NF Forward

We are a non-profit funding neurofibromatosis (NF) research with audacious, high-reaching goals that will bring us closer to a cure for NF.

[NF Forward @NFForward]

Thank you for helping us raise $3 MILLION in support of #beNeFit XI! We cannot thank our sponsors enough for the tremendous outpouring of support this year. See you November 18th! ⁠
#beNeFitXI #nfforward #endNF

[NF Forward @NFForward]

Meet our 2023 Intern, Caroline Miota! She recently graduated from Michigan State University and her primary responsibilities include assisting in the execution of beNeFit XI. Caroline can't wait to work with our great donors and supporters!

#nfforwarddetroit #beNeFitXI

[NF Forward @NFForward]

beNeFit XI -Save the date November 18th!
#beNeFitXI

[NF Forward @NFForward]

On May 17, 2023, landmarks across the world lit up in blue and green for the Shine a Light Campaign promoting NF awareness. Many buildings across Detroit showed their support for National NF Awareness Day. Thank you to all the participating buildings💙💚
#EndNF #ShineALightonNF

[Cleveland Cavaliers @cavs]

We have partnered with @NFForward and @ChildrensTumor to launch the Bow Tie campaign. We're dedicating our 2022-23 season to Nick Gilbert and the millions of others impacted by neurofibromatosis (NF).

Learn more at https://t.co/mEqaLx9AQ7!

[NF Forward @NFForward]

On May 17, 2022, landmarks across the world lit up in blue and green for the Shine a Light Campaign promoting NF awareness. Check out some participating buildings in the Detroit area and go to our website for the full list!

[NF Forward @NFForward]

On World NF Awareness Day, and every day we strive to shine a light on the cause and the people living with NF. We are committed to continuing our work and supporting efforts to accelerate a cure.

#MakeNFVisible #endnf #NF

[NF Forward @NFForward]

Today is the day! If you are watching from the comfort of your home click the link below to join the live stream. See you soon!

https://t.co/dx0LwNMVmr

[Gilbert Family Foundation @GilbertFamilyFd]

We are excited to announce a new study aimed to understand the mechanisms of vision loss caused by NF1-OPG. Led by Drs. Rob Avery @ChildrensPhila and Jeff Goldberg @StanfordMed, findings will help inform future therapies and validate existing models.

https://t.co/ZqS1NynQUJ

[Gilbert Family Foundation @GilbertFamilyFd]

GFF is excited to announce a new clinical study in collaboration with @CHOPCancerCntr and the Children's Oncology Group to validate optical coherence tomography (OCT) as a biomarker for treatment response in NF1 patients with optic pathway gliomas. https://t.co/fW2LMAz0HP

[Cancer Center @ CHOP @CHOPCancerCntr]

A clinical study funded by @GilbertFamilyFd will allow CHOP researchers to partner with the Children's Oncology Group to validate optical coherence tomography (OCT) to measure NF1-related progressive vision loss. Learn more at: https://t.co/4Y8m4D6KL0. #ForBreakthroughs

[Children's Tumor Fdn @ChildrensTumor]

*BIG NEWS* KOSELUGO APPROVED BY THE EU COMMISSION FOR CHILDREN W/ NF1 & PLEXIFORM NEUROFIBROMAS

https://t.co/s7hsItLVC5

[NF Forward @NFForward]

Countdown is on... mark your calendars for beNeFit IX!

#beNeFitIX #NFForward #NFF #beNeFit

[Broder & Sachse @brodersachse]

We were proud to illuminate The Albert and The Scott blue and green for the Shine a Light on NF campaign. Learn how more Detroit organizations helped #makeNFvisible in @cbsdetroit’s article! #EndNF https://t.co/eCPsHwJms4

@BedrockDetroit @ChildrensTumor @NFForward

[NF Forward @NFForward]

Thank you @BedrockDetroit for partnering with us to raise awareness and Shine a Light in Detroit!

[Bedrock @BedrockDetroit]

Through the end of the month, Bedrock and community partners are ‘Shining a Light’ on Neurofibromatosis (NF) by illuminating buildings blue and green. Shine a Light on NF is an awareness campaign spearheaded by @ChildrensTumor. #EndNF

[NF Forward @NFForward]

@ChildrensTumor We are committed to #MakeNFVisible!

[NF Forward @NFForward]

Thank you for joining us and @ChildrensTumor in our fight to #makeNFvisible!

[Broder & Sachse @brodersachse]

In support of the Shine a Light on NF campaign, @brodersachse’s The Albert - Capitol Park and The Scott at Brush Park went blue yesterday on World NF Awareness Day! Let’s #EndNF together! Beyond NF Awareness Month, please help us continue to #makeNFvisible.

[Allan @raptolemy]

@NFForward Everyone’s fight is different - but what a strong community! Briella’s our fighter.

#TruroCivicSquare
#May17
#EndNF
#NFAwarenessDay
#shinealightonNF
#CTF

[NF Forward @NFForward]

Today is #WorldNFDay - join us this week as we continue to raise awareness for NF. #MakeNFVisible

[Children's Tumor Fdn @ChildrensTumor]

NF causes tumors to grow on nerves throughout the body.

#makenfvisible #neurofibromatosis #endnf