜💜 @UK_IS_T]

it’s Infantile Spasms Awareness Wk UKIST are proud to be a partner of the Infantile Spasms Action Network, with 25 other international charities & orgs we’ll be raising awareness for infantile spasms 💜
#ISAW2019 #infantilespasms #avivacommunityfund https://t.co/MzWyyuwzqW

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

Lovely Lara says it all really. Check out Roald Dahl's Marvellous Children's Charity christmas appeal 2019 💜💜💜💜

[Sophie Dziwinski @SophieDziwinski]

Please share our Christmas Appeal film to support us to help more children like Lara this Christmas! #christmasappeal #donate #teammarvellous #christmasadvert

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

SUDEP is real and you are more at risk if you have sleep seizures. Medication concordance, trigger avoidance and attending clinic appointments are a must for reducing the risks. RIP Cameron, our thoughts are with your friends and family.

[Epilepsy Foundation of America @EpilepsyFdn]

We are very sad to hear about the passing of @DisneyChannel star #CameronBoyce. His family said Cameron passed away in his sleep due to a #seizure. This bright young actor was known for his roles in the Disney franchise #Descendants and TV show “Jessie." https://t.co/6GE7Y37egh

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

A fantastic resource for those who work in schools and anyone wanting to know about epilepsy, be #seizuresavvy #NationalEpilepsyWeek #SeizureSaviour @youngepilepsy @younghealthTHU @Bright8rFutures

[Young Epilepsy @youngepilepsy]

Do you work in a school? Or know someone who does? Take a look at our free online guide for schools on supporting young people with epilepsy. https://t.co/RBZdke22xE #SeizureFirstAid #EpilepsyWeek 💜

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

#EpilepsyWeek #SeizureSaviour
Its Epilepsy Awareness week, would you know what to do if you found someone having a seizure? We would love to hear your experiences if you have helped someone having a seizure. We can all be super heroes!

[Epilepsy Action @epilepsyaction]

Do you have a #SeizureSaviour? 💪Is there anyone in your life that helps you with your epilepsy? Has a stranger ever helped while you've had a seizure in public? Now is your time to share your stories. Drop them in the thread below 👇#EpilepsyWeek

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

@epilepsyaction Thank you Alfie for allowing us to show the world your seizure, let's hope this videos brings more understanding of different epilepsy seizures. You superstar! 💫💜💫

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

Good morning all, this video is a perfect for showing what an absence seizure can look like and how easily they can be missed in a classroom setting in a busy environment. Thank you Alfie.

[Epilepsy Action @epilepsyaction]

Would you know what an absence seizure looks like? 🤔 Here is 7 year old Alfie with a powerful demonstration of what to look out for. For more information on absence seizures this #EpilepsyWeek head to https://t.co/wqiw4Ya7I8

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

On Friday I was at Roald Dahl specialist nursing conference, inspiring each other with transition success stories and looking at our services at what we could improve. So many ideas to put into place! Exciting times! Thank you @RoaldDahlFund for a fantastic marvellous conference!

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

@WoodroffeJ Thank you, any advice is greatly appreciated ❤

[NELFT - Paediatric Epilepsy Community Service @NELFTPECS]

My pledge to develop transition of care for all our patients @NELFT @RoaldDahlFund #transitionalcare #epilepsy #Transitionofcare

[Irene O'Donnell @IreneodonnelO]

“I’m not a condition I am a person “ powerful panel presentation sharing young people and parents perspective of their health care transition experiences @RoaldDahlFund #MarvellousConf #TransitionOfCare

[Roald Dahl Charity @RoaldDahlFund]

‘My son wanted choice and to be in control over his own life’ Powerful words from mum Karen sharing her personal experiences of her son transitioning from paediatric to adult services #MarvellousConf #TransitionOfCare