Carmen Pichot

[Whitney Dafoe @DafoeWhitney]

Cutting 99.7% Out of Your Life

I often say this to healthy muggles:

I have something like .3% (point 3%) of the energy that you have.

Close your eyes and picture all of the things you do in your life.

All of them - Work, school, friends, family, a relationship, a nightlife, travel, hobbies, goals, dreams, everything you put energy into.

Now imagine removing 99.7% of those things.

Imagine what you would choose to cut out of your life and how heartbreaking that would be.

And now imagine fitting into that remaining .3% (point 3%) getting your basic needs met like food, water, proper nutrition, hygiene, cleaning yourself, getting dressed, figuring out how to pay for these necessities plus medications and a home. And imagine how you would choose to spend the tiny fraction of a percent of energy you would have left after that.

Picture the list of things you made that you currently value in your life and how devastating it would be to have to ration them out so scarcely that sometimes you go weeks without any of them.

This is how many ME/CFS patients live for never ending decades.  And some go years without any of the things in your original list because all of their energy goes into trying to simply survive.

love,
Whitney ❤️

♿️ 𝐀𝐜𝐜𝐞𝐬𝐬𝐢𝐛𝐥𝐢𝐭𝐲: 𝐋𝐢𝐬𝐭𝐞𝐧 𝐭𝐨 𝐭𝐡𝐢𝐬 𝐩𝐢𝐞𝐜𝐞 𝐫𝐞𝐚𝐝 𝐚𝐥𝐨𝐮𝐝:
🔗 https://t.co/JeCVg5ieTB

#MECFS #LongCovid

[Carmen Pichot @Nameit]

https://t.co/lxyHhCGspT

[Neurología. Hospital de la Santa Creu i Sant Pau @neurosantpau]

2ª fabulosa sesión de la semana!

La Dra. María Borrell, a raíz de 2 casos clínicos, ha revisado el síndrome de neurotoxicidad asociada a células inmunoefectoras (ICANS) que puede aparecer en contexto del tto con CAR-T en pacientes oncohematológicos 🩸

Vamos a 👀 el resumen!

[Whitney Dafoe @DafoeWhitney]

My mind is so full of life, but I cannot act on any of it.

Donate to my 40th Birthday Fundraiser to help stop bright young minds from growing old alone in the darkness, their souls stuck in the still, shallow, muddy water of ME/CFS.

https://t.co/MzgXJV6bAu

[Dra. Eva Martin @SFCencuentro]

Y con esta información, ¿qué hago? https://t.co/5aWgrDFPcv

[Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke]

Meaningful recognition from Maureen Hanson, a molecular biologist and Professor in the Department of Molecular Biology and Genetics at Cornell University, New York. Why do #MECFS patients never hear any such expressions of understanding or empathy from Wessely School members?

[The Culturist @the_culturist_]

Some things shouldn't be possible to carve from stone, but the master sculptors managed it anyway.

A thread of impossible details of marble sculptures 🧵

[Carmen Pichot @Nameit]

https://t.co/I53eeabxwL

[Carmen Pichot @Nameit]

@cusdoga Lök

[Carmen Pichot @Nameit]

@literlandweb1 Lítost

[Joel Willans @VFinnishProbs]

Works every time

[Historic Vids @historyinmemes]

The Øresund Bridge is a remarkable engineering marvel that connects Sweden and Denmark, specifically linking the Danish capital, Copenhagen, with the Swedish city of Malmö. This architectural masterpiece comprises a combination of a bridge and an underwater tunnel, serving as a vital transportation route for both cars and railways.

The Øresund Bridge consists of three main sections. The journey begins on the Danish side with the Øresund Tunnel, an underwater passage that gradually ascends until it reaches an artificial island called Pepperholm. From there, the bridge emerges, spanning across the Øresund Strait and culminating in the Swedish city of Malmö. This intricate combination of tunnel and bridge creates an uninterrupted link between the two countries.

Renowned for its grandeur and beauty, the Øresund Bridge is considered one of the finest and most famous bridges in the world. Its design exhibits meticulous engineering and architectural precision, capturing the attention and admiration of visitors. The bridge stands as a symbol of the close ties and collaboration between Denmark and Sweden.

One of the notable features of the Øresund Bridge and Tunnel is its advanced monitoring system, which is among the most cutting-edge in Europe. Electronic cameras are strategically placed to accurately track vehicles passing through the bridge and tunnel. In the event of a vehicle stopping or any security concerns, live images of the specific location are displayed for immediate monitoring and response.

This comprehensive surveillance system ensures the safety and security of travelers on the Øresund Bridge and Tunnel. It enables authorities to promptly address any potential issues, maintaining a smooth and secure flow of traffic between the two countries. The combination of state-of-the-art technology and vigilant monitoring has made the Øresund Bridge a model for transportation infrastructure worldwide.

Overall, the Øresund Bridge stands as an iconic symbol of the strong connection between Denmark and Sweden. It not only provides a vital link for commuters and travelers but also serves as a testament to the remarkable achievements of modern engineering and design. With its blend of beauty, functionality, and advanced monitoring systems, the Øresund Bridge continues to inspire and awe visitors from around the globe.

[Carmen Pichot @Nameit]

@Yosoycorra Suecia

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

Bhupesh Prusty speaking in the Host Virus Interaction session at #BRMEC12
https://t.co/9oihyXoBKe
#mecfs #research

[Carme Batet @DraCBatet]

Mañana arranca en Sevilla el #congresosemdor2023 con una gran variedad de oportunidades y buena formación. Nos encontraremos allí ⁦@SEMDOR2⁩ #tratamientodeldolor #dolor ⁦@sedar_es⁩ #unidadesdedolor #columna ⁦@ConsorciCSI⁩ ⁦@SocBalDol⁩

[Carmen Pichot @Nameit]

@DafoeWhitney I am in Cambridge with them and I send you all my energy.

[Carmen Pichot @Nameit]

Comienza el 12 Coloquio y Congreso sobre ME/CFS en el campus de Cambridge. Avances en Encefalomielitis miálgica / Síndrome de Fatiga Crónica https://t.co/HLgHpXA1OC

[Carmen Pichot @Nameit]

@cusdoga Tu padre y tu madre se parecían.

[@invest_in_me (Invest in ME Research) 🇪🇺 @Invest_in_ME]

Just over two weeks until a week of #mecfs research meetings
30 May - 2 June Hinxton Hall, UK
https://t.co/pCOxTGnjyZ
#research #BRMEC12 #IIMEC15 #YEMERG03 #EMERG23 #longcovid #CPD #ECR

[MadameSunday @cusdoga]

“Cuando la mar ya era mar, la tierra no era más que roca desnuda. Los líquenes, venidos de la mar, hicieron las praderas. Ellos invadieron, conquistaron y verdearon el reino de la piedra. Eso ocurrió en el ayer de los ayeres, y sigue ocurriendo todavía.”
Eduardo Galeano
#sábado