Team Thomas

NKH Crusaders is a organization raising awareness for non ketotic hyperglycinemia . NKH for short is a rare metabolic progressive disease that takes the l

[Team Thomas @NKHCRUSADER]

We are thrilled to announce that NKH Crusaders has been awarded the Chan Zuckerberg Initiative Rare as One Grant!
Thank you for your support as we embark on this incredible journey together! 💚 #NKHCrusaders #RareAsOne #Rareasoneprject #ChanZuckerberg
https://t.co/gIMS1UAV47

[Team Thomas @NKHCRUSADER]

Support NKH and win a trip only 8.00 a chance #NKH Crusaders

https://t.co/JgD5mo9LuF

[Team Thomas @NKHCRUSADER]

SUPPORT NKH CRUSADERS

[Chan Zuckerberg Initiative @ChanZuckerberg]

A big welcome to the 31 amazing patient-led rare disease organizations joining our #RareAsOne community! We're excited to take on the challenges ahead—together💥

Meet our grantees & learn more about the network 🔽 https://t.co/kO65tigFXo

[Team Thomas @NKHCRUSADER]

@wbz This whole trial is a waste of tax payers money , Karen is not guilty of killing him, so many things wrong with this trial !

[Team Thomas @NKHCRUSADER]

"🎉 Join our event: Colorado Day Blitz for NKH Research! This entire month, we're focused on supporting vital research to treat Nonketotic Hyperglycinemia. Help us reach our $35,000 goal. Every donation made will be matched,🚀 Learn more and donate here: https://t.co/XNzZnjsVY1

[Team Thomas @NKHCRUSADER]

Help us fund the cure every dollar is matched !! https://t.co/9Ngdoox3XE

[Team Thomas @NKHCRUSADER]

Check out NoraJaneFoundation's Story! https://t.co/QzllSn3oe2

[Team Thomas @NKHCRUSADER]

@reaganudall @FDAPatientinfo Thank you for creating this incredible platform to allow patients living with rare disease the opportunity to share not only about the disease but the hardships , life of every family impacted by this disease .

[Team Thomas @NKHCRUSADER]

Honored to have been able to share our experiences with NKH.

[Foundation for FDA @reaganudall]

Thanks @NKHCRUSADER for organizing last Friday's Patient-Led Listening Session on non-Ketotic Hyperglycenemia (NKH). And a special thank you to the parents who shared their powerful stories with FDA. @FDAPatientinfo

[Team Thomas @NKHCRUSADER]

https://t.co/e9qyEjKaBp

[Team Thomas @NKHCRUSADER]

@WentworthMLAX see you Saturday #teamthomas new toys , gift cards needed .

[Team Thomas @NKHCRUSADER]

@WitLaxTailGate

[Team Thomas @NKHCRUSADER]

@witathletics see you on Saturday #TeamThomas new toys , gift cards for grocery stores , pharmacies .

[Team Thomas @NKHCRUSADER]

@WentworthMLAX #TeamThomas

[Team Thomas @NKHCRUSADER]

#NKHCrusaders

[Team Thomas @NKHCRUSADER]

Proud of being part of this summit for IQVIA

[IQVIA Institute @IQVIA_Institute]

At IQVIA Institute Patient Advocacy Summit 2022, 175 participants from various organizations, foundations, and life sciences and technology companies explored best practices around patient-driven research and data programs. Discover key learnings: https://t.co/V85s0kkTY8

[Team Thomas @NKHCRUSADER]

@KathieLGifford help us spread awareness on NKH Awareness day for this devastating disease. We are families funding the cure https://t.co/m4nlBpHjwI https://t.co/YtyLTQC2sz

[Team Thomas @NKHCRUSADER]

@BostonChildrens spread awareness for NKH on NKH Awareness Day https://t.co/YtyLTQC2sz