Niemann-Pick C Fund

NPCF was organized in Dec 2008 in order to raise awareness of Niemann-Pick Type C disease, research, and support for affected family's/individuals. It's FATAL.

[Niemann-Pick C Fund @NPCFund]

How To Overcome Tragedy, Keep Your Faith, And Win In Life! https://t.co/OJNJT0s1eB @IdeasToFortune #KeepYourFaith

[Niemann-Pick C Fund @NPCFund]

Alex McClean: Georgina’s Gang are gratefully receiving donations in memory of Alex McClean.  The... https://t.co/7NuEciEP1z #RareDisease

[Niemann-Pick C Fund @NPCFund]

Happy 12th Birthday Brisan!:
August 27, 2014 – Today little Bubbas we will celebrate yo... https://t.co/8W8HyRdBB4 #RareDisease #Stults

[Niemann-Pick C Fund @NPCFund]

Bingo Night: 28 August – Royal British Legion Hall, L’Islet   £1 per ticket – books available to... https://t.co/dttZEuxLVk #RareDisease

[Niemann-Pick C Fund @NPCFund]

Drug for Rare Disorder Linked to Reducing Cholesterol Plaque: Compound being tested in a genetic condition sho... https://t.co/Nf3apeJ8OG

[Niemann-Pick C Fund @NPCFund]

Parker, We Miss You Today:
Today was the day a year ago that you left us around 1:55pm i... https://t.co/0dXLaJ6KCq #RareDisease #Stults

[Niemann-Pick C Fund @NPCFund]

From the Desk of Chris Klauer, NNPDF Family Services & Marketing Coordinator ~ Jan 15th, 2016: He... https://t.co/ceUgAdIasI #RareDisease

[Niemann-Pick C Fund @NPCFund]

Special Update from the NNPDF Board of Directors ~ Year-End 2015: Dear NNPDF Families and Friends... https://t.co/453yMEnY87 #RareDisease

[Niemann-Pick C Fund @NPCFund]

UPDATE: 2016 NNPDF Family Conference Date and Location Announced: The NNPDF is excited to announc... https://t.co/mZtMPpNynH #RareDisease

[Niemann-Pick C Fund @NPCFund]

From the Desk of Chris Klauer, NNPDF Family Services & Marketing Coordinator: January 8th, 2016: ... https://t.co/fZg90Q5izg #RareDisease

[Niemann-Pick C Fund @NPCFund]

Happy 10th Birthday Parker!:
Parker, aka Mr. Stinky…. today we are celebrating your 10th... https://t.co/h7EWfF9jVg #RareDisease #Stults

[Niemann-Pick C Fund @NPCFund]

Vtesse, Inc. Announces FDA’s Granting of Breakthrough Therapy Designation for VTS-270 (2-hydroxyp... https://t.co/XAogvFnj6b #RareDisease

[Niemann-Pick C Fund @NPCFund]

We Will Persevere!: As 2015 draws to a close, families and friends will gather to celebrate all o... https://t.co/k2wKQDfNj9 #RareDisease

[Niemann-Pick C Fund @NPCFund]

Giving the Gift of Hope!: During these tight fiscal times, we understand that there are many wort... https://t.co/iawJOluVaU #RareDisease

[Niemann-Pick C Fund @NPCFund]

Season's Greetings from the NNPDF!: The National Niemann-Pick Disease Foundation would like to wi... https://t.co/jhCGgxscXE #RareDisease

[Niemann-Pick C Fund @NPCFund]

NPC Vtesse Clinical Trial & Central Office Updates: Dateline: Dec 21st, 2015 Dear NNPDF Family & ... https://t.co/JJQ2J22Tzl #RareDisease

[Niemann-Pick C Fund @NPCFund]

Dec 18th, 2015 ~ From the Desk of Chris Klauer, NNPDF Family Services & Marketing Coordinator: De... https://t.co/AKarv9G4a9 #RareDisease

[Niemann-Pick C Fund @NPCFund]

Ghazi Tamim (NPA) 10/21/2013 - 12/07/2015: Dear NNPDF Families and Friends,The NNPDF Central Offi... https://t.co/txMmb4SoJ5 #RareDisease

[Niemann-Pick C Fund @NPCFund]

Year-end Shopping for the Gift of Hope!: Dear NNPDF Families and Friends,As year-end approaches a... https://t.co/pj5bsOXzub #RareDisease

[Niemann-Pick C Fund @NPCFund]

ALERT: New Recruiting Sites for VTS-270 (2-hydroxypropyl-β-cyclodextrin) for NPC: ALERT: United S... https://t.co/1XGAaq0fIk #RareDisease