Nico Meyering: @namestartswithn.bsky.social

President, @yiphilly
Chair, Philly Commission for People w/ Disabilities.

+ @awesome_dis & @DisMentors HoF.

Former: @PhillyACAlumni.

Opinions mine, he/him

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

Hi #DisabilityTwitter! For #DisabilityPrideMonth 2024 I chatted w/ 60+ other #Disabled people about their diagnoses. Overjoyed and honored to hear stories from 7 nations. I loved doing this work.

This is True Disabled Story!

https://t.co/p34l9LOAy3

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

A series about Cyke 🥰
During from the ashes 😑

Not a fan of the art (oh no is that beast?!) but I want to support X-men solos and my FLCS so I will subscribe.

[martin @mvrtxin]

CYCLOPS #1 FIRST LOOK
#xspoilers

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

@get2dachopra Oh wow incredible! Where did you get the glasses for this? They are spot on for the character. Great work!

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

Thanks for sharing more info about those of us living with CCHS!

In the US, we with CCHS often choose to get the trach out- especially as we age into adolescence and adulthood

Folks with CCHS can also have cardiac pauses and vision issues too

@RareRevolutionM @keepmebreathtwt

[RARE Revolution Magazine® @RareRevolutionM]

CCHS vs Sleep Apnoea 🌙💤

We’re often asked if Congenital Central Hypoventilation Syndrome (CCHS) is the same as sleep apnoea — but it’s very different. 🌬️💙

✨ Sleep Apnoea - usually caused by an airway obstruction.
✨ CCHS - a rare neurological disorder where the brain doesn’t send the right signals to breathe.

Understanding the difference is vital to raising awareness and support for children and families living with CCHS. 💪💙

#KeepMeBreathing #CCHS #SleepApnea #KnowTheDifference #RareDiseaseAwareness #BreatheForCCHS #SaturdayTakeover
https://t.co/ttTIAE6RD3 @keepmebreathtwt

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

I am not here much.

Turns out I liked reading tweets more than tweeting.

Updated the bio to stay current but otherwise

don't give creeps your energy &

go do something nice for philadelphia today

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

Can someone offer me a "go birds" in this trying time?

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

Email in my inbox: "Nico, here's how to use your Venmo credit card!"
I know how to use my Venmo credit card. I am the Olympic gold medalist of using my Venmo credit card, that's the problem.

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

The Orlando Magic went 7 for 30 from the 3 point field tonight and they still beat us.

The Sixers are now 15-22. Ugh

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

I love reading and I love @FreeLibrary!

The Richmond Free Library here in #philadelphia is at risk of roof collapse and has not had heat for several days.

Roxborough branch has also had no heat for a while.

How can we better fund & maintain our libraries?

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

I love watching @divorcecourt

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

Heard from one of my disability commissioners last night -- another year, another Christmas village inaccessible to wheelchair users.

Sad that this issue with CV keeps happening.

Disabled people want to shop locally! Hoping we can chat w/ CV and ensure access for the future.

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

Belated thanksgiving photo, glad for these folks

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

Set up a post-Thanksgiving waffle bar for the family

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

Went out to McGillin’s with my DnD friends. Who woulda thought we’d still be fighting orcs after 6 years? Grateful

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

@yiphilly wrapped another Board Prep class! 20+ grads met with 12+ #Philadelphia community groups seeking board members.

Honored to run this 8-week #BoardMember boot camp.

thanks to @indbigs @SpruceFdn @foodmoxie @PennTreatyPark @NetImpactPhilly @MANNANourishes and more!

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

100% covered bus stops with benches. 100% accessible stations. $1 fares on game days and holidays. All SEPTA cars and stations that need repair get it. We build the Roosevelt blvd subway, hire more drivers and increase service frequency. We expand routes each year. SEPTA = access

[SEPTA Youth Advisory Council @SEPTAYAC]

What would you want to see if SEPTA was given unlimited operating and capital funds?

[Councilmember Jamie Gauthier @CouncilmemberJG]

Philadelphia can breathe a big sigh of relief. Thanks to @GovernorShapiro, January 1st will not mark the beginning of the end of safe, frequent, and reliable mass transit in our city. I am grateful to the Governor for "getting stuff done" and investing in the mobility and economic success of our communities.

We avoided the imminent transit death spiral, but our fight for fully funded public transit isn't over. My constituents disproportionately rely on SEPTA to get to work, school, and other essentials. Too much is on the line to be back in this situation again. When lawmakers return to Harrisburg, Senate Republicans must come to the table and make a deal that keeps Pennsylvanians moving.

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

I love the Sixers, I root for the Sixers but this team really acts like they just met each other 5 minutes before each game

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

I'd love to see you all on @bluesky once I get set up!

[Nico Meyering: @namestartswithn.bsky.social @NameStartsWithN]

Governor, flex that funding, divvy up those dollars, please fund SEPTA.

[Governor Josh Shapiro @GovernorShapiro]

There’s a lot going on — and there’s a lot that folks need from their government.

I want to hear what you need.

My number is 717-788-8990 — send me a text with your thoughts on how we can keep getting stuff done for you.