How can @Zamplo_app help individuals living with Gaucher?
Zamplo allows individuals to keep track of all their health data virtually!
To learn more about Zamplo, visit @Zamplo_app. To get started on Zamplo, sign up here: https://t.co/l4VLhDKrrt
#raredisease#gaucherdisease
The National Gaucher Foundation of Canada and @Zamplo_app are teaming up to connect individuals living with Gaucher to Zamplo, a tool they can use to manage their condition.
Together, we will raise awareness for Gaucher disease.
Get started on Zamplo: https://t.co/l4VLhDKrrt
Living with Gaucher? Over the age of 18? Have access to internet?
Good news! There is a new global clinical study that you can be a part of. The G.R.I.T Study will look for better ways to manage virtual care for patients.
To learn more, visit https://t.co/Alq6GAyMXm
Are you or a loved one living with Gaucher?
There is a new clinical trial for managing Gaucher! In the first ever global app-based study individuals will use the @Zamplo_app app to track, manage, and analyze their health.
Want to learn more? Visit https://t.co/Alq6GAyMXm
Have you heard about the first-ever global clinical trial that uses a digital app?
The M.A.G.I.C clinic focuses on rare genetic diseases like Gaucher, and are currently conducting the G.R.I.T Study.
Want to know more about the G.R.I.T Study? Visit https://t.co/Alq6GAyMXm
'Relieved but terrified': Without fighting for care, Ottawa sisters sharing same rare disease wouldn't have lived past 30 https://t.co/anOYQjCaL4 via @citynewsottawa
Thank you for all the support this afternoon! Be sure to visit https://t.co/SY9a2flf0z and send an email to your MP today and tell them to STOP the PMPRB from harming patients #fightforourlives#rarediseases#canpoli
For #GaucherDiseaseAwarenessMonth@NGFCanada will host Understanding Gene Therapy for Gaucher Disease on Oct. 29 at 7:00 p.m. ET. Join in person or via live webcast! Learn more and register here: https://t.co/BwEHYCiol1. Supported by an educational grant from AVROBIO.
For #GaucherDiseaseAwarenessMonth@NGFCanada will host Understanding Gene Therapy for Gaucher Disease on Oct. 29 at 7:00 p.m. ET. Join in person or via live webcast! Learn more and register here: https://t.co/wj0CzSJr6x. Sponsored by AVROBIO