North and West Yorkshire Haemophilia Network

We are The Network for Haemophilia and Bleeding disorders, incorporating Leeds, Bradford and York Hospitals. Dedicated to improving services for our patients.

[Haemophilia Society @HaemoSocUK]

Josh Taylor-Rose, our Youth Ambassador and member of the newly-formed Youth Board, has just spent a month travelling around Thailand.

In his new blog, he explains how he overcame the challenges of his severe haemophilia A while travelling.

Read More: https://t.co/lVPqeX9IFB

[Haemophilia Society @HaemoSocUK]

Youth Camp 2023: done! ✅

While we look back through some of our favourite memories from the weekend, we'd like to thank everyone who came, the staff at the campsite and, of course, our wonderful volunteers, who help make Youth Camp what it is!

[Kavitha_Nades 💙 @Kavitha_Nades]

Come& join the Haematology team @BTHFT .

Options for Malignant, Haemophilia, Haemoglobinopathy, Level 2B+ with middle grade oncall rota.

Teaching opportunities, research & interesting pathology.
-What more could you want! Apply below

https://t.co/7Kkbe4lpuG

Please retweet

[Haemophilia Society @HaemoSocUK]

The Haemophilia Society is very excited to announce the launch of our first Youth Board, which will support, empower and mentor young people with a genetic bleeding disorder.

Read Now: https://t.co/orDJEz9gke

[The Haemophilia Society's Inquiry Team @HaemoSocUK_PI]

The govt 'has not made a final decision on compensation', and is grappling with issues such as devolution and how payments might be administered. An announcement may not be made until after the Infected Blood Inquiry's final report in the autumn, said Minister Jeremy Quin.

[North and West Yorkshire Haemophilia Network @NWYorksHaem]

@HaemoSocUK Whoop whoop! Proud of you ladies and everything you do❣️

[Haemophilia Society @HaemoSocUK]

Pathologist Arun Manoharan was so impressed by his haematology colleagues at the Bradford Royal Infirmary on World Haemophilia Day he decided to raise money for the Haemophilia Society in @LondonMarathon on Sunday! @staceydoherty18 @NWYorksHaem
https://t.co/lFfiWAtzHM

[Leeds Children's Hospital @Leeds_Childrens]

Meet Charlie on #WorldHaemophiliaDay. Charlie has severe Haemophilia A and today we caught up with Charlie in clinic with Dr Mike Richards. Charlie has to be careful and avoid contact sports but loves cycling 🚴‍♂️swimming 🏊‍♂️and plays football⚽️(centre forward and goal keeper)!

[North and West Yorkshire Haemophilia Network @NWYorksHaem]

@staceydoherty18 @karendawber @HaemoSocUK @NursesHna @CathyAH1980 @BTHFT @BTHFTCharity @Mel_Pickup @haemnet Looking great 😊 Well done everyone!

[stacey doherty @staceydoherty18]

World haemophilia day here at BRI come along and join us and say hi
#BleedingDisorders
#haemophilia
#lightitupred #bradfordteachinghospitals
@karendawber
@HaemoSocUK
@NursesHna
@CathyAH1980
@BTHFT
@BTHFTCharity
@Mel_Pickup
@haemnet
@NWYorksHaem
@Haem

[North and West Yorkshire Haemophilia Network @NWYorksHaem]

Today is World Haemophilia Day and we are marking the day with a mixture of education, patient stories, awareness raising and celebration across the North and West Yorkshire region @Leeds_Childrens @LeedsHospitals @BleedYorkshire @BTHFT @BBCLookNorth @LeedsNews

[North and West Yorkshire Haemophilia Network @NWYorksHaem]

This amazing Charity have pledged to support children and YP with bleeding disorders, registered @Leeds_Childrens and are working hard to raise funds. This looks to be a brilliant night and a great opportunity to get dressed up! @BleedYorkshire @HaemoSocUK

[Leeds Children's Hospital @Leeds_Childrens]

🦷 Our Super Saturday 'Big Brush' this morning saw patients and staff across the hospital giving their teeth a good brush in time to the music, raising awareness of the importance of dental hygiene for children. #NHSSuperSaturday 🪥

[Dr Richard A Wilkins @RichardAWilkins]

- 18 UK sites
- 243 participants with haemophilia and ankle
haemarthropathy
- Report poor HRQoL and foot and ankle outcomes
- Driven by pain
With thanks @HCPA11 @HeidiSiddle @ProfTonyRedmond @g_j_chapman @RebeccaWalwyn @HaemoSocUK @NWYorksHaem
https://t.co/ClZ1GfIX7C

[BloodStream Media @BloodStrmMedia]

Chair of @HaemoSocUK & tireless #haemophilia advocate @Clive_Smith_ addresses “a huge milestone;” the recent completion of the Infected Blood Inquiry (@bloodinquiry) after 4.5 years of evidence presented. Watch now.
#hemophilia #bleedingdisorders

[Sarah Garside @Sarahhaemonurse]

On the train to #EAHAD2023 in Manchester. Looking forward to a few days of brain expansion and catching up with colleagues and friends from the world of #haemophilia!

[North and West Yorkshire Haemophilia Network @NWYorksHaem]

Such a simple way to support your chosen charity…

[Haemophilia Society @HaemoSocUK]

With Amazon Smile, every purchase you make while shopping through Amazon means we receive a donation! With just a week to go until Black Friday, we'd really appreciate your support.

Just visit the link in our bio and start shopping, it's as simple as that!

[WFH @wfhemophilia]

We are pleased to announce that Madrid, #Spain was selected as the location for the next WFH World Congress in today’s GA. La Federación Española de Hemofilia, @fedhemo, will host the event in 2024. We thank all NMOs for putting their candidacies forward. https://t.co/Aq9FG5cCZW

[North and West Yorkshire Haemophilia Network @NWYorksHaem]

The NWYHN are holding their next PCPI meeting on Wednesday 23rd November. If you live with a bleeding disorder or are a relative of someone who does, and you’re registered @Leeds_Childrens @LeedsHospitals @BTHFT or @YSTeachingNHS CCC or HC, it would be great to see you there!