NW Children’s Palliative Care Network

NW Children & Young People’s Palliative Care Network brings together representatives of babies, children & young people with palliative care needs.

[NW Children’s Palliative Care Network @NWChildrenPCN]

NW Children’s Palliative Care Network launched a short animation, explaining children’s palliative care to professionals & families, to co-incide with Children’s Hospice & Palliative Care week “What is children’s palliative care?”@Tog4ShortLives

https://t.co/CrBGFHfzhr

[Together for Short Lives @Tog4ShortLives]

Children’s hospice services help seriously ill children and young people, and their families, to deal with the emotional and physical challenges they face. Download our free resource to find out how your local children’s hospice can help.
https://t.co/dguVYbzrJR

[🏥 Alder Hey 💙 @AlderHey]

We've been joining in with the #WorldDownSyndromeDay celebrations at Alder Hey today. Check out the #LotsOfSocks that we've snapped across the hospital! 🧦 📸

[Disabled Children's Partnership @DCPcampaign]

A brilliant read from our friends at @SpcialNdsJungle 👇

[Kathryn Mannix @drkathrynmannix]

Wonderful training giving access to fabulous resources for people who train others in #TenderConversations.
Recommend @RealTalk_EOL +++

[Child Bereavement UK @cbukhelp]

‘Bereavement and pupils with SEND’ is a new, free-to-access online resource developed by us in collaboration with @LGfl for education professionals working in mainstream or SEND settings. To access the free resources: https://t.co/mUVv3P0fRu

#neurodiversityweek
#SEN #SENCO

[Child Bereavement UK @cbukhelp]

We’re delighted that our animation ‘Remembering someone special who has died’ won Gold in the People’s Choice in the £2.5-£5m charity income category at @smileycfa Charity Film Awards 2024. The film aims to encourage conversations and to be helpful to families and their children who are missing someone. Thank you to everyone who voted!

📽️👉https://t.co/UfQ6gTc4SB

#Remembering
#CFA24 #CharityFilmAwards #CharityFilm

[Jerusha Murdoch-Kelly @jerushaMK]

And this one won Neonatal Nurse of the year!! She wont big herself up but i will, we @MaimunaMushabe & I couldn’t do our job without her. She truly cares and leads by example. She not one to moan 😉
@MSEHospitals @EoENeonatalODN @dawnmpatience @BAPM_Official @DianeSarkar

[Together for Short Lives @Tog4ShortLives]

When a child dies from a life-limiting or life-threatening condition many families are plunged into financial difficulty. Our Butterfly Fund provides a one off grant of £300 to help ease the burden.

Find out more about how to refer here: https://t.co/gZkWhwjkOE

[Barnardo’s @barnardos]

As the five leading children’s charities, we’ve joined forces to make children’s voices heard in the upcoming election. We want to see safer, happier and healthier childhoods right across the UK.

Take action. Sign the petition:
https://t.co/c95CnBY1KJ

#ChildrenAtTheTable

[National Deaf Children's Society @NDCS_UK]

Our Deaf Children Today survey is here and we need you!

Tilly tells us how we supported her and her daughter Ada, and why it’s vital for families to share their experiences in the survey.

Let's empower every deaf child and young person. Take our survey: https://t.co/HH0iydjQev

[YoungMinds @YoungMindsUK]

Parents, if your child finds it difficult to open up to you, here are some things you could say that might help:

1/ You can talk to me, I’m here for you.

2/ If you need to talk to someone else, that’s okay too.

3/ If you talk to me about what is worrying you, I can do my best to help.

4/ Even if I don’t understand, know that I want to.

5/ We’re going to get through this together.

You could also see whether other forms of communication like writing a letter or texting would make it easier for your child to let you know what’s going on. Remember that you know your child. You can tell when it isn't the right time or they aren’t in the mood to talk.

[Department for Work and Pensions @DWPgovuk]

Bereaved cohabiting parents who lost their partner between 9 Apr 2001 and 8 Feb 2023 may be eligible for backdated Widowed Parent's Allowance or Bereavement Support Payment

Those eligible have 2 weeks left to claim, up to 8 Feb 2024

More information: https://t.co/20fWy8DyWy

[🏥 Alder Hey 💙 @AlderHey]

During December 2023, @alderheyED ranked 2nd nationally for waiting times, seeing & treating 85% of our children & young people within 4 hours. The national NHS target stands at 76%, with our A&E ranking 1st in the North-West region 🙌 A massive well done to the entire team!

[Hospice UK @hospiceuk]

When someone is in the last few days of life, there are some signs which might look distressing. Most of the time, the person is not in any pain - they’re just a normal part of dying.

This article explains what the signs are, and what they mean 👇
https://t.co/iFemGA2ZLh

[Together for Short Lives @Tog4ShortLives]

This worrying report shows that a third of councils expect fewer places SEND nursery places to be available from April. It is imperative that government and local authorities work with child care providers to ensure that children with SEND needs get the access they need.

[RCPCH Wales @RCPCHWales]

We welcome the focus on child health inequalities in the Welsh Government’s Child Poverty Strategy 2024.

But the strategy comes up short as it lacks clear targets and a way to monitor the strategy’s delivery robustly and transparently. (1/2)

[Child Bereavement UK @cbukhelp]

We’re pleased to partner with Settld. Settld offer a free online notification service to simplify the administration after someone has died, helping take away added stress at what is already a very difficult time.

For more information visit: https://t.co/nGBbl6OJx6

[NW Children’s Palliative Care Network @NWChildrenPCN]

📢URGENT DEADLINE APPROACHING
Time is running out for cohabiting parents to claim back payments of bereavement benefits. Claims MUST be @DWPgovuk by 8 Feb to get amount owing. Please retweet to help find the 000s of families still to claim. More info: https://t.co/7RyUQ3POMO

[NW Children’s Palliative Care Network @NWChildrenPCN]

#LestWeForget2023 on the 11th hour of the 11th day of the 11th month…. #ArmistaceDay

[CYP Research in Palliative Care @CYP_CSI]

Why is the C-POS study important? A systematic review led by @LucyCoombes7 found there is currently no 'ideal' outcome measure for use in paediatric palliative care. The C-POS study aims to develop the first valid tool for use in the UK. Full article: https://t.co/zF7DOhgOEb