Very excited to officially announce the launch of CommuniKIDS – a new trial results communication template for sharing results from pediatric trials! Available now via @clinicaltrialON: https://t.co/bkPcWDTqzK (thread 1/7)
On #RareDiseaseDay2025, we stand together to advocate for equitable access to diagnosis, treatment, and support.
We partnered with RareKids-CAN to provide training for clinical trials. The goal is to make discoveries and advances for kids, teens, and their families in Canada.
📣Canada’s federal granting agencies release the draft, revised Tri-Agency Open Access Policy on Publications
Details▶️ https://t.co/m4J8neLffY
Submit your feedback by March 31, 2025▶️ https://t.co/AtdoRb427c
@CIHR_IRSC@NSERC_CRSNG#OpenAccess#Research
New publication!
The SPOR Evidence Alliance published a paper describing the co-creation and evaluation of two capacity-building courses on knowledge synthesis for patient and public partners.
Read more: https://t.co/08bZhPWwj4
Join us on March 5 to hear from Breanne Stewart and Lori Anderson as they discuss navigating Canada's clinical trial environment.
➡️ To learn more and register visit: https://t.co/SR67HEG0KK
Recording now available!
➡️ Discover how Equity, Diversity, and Inclusion (EDI) can improve research outcomes & participant experiences.
➡️ Learn key strategies for fostering inclusive team culture and integrating EDI into clinical trial management.
Congratulations to Maureen Smith, IMPaCT Patient & Family Engagement Lead, on being the first patient member to join Canada's Drug Agency Board of Directors! 🎉
Read more here: https://t.co/UvAJ0WUgp0
Deadline extended to apply to the 2025 CanNRT Fellowships! 👀
Open to grad students, postdocs & clinical fellows in #neurodevelopment & associated conditions at universities across Canada.
Apply now!
👇👇👇
❓Are you interested in forming #partnerships with #Indigenous communities?
Join Dr. Serene Kerpan at the next @LeongCentre Trainee Hub on Nov 20 to learn about the central tenets of research with Indigenous communities. 🔎
Full details: https://t.co/IEkLGM6qCI
New language demands “meaningful engagement with potential and enrolled participants and their communities…before, during, and following medical research” in recognition of study participants as partners in co-creation. 👏
Thankfully, more children with complex genetic diseases are surviving to adulthood. But the adult healthcare system is not ready to care for them. We offer some ideas for ways forward: https://t.co/gXcDKeObLY
@CMAJ@dreyalcohen@AmolAVerma@UHN
Most #NICU drugs are off label, we have little idea what dosages are optimal for preterms.
Every neonatal drug RCT is a potential opportunity to address this problem.
Thanks @karelallegaert for your advocacy on this!
https://t.co/s08tYO5Hn2
@EBNEO@IMPaCTrials@CIHR_IHDCYH
Join us on November 21 to enhance your understanding and implementation of diversity, equity, and inclusion principles within clinical trial teams.
🌟 Co-hosted with @N2Canada 🌟
➡️ Register here: https://t.co/JaLKoLRtyU
📢 Attention Clinical Trialists: We are hiring a post-doc fellow with expertise in rare disease/child health clinical trial methods for RareKids-CAN: a new Canadian Pediatric Rare Disease Clinical Trials and Treatment Network!
➡️ For more info & to apply: https://t.co/ka0ITgxlW5