NICU Parent Network

NPN is a collaborative of NICU Support Organizations led by NICU Parent Professionals. We're the only professional association for NICU Parent Leaders in the US

[NICU Parent Network @NICUParentNet]

https://t.co/lYjW7lhjMl

[FCCTaskforce @FccTaskforce]

Save the date for the first webinar of the fall!

#fcc #nicu #nicunurse #nicuparent

[FCCTaskforce @FccTaskforce]

Our summer newsletter is out!
Please share with your teams!

#fcc #nicu #nicunurse #nicuparent

[Jennifer Degl @JenniferDegl]

The 2025 @iCANResearch Summit was our best one yet! Click below to read about how our organization gives kids with rare diseases & medical complications a platform to share their voices in clinical trail design and more.
#ICAN2025 #clinicalresearch
https://t.co/gstrWyUuPL

[FCCTaskforce @FccTaskforce]

Save the date for the first webinar of the fall!

#fcc #nicu #nicunurse #nicuparent

[NICU Parent Network @NICUParentNet]

New Podcast Episode from @ParentsNicu! In this powerful episode, Dr. Melinda Elliott reveals how skin-to-skin care, informed nutrition choices, & parental involvement can directly impact outcomes for NICU infants. https://t.co/SXpM5WcAYs

[NICU Parent Network @NICUParentNet]

House Resolution 236 urges Congress to recognize the rights of NICU babies to receive family-centered, developmentally appropriate care.

📨 Send a letter to your representative now:

👉 https://t.co/t9lN293iRP

#FamiliesFirst #NICUBabysBillOfRights #HR236 #ActForNICUBabies

[NICU Parent Network @NICUParentNet]

Parents in the NICU face isolation, confusion, and heartbreak—on top of caring for a critically ill baby. House Resolution 236 outlines basic protections every NICU baby & family deserves.

Use your voice. Send a letter today: https://t.co/t9lN293iRP

#NicuBabysBillOfRights

[FCCTaskforce @FccTaskforce]

Next #FCC webinar is this week!
Don't miss it!
And a reminder that we have webinars every other month. You can also check out previous webinars on our youtube!

https://t.co/C8FUsyaiVE

[NICU Parent Network @NICUParentNet]

Looking for trusted info on neonatal care? On Neopedia, you’ll find:
✔️ Expert-reviewed recommendations
✔️ Practical tips & explanations
✔️ Parent-to-parent advice
✔️ Downloadable resources
Visit https://t.co/Xaj4Gb8tQs 👈

#Neopedia #PreemieSupport #ParentSupport #NewbornHealth

[Hope for HIE ☀️ @HopeforHIE]

Common feelings in the aftermath of HIE are complex and deep.

#NeoTwitter #NeuroTwitter #PerinatalMentalHealth #NICU #PTSD #Anxiety #Depression

[NICU Parent Network @NICUParentNet]

⏳ 1 week to go! Neopedia is for parents and caregivers of preterm or sick babies & HCPs looking for reliable, easy-to-understand neonatal care info.

📅 Launch: 21 May 2025
🔗 Sign up: https://t.co/Xaj4Gb91G0

#Neopedia #PreemieSupport #ComingSoon @gfcni_newborn

[NICU Parent Network @NICUParentNet]

🚀 The countdown is on! 4 weeks until Neopedia launches – a multilingual platform with reliable, easy-to-understand information on neonatal care, prematurity & post-discharge development.
📅 May 21, 2025
🔗 Sign up: https://t.co/Xaj4Gb8tQs
#Neopedia #ParentSupport #NICU

[NICU Parent Network @NICUParentNet]

Today’s the final day to grab the early registration discount! Join us July 22–23 to amplify NICU parent voices and advocate for real change.
🎟️ $50 – NICU Parents & NPN Members
🎟️ $100 – Non-Members

Register here ➡️ https://t.co/BTZN4VPckB

#NpnHillDay #NICUAdvocacy

[NICU Parent Network @NICUParentNet]

The @NECsociety, Cincinnati Children’s, & UNC Children’s are proud to open registration for the NEC Symposium in Chicago, September 7 – 10, 2025. The NEC Symposium is the world’s largest conference focused on necrotizing enterocolitis (NEC). https://t.co/fewxrAwtAh #preventNEC

[NICU Parent Network @NICUParentNet]

EARLY REGISTRATION DISCOUNT - EXTENDED through Friday, 4/18! Join us on Capitol Hill July 22-23 as NICU Parent Leaders and advocates from across the country come together to amplify the voices of NICU families ➡️https://t.co/MbTwltWumt #NPNHillDay #advocacy #NicuBabysBillOfRights

[NICU Parent Network @NICUParentNet]

Adult preemie Giorgia Giuliana Garola (@VivereOnlus1) remembers the power of kangaroo care with her mom. Her advice to parents: “Be as close as possible to your child. You are so important for them.” 💜 Neopedia launches May 2025🌟 #Neopedia https://t.co/yX6n6KdBB5

[NICU Parent Network @NICUParentNet]

Thank you, @RepMcGarvey & @RepHouchin, for standing with NICU families and advocates by supporting the NICU Parent Network’s NICU Baby’s Bill of Rights! #NICUBabysBillofRights #NICUAdvocacy

[Rep. Morgan McGarvey @RepMcGarvey]

My twins spent 99 days in the NICU — some of the most difficult days of our lives.

We learned that information is vital when you're fighting for your babies — every parent should have that.

That's why @RepHouchin and I introduced the NICU Baby Bill of Rights.

[NICU Parent Network @NICUParentNet]

@RepMcGarvey @RepHouchin Thank you, @RepMcGarvey, for standing with NICU families and advocates by supporting the NICU Parent Network’s NICU Baby’s Bill of Rights! Every NICU baby & family must receive the care and support they deserve. #NICUBabysBillofRights #NICUAdvocacy

[NICU Parent Network @NICUParentNet]

NPN applauds the introduction of the NICU Baby’s Bill of Rights (H. Res 236)! THANK YOU @RepHouchin & @RepMcGarvey for championing this resolution, ensuring parents have a voice in NICU care & decision-making. https://t.co/BXEp3UAIJ1

#NICUBabysBillofRights #FamilyCenteredCare